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Progetti di ricerca
GERMANIA
Berlin
ADDRESS: NOT PROVIDED - DE
Roles of hypoxia and innate immunity in juvenile and adult dermatomyositis
Institution: Information not provided - DE
PAESI BASSI
Utrecht
UTRECHT
GMA - Group medical appointments for neuromuscular patients: To compare group medical appointments (shared medical appointments or group visits) with conventional one to one appointments for patients with a chronic neuromuscular disease in terms of health outcome (quality of life) and costs, an intervention study.
Piet van Dommelenhuis
CBO - Kwaliteitsinstituut voor de gezondheidszorg
PAESI BASSI
Zuid-Holland
LEIDEN
GMA - Group medical appointments for neuromuscular patients: To compare group medical appointments (shared medical appointments or group visits) with conventional one to one appointments for patients with a chronic neuromuscular disease in terms of health outcome (quality of life) and costs, an intervention study.
LUMC - Leids Universitair Medisch Centrum
Afdeling Public Health en Eerstelijnsgeneeskunde
REGNO UNITO; GRAN BRETAGNA
Cambridgeshire
CAMBRIDGE
Pathogenic mechanisms and effects of treatment in chronic, idiopathic inflammatory myopathies, myositis
University of Cambridge
Department of Medicine
SPAGNA
Madrid
ADDRESS: NOT PROVIDED - ES
The pathogenesis of dermatomyositis associated to anti-MDA5 autoantibodies
Institution: Information not provided - ES
STATI UNITI
Washington
ADDRESS: NOT PROVIDED - US
Connective tissue diseases/inflammatory myopathies--polymyositis/dermatomyositis
Institution: Information not provided - US
STATI UNITI
Washington
ADDRESS: NOT PROVIDED - US
Immunopathogen autoimmune inflammatory myopathies--polymyositis/dermatomyositis
Institution: Information not provided - US
FRANCIA
BOURGOGNE-FRANCHE-COMTE
DIJON
Impact of autoimmune disease on quality of life: a qualitative study
CHU Dijon Bourgogne - Hôpital François Mitterrand
Service de Médecine Interne et Maladies Systémiques
ITALIA
EMILIA ROMAGNA
ADDRESS: NOT PROVIDED - IT
Role of PTX3 in the pathogenesis of idiopathic inflammatory myopathies
Institution: Information not provided - IT
REGNO UNITO; GRAN BRETAGNA
Greater Manchester
MANCHESTER
A Case-control Study to Assess Risk of Coronary Heart Disease in Idiopathic Inflammatory Myopathy
NIHR/Wellcome Trust Manchester Clinical Research Facility
Wellcome Trust Clinical Research facility
REGNO UNITO; GRAN BRETAGNA
Greater Manchester
MANCHESTER
MICA: A UK-wide networking partnership to facilitate collaborative research in the idiopathic inflammatory myopathies
The University of Manchester
School of Biological Sciences
REGNO UNITO; GRAN BRETAGNA
Greater Manchester
SALFORD
A Case-control Study to Assess Risk of Coronary Heart Disease in Idiopathic Inflammatory Myopathy
Salford Royal NHS Foundation Trust
University of Manchester Rheumatic Diseases Centre
REGNO UNITO; GRAN BRETAGNA
Greater Manchester
SALFORD
What makes muscles become inflamed in myositis, and how can we best treat this inflammation?
Salford Royal NHS Foundation Trust
University of Manchester Rheumatic Diseases Centre
SPAGNA
Cataluña
BARCELONA
Influence of immunological and non-immunological factors in the pathogenesis of inflammatory myopathies
IIB Sant Pau - Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau
Grupo de investigación en enfermedades neuromusculares
SPAGNA
Cataluña
BARCELONA
Identification of new antigens in patients with inflammatory myopathy
Vall d'Hebron Institut de Recerca VHIR
Grupo de investigación en enfermedades autoinmunes sistémicas
STATI UNITI
Washington
ADDRESS: NOT PROVIDED - US
Phenotypic assay design and development for rare and neglected diseases
Institution: Information not provided - US
STATI UNITI
Washington
ADDRESS: NOT PROVIDED - US
Innate immune activation in autoimmune myopathy
Institution: Information not provided - US
CANADA
Ontario
TORONTO
Protein transport into and across cellular membranes
Sunnybrook Health Sciences Centre
Sunnybrook Research Institute
FRANCIA
ILE-DE-FRANCE
CRÉTEIL
Muscle stem cell quiescence and heterogeneity
Faculté de Médecine de Créteil
Département Biologie du système neuromusculaire
FRANCIA
AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR
Impact of pre-phonation inspiratory volume on speech quality of neuromuscular patients requiring non invasive ventilation
Institution: Information not provided - FR
FRANCIA
AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR
Impact of the type of interface in neuromuscular patients treated with nocturnal Noninvasive Ventilation: a randomized crossover trial
Institution: Information not provided - FR
FRANCIA
AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR
Impact of blowpipe training on cough efficiency in neuromuscular patients : a prospective evaluation.
