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Terminated research projects = Funded by an IRDiRC member = Member of a ERN =

Research projects

AUSTRIA

WIEN
WIEN

Funded by an IRDiRC memberHELICAL: HEalth data LInkage for ClinicAL benefit - AT
Medizinische Universität Wien
Klinisches Institut für Pathologie

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AUSTRIA

WIEN
WIEN

Funded by an IRDiRC memberHELICAL: HEalth data LInkage for ClinicAL benefit - AT
TissueGnostics GmbH - Headquarter
TissueGnostics GmbH

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FRANCE

BRETAGNE
BREST

Occupational and Environmental Origins of ANCA Vasculitis: Contribution of Data From the National Network for Vigilance and Prevention of Occupational Pathologies (RNV3P)
CHRU de Brest - Hôpital Morvan
Service de Dermatologie et Vénérologie

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GERMANY

Baden-Württemberg
FREIBURG

TSP-Comp: Newly identified complement regulatory function of physiological proteins: Elucidating the mechanisms, physiological significance and potential for therapeutic applications
Zentrum für Kinder- und Jugendmedizin Freiburg
Sektion Kindernephrologie der Klinik für Allgemeine Kinder- und Jugendmedizin

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UNITED KINGDOM

Glasgow
GLASGOW

Funded by an IRDiRC memberHarnessing the power of integrated data to investigate environmental exposures on ANCA vasculitis risk, an unbiased approach -GB
Institute of Infection, Immunity and Inflammation, University of Glasgow
Institute of Infection, Immunity and Inflammation

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UNITED STATES

Washington
ADDRESS: NOT PROVIDED - US

Funded by an IRDiRC memberFiber design and assessment for development of a novel biomimetic medical device
Institution: Information not provided - US

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CANADA

Colombie-Britannique
VANCOUVER

Funded by an IRDiRC memberChronic childhood vasculitis: Characterizing the individual rare diseases to improve patient outcomes
British Columbia Children's Hospital
Division of pediatric rheumatology

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CANADA

Colombie-Britannique
VANCOUVER

Immunological mechanisms in systemic vasculitis
Centre for Health Evaluation and Outcome Sciences (CHEOS)
Department of Nephrology

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FRANCE

ILE-DE-FRANCE
PARIS

Funded by an IRDiRC memberFAIRVASC: FAIRVASC - building registry interoperability to inform clinical care - FR
AP-HP.Centre - Université de Paris - Hôpital Cochin
Unité fonctionnelle de Médecine interne et centre de référence maladies rares

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FRANCE

ILE-DE-FRANCE
PARIS

EGR2: Pregnancy and Medically Assisted Conception in Rare Diseases
AP-HP.Centre - Université de Paris - Hôpital Cochin
Unité fonctionnelle de Médecine interne et centre de référence maladies rares

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GERMANY

Schleswig-Holstein
LÜBECK

Funded by an IRDiRC memberFAIRVASC: FAIRVASC - building registry interoperability to inform clinical care -DE
Universitätsklinikum Schleswig-Holstein - Campus Lübeck
Klinik für Rheumatologie und Klinische Immunologie

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KOREA, REPUBLIC OF

KOREA, REPUBLIC OF
KOREA

Funded by an IRDiRC memberFactors associated with chronic and severe status of rare disease and health-related quality of life among rare disease patients
Korea National Institute of Health

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KOREA, REPUBLIC OF

KOREA, REPUBLIC OF
SEOUL

Funded by an IRDiRC memberEstablishment and management of clinical research network for systemic vasculitis
Hanyang University

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SPAIN

Madrid
MADRID

Funded by an IRDiRC memberIdentification of clinical subgroups of patients with chronic interstitial lung disease of autoimmune origin from NEREA registry through distinct molecular patterns
Fundación Jiménez Díaz
Instituto de Investigación Sanitaria de la Fundación Jiménez Díaz

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SWEDEN

Region Skĺne
LUND

Bacterial virulence factors, innate immunity and prothrombotic mechanisms in renal disease
Lunds Universitet
Department of Clinical Sciences (IKVL)

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SWEDEN

Region Skĺne
LUND

Funded by an IRDiRC memberFAIRVASC: FAIRVASC - building registry interoperability to inform clinical care - SE
Lunds Universitet
Department of Clinical Sciences (IKVL)

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KOREA, REPUBLIC OF

KOREA, REPUBLIC OF
KOREA

Funded by an IRDiRC memberIntegrative study of epigenetic variations in rare diseases
Korea National Institute of Health

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KOREA, REPUBLIC OF

KOREA, REPUBLIC OF
SEOUL

Funded by an IRDiRC memberEstablishment and operation of the clinical research network for rare glomerular diseases
Yonsei University College of Medicine

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IRELAND

County Dublin
DUBLIN

Funded by an IRDiRC memberEstablishment of a scalable semantic data architecture for study of chronic disease
Trinity College Dublin
ADAPT Centre

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IRELAND

County Dublin
DUBLIN

Funded by an IRDiRC memberEnsemble averaging for complex disease prediction in the large p small n domain from multiple data sources
Trinity College Dublin
School of Computer Science and Statistcs - O'Reilly Institute

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FRANCE

ILE-DE-FRANCE
PARIS

Funded by an IRDiRC memberRARE-ILD: Raising diagnostic accuracy and therapeutic perspectives in Interstitial lung diseaases - FR
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard
Service de pneumologie A

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GERMANY

Hessen
GIEßEN

Funded by an IRDiRC memberRARE-ILD: Raising diagnostic accuracy and therapeutic perspectives in Interstitial lung diseaases -DE
Med. Klinik und Poliklinik II des UKGM am Standort Gießen
Schwerpunkt Pneumologie und Intensivmedizin - Fibrosierende Lungenerkrankungen

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SPAIN

Madrid
MADRID

Funded by an IRDiRC memberUnravel the contribution of microbiota, metabolism and innate immunity to the onset and progression of Interstitial Lung Diseases (ILD)
ISCIII - Instituto de Salud Carlos III
Instituto de Salud Carlos III

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Multicentric Research projects