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Research projects
FRANCE
ILE-DE-FRANCE
PARIS
Evaluation and treatement of scleroderma
CHU Paris Est - Hôpital Saint-Antoine
Service de médecine interne
GERMANY
Hamburg
HAMBURG
International Inceptions cohort for Juvenile Systemic Sclerosis (jSSc)
Schön Klinik Hamburg Eilbek
Hamburger Zentrum für Kinder- und Jugendrheumatologie
GERMANY
Schleswig-Holstein
LÜBECK
Generation and characterization of an antibody-based mouse model for systemic sclerosis
Universitätsklinikum Schleswig-Holstein - Campus Lübeck
Klinik für Rheumatologie und Klinische Immunologie
ITALY
CAMPANIA
NAPOLI
DESSCIPHER: Development and Prevention of Severe Heart Disease in Systemic Sclerosis (terminated)
AOU Universitŕ degli Studi della Campania "Luigi Vanvitelli"- Cappella Cangiani
Divisione di Reumatologia
ITALY
CAMPANIA
NAPOLI
DESSCIPHER: Development and prevention of pulmonary hypertension in systemic sclerosis (terminated)
AOU Universitŕ degli Studi della Campania "Luigi Vanvitelli"- Cappella Cangiani
Divisione di Reumatologia
ITALY
CAMPANIA
NAPOLI
Prevention and Treatment of Digital Ulcers in Systemic Sclerosis - IT (terminated)
AOU Universitŕ degli Studi della Campania "Luigi Vanvitelli"- Cappella Cangiani
Divisione di Reumatologia
ITALY
TOSCANA
FIRENZE
DESSCIPHER: Development and Prevention of Severe Heart Disease in Systemic Sclerosis (terminated)
AOU Careggi
S.O.D. di Reumatologia
ITALY
TOSCANA
FIRENZE
DESSCIPHER: Development and prevention of pulmonary hypertension in systemic sclerosis (terminated)
AOU Careggi
S.O.D. di Reumatologia
ITALY
TOSCANA
FIRENZE
Prevention and Treatment of Digital Ulcers in Systemic Sclerosis - IT (terminated)
AOU Careggi
S.O.D. di Reumatologia
JAPAN
JAPAN
KUMAMOTO
The investigation on the efficacy of new low molecular compound for systemic sclerosis
Faculty of Life Sciences, Kumamoto University
Department of Dermatology and Plastic Surgery
SPAIN
Andalucía
GRANADA
Urinary biomarkers for the non-invasive diagnosis of kidney disease in systemic autoimmune diseases
GENYO - Genómica e Investigación Oncológica
Grupo de Genética de enfermedades complejas
SWITZERLAND
Suisse Alémanique
ZÜRICH
Rescue from fatal multiorgan fibrosis in systemic sclerosis- novel insights: targeting specific stromal and myeloid cell populations
UniversitätsSpital Zürich
Klinik für Rheumatologie
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Contribution of adipocytes and adipose secreted factors to fibrosis in systemic sclerosis
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Systemic sclerosis (ssc) vasculopathy: improved clinical monitoring and treatment
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Systemic sclerosis-associated interstitial lung disease response index
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Project 1 biomarkers of disease activity and progression in systemic sclerosis
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Project 1: systemic sclerosis skin biomarkers & therapeutics
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Project 3: targeting pro-fibrotic e3 ligases in systemic sclerosis
Institution: Information not provided - US
AUSTRIA
WIEN
WIEN
iDysChart: Charting key molecules and mechanisms of human immune Dysregulation
AKH BT 25.3
Ludwig Boltzmann Institute for Rare and Undiagnosed Diseases
CANADA
Ontario
TORONTO
Protein transport into and across cellular membranes
Sunnybrook Health Sciences Centre
Sunnybrook Research Institute
SPAIN
Andalucía
CÓRDOBA
Identification of molecular heterogeneity associated with cardiovascular disease, clinical course and therapeutic response in systemic autoimmune diseases
IMIBIC - Instituto Maimónides de Investigación Biomédica de Córdoba
GC05 - Grupo de investigación en enfermedades autoinmunes inflamatorias sistémicas y crónicas del aparato locomotor
SPAIN
Madrid
