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Terminated research projects = 
Funded by an IRDiRC member = 
Study involving ERN members in at least two Member States = 
Research projects
CANADA
Ontario
TORONTO
Molecular Determinants of Li-Fraumeni Syndrome Associated Cancers
Hospital for Sick Children, Research Institute
GERMANY
Bayern
WÜRZBURG
Evaluation of the molecular pathogenesis of adrenocortical tumors by functional genomics
Zentrum Innere Medizin (ZIM)
Medizinische Klinik und Poliklinik I - Endokrinologie und Diabetologie
GERMANY
Bayern
WÜRZBURG
At the interface between endoplasmic reticulum and mitochondria: inhibition of SOAT1 as new treatment strategy against adrenocortical carcinoma
Zentrum Innere Medizin (ZIM)
Medizinische Klinik und Poliklinik I - Endokrinologie und Diabetologie
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Diagnosis; pathophysiology and molecular biology of pheochromocytoma
Institution: Information not provided - US
GERMANY
Bayern
MÜNCHEN
Pathophysiology of hypercortisolism-associated myopathy
Medizinische Klinik und Poliklinik IV - Standort Ziemssenstraße
Medizinische Klinik und Poliklinik IV
AUSTRIA
WIEN
ADDRESS: NOT PROVIDED - AT
A Quality Improvement Project to Implement Psychosocial Care Standards in Clinical Practice in Pediatric Oncology "My Logbook! - I Know my Way Around!" Development and Evaluation of a Consensus and Evidence Based Psychosocial Therapy Tool in a Preliminary Psychosocial Study on Therapy Optimization - AT
Institution: Information not provided - AT
AUSTRIA
WIEN
ADDRESS: NOT PROVIDED - AT
Prospective, multi-country, observational registry to collect clinical information in patients with Cushing's syndrome (CS) exposed to ketoconazole - AT
Institution: Information not provided - AT
AUSTRIA
WIEN
WIEN
PanCareSurPass: PanCare studies of the scale-up and implementation of the digital Survivorship Passport to improve people-centred care for childhood cancer survivors - AT
Gesundheit Österreich GmbH
AUSTRIA
WIEN
WIEN
Christian Doppler Laboratory for Next Generation CAR-T Cells
St. Anna Kinderkrebsforschung
Children's Cancer Research Institute
AUSTRIA
WIEN
WIEN
Instand-NGS4P: Integrated and standardized NGS workflows for Personalised therapy - AT
St. Anna Kinderkrebsforschung
BELGIUM
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Follow-up of Fertility in Young Adults Who Did or Did Not Store Testicular Tissue Before Gonadotoxic Treatment for Fertility Preservation
Universitair Ziekenhuis Brussel
Universitair Ziekenhuis Brussel (UZ Brussel)
CANADA
Ontario
TORONTO
Beyond the Genome: Transcriptome Based Diagnostics for Rare Diseases and Cancer
Hospital for Sick Children, Research Institute
GERMANY
Baden-Württemberg
FREIBURG
MTB-FR: Register study of the Molecular Tumor Board (tumor entity-spanning molecular characterization program to evaluate individualized tumor biology-guided therapy in adults with rare and advanced tumor entities
Universitätsklinikum Freiburg
Klinik für Innere Medizin I - Hämatologie, Onkologie und Stammzelltransplantation
GERMANY
Baden-Württemberg
HEIDELBERG
ERA-NET TRANSCAN: BRCAddict - BRCAness as a therapeutic target for solid high-risk childhood tumors
Deutsches Krebsforschungszentrum
KITZ - Hopp-Kindertumorzentrum Heidelberg
GERMANY
Bayern
AUGSBURG
CancerEvo: Investigation of evolution in sporadic and tumor disposition syndrome-associated tumors
Universitätsklinikum Augsburg
II. Medizinische Klinik
ITALY
VENETO
PADOVA
Modulating BMP axis to prevent muscle loss, dismantling of NMJ and denervation in cancer cachexia
Venetian Institute of Molecular Medicine
Fondazione per la ricerca Biomedica avanzata ONLUS
NETHERLANDS
Zuid-Holland
LEIDEN
