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Funded by an IRDiRC member = 
Research projects
FRANCE
AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR
NIRBTEST: New strategies to detect cancers in carriers of mutations in RB1: blood tests based on tumor-educated platelets, or extracellular vesicles - FR
Institution: Information not provided - FR
FRANCE
ILE-DE-FRANCE
ORSAY
Stem cells and transdifferentiation of the retina: the retinoblastoma as a model study
Institut Curie
Mécanismes moléculaires et oncogenèse
GERMANY
Baden-Württemberg
HEIDELBERG
Li-Fraumeni syndrome-cancer predisposition syndrome registry
Deutsches Krebsforschungszentrum
KITZ - Hopp-Kindertumorzentrum Heidelberg
GERMANY
Niedersachsen
HANNOVER
Li-Fraumeni syndrome-cancer predisposition syndrome registry
Medizinische Hochschule Hannover
Klinik für Pädiatrische Hämatologie und Onkologie
GERMANY
Nordrhein-Westfalen
ESSEN
Retinoblastoma-Registry: A clinical registry for prospective data on retinoblastoma epidemiology and clinical course
Universitätsklinikum Essen
Klinik für Kinderheilkunde III - Abteilung für pädiatrische Hämatologie und Onkologie
UNITED KINGDOM
Cambridgeshire
CAMBRIDGE
NIHR BioResource - Rare Disease: MPMT - Multiple primary malignant tumours
Addenbrooke's Hospital
Academic Department of Medical Genetics
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Developing alternative approaches to reduce retinal toxicity and prevent vision loss in the treatment of intraocular retinoblastoma
Institution: Information not provided - US
FRANCE
ILE-DE-FRANCE
PARIS
STaHR : Stimulation of Targeted Homologous Recombination for Gene Therapy - FR
Muséum National d'Histoire Naturelle
Laboratoire Structure et Instabilité des Génomes - INSERM U1154 - CNRS 7196
FRANCE
PAYS DE LA LOIRE
NANTES
FROGH : FRench Regional Origins in Genetics for Health - FR
Institut de Recherche en Santé - Université de Nantes
L'Institut du thorax - Inserm UMR 1087 / CNRS UMR 6291
ITALY
CAMPANIA
NAPOLI
Telethon Undiagnosed Disease Program - Revised Proposal
TIGEM - Telethon Institute of Genetics and Medicine
Genomic Medicine - Telethon Institute of Genetics and Medicine
JAPAN
JAPAN
ADDRESS : NOT PROVIDED - JP
Management ofthe clinical diagnostic centre for rare intractable diseases with genome instability and development ofpotential therapeutic medicine
Institution: Information not provided - JP
JAPAN
JAPAN
ADDRESS : NOT PROVIDED - JP
Establishment of the Next-generation Muti-omics Clinical Diagnostic Centre
Institution: Information not provided - JP
JAPAN
JAPAN
TOKYO
Formation of integrated omics analysis base of refractory diseases in children and perinatal period
National Center for Child Health and Development
Research Institute
SPAIN
Madrid
MADRID
Massive sequencing contributes to decipher the genetic bases of families with rare tumors
Centro Nacional de Investigaciones Oncológicas (CNIO)
Grupo de Genética Humana
SPAIN
Madrid
MADRID
An integrated analysis system to increase the rate of diagnosis of rare diseases using massive sequencing
Fundación Jiménez Díaz
Área de Genética y Genómica
FRANCE
ILE-DE-FRANCE
ORSAY
DCD-CANC-CHILD: design of drug carrier and delivery control for cancer therapy of children
Université Paris-Sud
Institut de Chimie Moléculaire et des Matériaux d'Orsay
GERMANY
Baden-Württemberg
HEIDELBERG
ERA-NET TRANSCAN: TORPEDO - Targeting Of Resistance in PEDiatric Oncology (coordination)
Deutsches Krebsforschungszentrum
KITZ - Hopp-Kindertumorzentrum Heidelberg
ITALY
LOMBARDIA
MILANO
RARECARE: surveillance of rare cancers in Europe (coordination)
Fondazione IRCCS Istituto Nazionale dei Tumori
S.S. di Epidemiologia Valutativa
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Evaluating utility and improving implementation of genomic sequencing for pediatric cancer patients in the diverse population and healthcare settings of texas: the kidscanseq study
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Personalized whole body staging for children with cancer: a solution to the conundrum of long-term side effects from ct and pet/ct scans
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Characterizing pediatric genomes through an optimized sequencing approach
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Genome sequencing in support of the gabriella miller kids first pediatric research program
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Project 1: optimization of therapeutic approaches for children with relapsed sarcomas using precision medicine.