MADRID
Predictors of morbidity and mortality in a cohort of inception of patients with sclerodermia
Hospital Universitario 12 de Octubre
Servicio de Reumatología
SWEDEN
Region Uppsala
UPPSALA
Genetic dissection of animal model for scleroderma
Uppsala University
Department of Medical Biochemistry and Microbiology
SWEDEN
Region Västra Götaland
GÖTEBORG
Genes in autoimmune disorders: Hashimoto struma and scleroderma
Göteborg University
Department of Rheumatology and Inflammation Research
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Mechanistic and therapeutic investigations of scleroderma
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Project 2: scleroderma-associated pulmonary arterial hypertension: the role of the oxidant state
Institution: Information not provided - US
KOREA, REPUBLIC OF
KOREA, REPUBLIC OF
KOREA
Factors associated with chronic and severe status of rare disease and health-related quality of life among rare disease patients
Korea National Institute of Health
KOREA, REPUBLIC OF
KOREA, REPUBLIC OF
KOREA
Integrative study of epigenetic variations in rare diseases
Korea National Institute of Health
KOREA, REPUBLIC OF
KOREA, REPUBLIC OF
SEOUL
Establishment and operation of the clinical research network for rare glomerular diseases
Yonsei University College of Medicine
SPAIN
Galicia
SANTIAGO DE COMPOSTELA
Strategic action in Galicia 2.0 for hereditary kidney disease: genetic diagnosis and establishment of a galician register of patients, a cost/efficient prevention measure
Hospital Clínico Universitario de Santiago
Fundación Pública Galega de Medicina Xenómica
IRELAND
County Dublin
DUBLIN
Establishment of a scalable semantic data architecture for study of chronic disease
Trinity College Dublin
ADAPT Centre
IRELAND
County Dublin
DUBLIN
Ensemble averaging for complex disease prediction in the large p small n domain from multiple data sources
Trinity College Dublin
School of Computer Science and Statistcs - O'Reilly Institute
Multicentric Research projects
- CHU Paris-GH St-Louis Lariboisičre F.Widal - Hôpital Saint-Louis
- MATHEC - Maladies Auto-Immunes et Thérapie Cellulaire
- Kerckhoff-Klinik GmbH
- Abteilung für Rheumatologie und klinische Immunologie
- CHU Paris-GH St-Louis Lariboisičre F.Widal - Hôpital Saint-Louis
- Unité de Médecine interne, Maladies Auto-immunes et Pathologie Vasculaire
- Institut für Immunologie
- Institut für Immunologie der Universitätsmedizin Rostock
- AOU Careggi
- S.O.D. di Reumatologia
- IRCCS Istituto G. Gaslini - Ospedale Pediatrico
- U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie
- UMC Utrecht - Universitair Medisch Centrum Utrecht
- Polikliniek Immunologie
- Cliniques universitaires Saint-Luc - UCLouvain
- Laboratory of Nephrology
- Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik
- Klinik für Kinderheilkunde I - Sektion Pädiatrische Nephrologie
FRANCE
ILE-DE-FRANCE
PARIS
NISSC-2 : Post AHSCT (Autologous Hematopoietic Stem Cell Transplantation) management for patients with systemic sclerosis: a prospective, non-interventional approach across Europe
GERMANY
Hessen
BAD NAUHEIM
DESSCIPHER: To decipher the optimal management of systemic sclerosis
FRANCE
ILE-DE-FRANCE
PARIS
French research group on scleroderma
GERMANY
Mecklenburg-Vorpommern
ROSTOCK
AUTOROME: from immune responses in rare autoimmune diseases to novel therapeutic intervention strategies-a personalized medicine approach (FINISHED)
ITALY
TOSCANA
FIRENZE
EUSTAR: EULAR scleroderma trials and research group
ITALY
LIGURIA
GENOVA
PRINTO: Paediatric Rheumatology International Trials Organisation (Research)
NETHERLANDS
Utrecht
UTRECHT
SHARE: Single Hub and Access point for paediatric Rheumatology in Europe
BELGIUM
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUNEFRON: the European network for the study of orphan nephropathies
GERMANY
Baden-Württemberg
HEIDELBERG