Institution: Information not provided - FR
FRANCIA
BOURGOGNE-FRANCHE-COMTE
STRASBOURG
Clinical and psychopathological approach of neuromuscular disease on gender identity
Université de Strasbourg
Subjectivité, lien social et modernité (EA3071)
FRANCIA
ILE-DE-FRANCE
EVRY
NMD-CHIP: design, production and technical validation of candidate genes targeted chips (WP3)
Généthon
Centre de Recherche Généthon
FRANCIA
ILE-DE-FRANCE
PARIS
Childbirth and parenthood in women with motor disability related to rare diseases
Fondation hospitalière Sainte-Marie
Service d'Aide à la Parentalité des Personnes en Situation de Handicap
FRANCIA
ILE-DE-FRANCE
PARIS
HUMAn Neuromuscular Integrative System for drug discovery
Université Paris Descartes - Paris 5
Centre de Neurophysique, Physiologie et Pathologie - CNRS UMR 8119
REGNO UNITO; GRAN BRETAGNA
Greater London
LONDON
Explaining and changing adverse illness perceptions in muscle disease by a cognitive behavioural therapy technique
Guy's Hospital
Health Psychology Section, Psychology Department, Institute of Psychiatry
REGNO UNITO; GRAN BRETAGNA
Tyne & Wear
NEWCASTLE UPON TYNE
Newcastle University Single Cell Functional Genomics Unit (NUSCU)
Newcastle University
Institute of Genetic Medicine
REGNO UNITO; GRAN BRETAGNA
Tyne & Wear
NEWCASTLE UPON TYNE
TREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (coordination)
Newcastle upon Tyne Hospitals NHS Trust
Institute of Genetic Medicine
REGNO UNITO; GRAN BRETAGNA
Tyne & Wear
NEWCASTLE UPON TYNE
NMD-CHIP: societal aspects of the development of targeted DNA-chips for high throughput diagnosis of neuromuscular disorders (WP7)
PEALS Research Centre, Newcastle University, 4th Floor
Policy, Ethics and Life Sciences (PEALS) Research Centre
REGNO UNITO; GRAN BRETAGNA
Lothian
EDINBURGH
Genetic disorders of human brain development
Western General Hospital
MRC Human Genetics Unit
Progetti di ricerca multicentrici
- CHU Paris Est - Hôpital Tenon
- Service de dermatologie, médecine vasculaire et allergologie
- GOSH NHS Foundatin Trust
- Rheumatology Unit
- GOSH NHS Foundatin Trust
- Rheumatology Unit
- Alder Hey Children's Hospital
- Department of Rheumatology
- CHU Henri Mondor
- Service d'immunologie biologique
- Institut für Immunologie
- Institut für Immunologie der Universitätsmedizin Rostock
- Institution: Information not provided - FR
- Faculté de médecine de Clermont-Ferrand
- Laboratoire de Génétique, Reproduction et Développement
- CHU de Strasbourg - Hôpital de Hautepierre
- Service de Rhumatologie
- CHU de Marseille - Hôpital de la Timone
- Laboratoire de génétique moléculaire
- Charité / Max-Delbrück-Centrum für Molekulare Medizin
- Muskelforschung mit Hochschulambulanz für Muskelkrankheiten
- Newcastle upon Tyne Hospitals NHS Trust
- Institute of Genetic Medicine
- Zentrum für Neuropathologie und Prionforschung (ZNP)
- Zentrum für Neuropathologie und Prionforschung der LMU München
- Hospital Universitari de Bellvitge
- Unidad de Neuropatología
FRANCIA
ILE-DE-FRANCE
PARIS
French dermatology society: gstudy group of systemic dermatological diseases
REGNO UNITO; GRAN BRETAGNA
Greater London
LONDON
ENJD: European Network for Juvenile Dermatomyositis
REGNO UNITO; GRAN BRETAGNA
Greater London
LONDON
Juvenile Dermatomyositis Research Group (JDRG)
REGNO UNITO; GRAN BRETAGNA
Merseyside
LIVERPOOL
ENJD: European Network for Juvenile Dermatomyositis
FRANCIA
ILE-DE-FRANCE
CRÉTEIL
GEAI: study group on auto-immunity
GERMANIA
Mecklenburg-Vorpommern
ROSTOCK
AUTOROME: from immune responses in rare autoimmune diseases to novel therapeutic intervention strategies-a personalized medicine approach (FINISHED)
FRANCIA
AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR
NMD-CHIP: Development of targeted DNA-Chips for High Throughput Diagnosis of NeuroMuscular Disorders
FRANCIA
AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
MYORES: European Muscle Development Network (FINISHED)
FRANCIA
GRAND-EST
STRASBOURG
CRI: Club Rhumatismes et Inflammation
FRANCIA
PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
NMD-CHIP: development of targeted DNA-chips for high throughput diagnosis of neuromuscular disorders
GERMANIA
Berlin
BERLIN
EUROMUSCLENET: European information network on muscle diseases
REGNO UNITO; GRAN BRETAGNA
Tyne & Wear
NEWCASTLE UPON TYNE
TREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (research)
GERMANIA
Bayern
MÜNCHEN
BNE: BrainNet Europe II: European brain tissue bank
SPAGNA
Cataluña
L'HOSPITALET DE LLOBREGAT