Institution: Information not provided - US
Multicentric Research projects
- Institution: Information not provided - NL
- EEIG - EUROPEAN VISION INSTITUTE
- EUROPEAN VISION INSTITUTE
- University of British Columbia
- Maternal Infant Child and Youth Research Network
- Institut Curie
- Macromolécules et Microsystèmes en Biologie et en Medecine
- Muséum National d'Histoire Naturelle
- Laboratoire Structure et Instabilité des Génomes - INSERM U1154 - CNRS 7196
- Institut de Recherche en Santé - Université de Nantes
- L'Institut du thorax - Inserm UMR 1087 / CNRS UMR 6291
- IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO
- Servizio Clinico di Consulenza Genetica
- St. Anna Kinderkrebsforschung
- Children's Cancer Research Institute
- Universitätsklinik für Kinder- und Jugendmedizin Tübingen
- Abteilung für allgemeine Pädiatrie, Hämatologie/Onkologie
- Institution: Information not provided - DE
- Otto-Heubner-Centrum für Kinder- und Jugendmedizin
- Klinik für Pädiatrie mit Schwerpunkt Onkologie und Hämatologie
- Klinikum Dortmund gGmbH - Klinikzentrum Mitte
- Klinik für Kinder- und Jugendmedizin
- Institution: Information not provided - IT
- Fondazione IRCCS Istituto Nazionale dei Tumori
- S.S. di Epidemiologia Valutativa
- Fondazione IRCCS Istituto Nazionale dei Tumori
- S.S. di Epidemiologia Valutativa
- University Hospital of Wales
- Department of Haematology
- Northern Institute for Cancer Research, Medical School, Newcastle University
- Northern Institute for Cancer Research
NETHERLANDS
Utrecht
ADDRESS: NOT PROVIDED - NL
NIRBTEST: New strategies to detect cancers in carriers of mutations in RB1: blood tests based on tumor-educated platelets, or extracellular vesicles
BELGIUM
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUXELLES
EuroVisionNet: Slechtziendheid en Degeneratie: Een draaiboek voor onderzoek naar gezichtsvermogen in Europe (AFGEROND)
CANADA
Colombie-Britannique
VANCOUVER
Maternal Infant Child and Youth Research Network (MICYRN)
FRANCE
ILE-DE-FRANCE
ORSAY
CAMINEMS: Integrated Micro-Nano-Opto Fluidic systems for high-content diagnosis and studies of rare cancer cells
FRANCE
ILE-DE-FRANCE
PARIS
STaHR : Stimulation of Targeted Homologous Recombination for Gene Therapy
FRANCE
PAYS DE LA LOIRE
NANTES
FROGH : FRench Regional Origins in Genetics for Health
ITALY
LAZIO
ROMA
UnRareNet: a muticenter collaborative research network for the identification and study of rare undiagnosed patients (completed)
AUSTRIA
WIEN
WIEN
DIRECT: disseminate research funded by EC improving treatment options for children suffering from cancer
GERMANY
Baden-Württemberg
TÜBINGEN
Information network for rare tumors in children and adolescents
GERMANY
Berlin
ADDRESS: NOT PROVIDED - DE
TORPEDO: Targeting Of Resistance in PEDiatric Oncology
GERMANY
Berlin
BERLIN
Competence Network Paediatric Oncology and Haematology (Research)
GERMANY
Nordrhein-Westfalen
DORTMUND
Information network for rare tumors in children and adolescents
ITALY
EMILIA ROMAGNA
ADDRESS: NOT PROVIDED - IT
TRANSCAN-2: Aligning national/regional translational cancer research programmes and activities
ITALY
LOMBARDIA
MILANO
RARECARE: surveillance of rare cancers in Europe
ITALY
LOMBARDIA
MILANO
RARECARENet: Network informativo sui tumori rari
UNITED KINGDOM
South Glamorgan
CARDIFF
South East Wales Cancer Network
UNITED KINGDOM
Tyne & Wear
NEWCASTLE UPON TYNE