The Etiology and Extent of Impaired Quality of Life, Fatigue and Cognitive, Affective and Emotional Dysfunction in Patients With Cushing's Syndrome - Prospective Studies - NL
LUMC - Leids Universitair Medisch Centrum
Afdeling Endocrinologie
SPAIN
Cataluña
BARCELONA
The Etiology and Extent of Impaired Quality of Life, Fatigue and Cognitive, Affective and Emotional Dysfunction in Patients With Cushing's Syndrome - Prospective Studies -ES
Hospital de la Santa Creu i Sant Pau
Servicio de Endocrinología y Nutrición
SPAIN
Cataluña
BARCELONA
Persistent musculoskeletal morbidity and role of fibroadipogenic progenitors (FAPs) in treated acromegaly and Cushing's syndrome: mechanisms involved
IIB Sant Pau - Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau
Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau
SWEDEN
Region Västra Götaland
GÖTEBORG
The Etiology and Extent of Impaired Quality of Life, Fatigue and Cognitive, Affective and Emotional Dysfunction in Patients With Cushing's Syndrome - Prospective Studies - SE
Sahlgrenska Universitetssjuhuset
Sahlgrenska University Hospital
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Evaluating utility and improving implementation of genomic sequencing for pediatric cancer patients in the diverse population and healthcare settings of Texas: the kidscanseq study
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Personalized whole body staging for children with cancer: a solution to the conundrum of long-term side effects from ct and pet/ct scans
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
The physiology of hypercortisolism
Institution: Information not provided - US
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Project 1: optimization of therapeutic approaches for children with relapsed sarcomas using precision medicine.
Institution: Information not provided - US
SPAIN
Andalucía
SEVILLA
Mechanistic models using Machine Learning for therapeutic targets discovery and drug repurposing in Rare Diseases
Fundación Progreso y Salud
Área de bioinformática clínica
Multicentric Research projects
- Universitätsspital Zürich
- Klinik für Endokrinologie, Diabetologie und Klinische Ernährung
- AP-HP.Centre - Université de Paris - Hôpital Cochin
- Service d'endocrinologie et maladies métaboliques
- St. Anna Kinderkrebsforschung
- Children's Cancer Research Institute
- Institution: Information not provided - DE
- Institution: Information not provided - IT
- Fondazione IRCCS Istituto Nazionale dei Tumori
- S.S. di Epidemiologia Valutativa
- Sahlgrenska Universitetssjuhuset
- Sahlgrenska University Hospital
- Northern Institute for Cancer Research, Medical School, Newcastle University
- Northern Institute for Cancer Research
- Institut Curie
- Macromolécules et Microsystèmes en Biologie et en Medecine
SWITZERLAND
Suisse Alémanique
ZÜRICH
ENS@T-CANCER: European Network for the Study of Adrenal Tumours - Structuring clinical research on adrenal cancers in adults -terminated-
FRANCE
ILE-DE-FRANCE
PARIS
GOSAMPAC: Genomics of cAMP signaling alterations in adrenal Cushing
AUSTRIA
WIEN
WIEN
ExPO-r-Net: European Expert Paediatric Oncology Reference Network for Diagnostics and Treatment
GERMANY
Berlin
ADDRESS: NOT PROVIDED - DE
TORPEDO: Targeting Of Resistance in PEDiatric Oncology
ITALY
EMILIA ROMAGNA
ADDRESS: NOT PROVIDED - IT
TRANSCAN-2: Aligning national/regional translational cancer research programmes and activities
ITALY
LOMBARDIA
MILANO
RARECARE: surveillance of rare cancers in Europe
SWEDEN
Region Västra Götaland
GÖTEBORG
The Etiology and Extent of Impaired Quality of Life, Fatigue and Cognitive, Affective and Emotional Dysfunction in Patients With Cushing's Syndrome - Prospective Studies
UNITED KINGDOM
Tyne & Wear
NEWCASTLE UPON TYNE
EPOC: European paediatric oncology off-patent medicines consortium
FRANCE
ILE-DE-FRANCE
ORSAY