Pays
Organisation
Par email
Par téléphone
Allemagne
ACHSE (Allianz
Chronischer Seltener Erkrankungen): www.achse-online.de
























0049 (0) 30 3300708 21/-22
Amérique Latine
GEISER (Grupo de Enlace, Investigacion y Soporte Enfermedades Raras)
(+54) (0261) 4291987
o 0800 333 3353
de Lunes a Viernes de 08:00 hs a 12:30 hs
de Lunes a Viernes de 08:00 hs a 12:30 hs
Australie
The
Association of Genetic Support of Australasia:
www.agsa-geneticsupport.org.au/
+61
2 9211 1462
Belgique
RaDiOrg is the umbrella organisation for patient organisations concerning rare diseases.
http://radiorgnl.squarespace.com/
http://radiorgfr.squarespace.com/
+32 478 727 703
Bulgarie
ICRDOD
(Information Center for Rare Diseases and Orphan
Drugs):
www.raredis.org
+359
(0)32 57
57 97
Canada
CORD (Canadian
Organization for Rare Disorders): www.raredisorders.ca
+1-877
302
7273 (anglophone)
Canada
RQMO (Regroupement
Québécois des Maladies Orphelines - Portail Info Maladies Rares Québec):
www.rqmo.org
+1-855
543 0550 (francophone)
Corée
National Institute of Health rare incurable diseases center:
http://helpline.nih.go.kr/cdchelp/index.gst
043)719-8686, 8688
Danemark
Team Sjældne Handicap: https://socialstyrelsen.dk/handicap/sjaeldne-handicap
+45 72 42 40 47
France
Maladies Rares
Info Services:
www.maladiesraresinfo.org
De
France :
01 56 53 81 36
De l'étranger :
+33 156 538 136
Irlande
Organization: National Rare Diseases Office Information Line:
www.rarediseases.ie
By phone: 1 800 24 0 365 in Ireland
+353 1 878 5065 from abroad
Italie
Istituto
Superiore di Sanità: Centro Nazionale Malattie
Rare:
www.iss.it/cnmr/
+39
800 89 69
49
Norvège
NKSD – National Advisory Unit on Rare Disorders
NKSD - Nasjonal kompetansetjeneste for sjeldne diagnoser)
www.sjeldne-diagnoser.no/
+47
800 41710
Roumanie
Centrul de
informare pentru Boli
Genetice Rare: www.apwromania.ro/index.php?act=cibgr
080
080 1111
Suède
The Swedish
Information Centre for Rare Diseases: www.socialstyrelsen.se/en/rarediseases
+46-(0)31-786
5590
Suisse
Helpline Info Maladies rares: http://www.info-maladies-rares.ch/
+41 (0)848 314 372 (lundi - jeudi: 9h-12h et 14h-16h)
Suisse
Helpline Seltene Krankheiten: http://www.kispi.uzh.ch/helpline-selten
+41 (0)44 266 35 35 (mardi 9 -11h et jeudi 14h-16h)
Taïwan
Taïwan
Foundation for Rare Disorders: www.tfrd.org.tw/english/
Formulaire de
contact:
www.tfrd.org.tw/english/contact/index.php
USA
Genetic and
Rare Diseases Information Center (GARD):
http://www.rarediseases.info.nih.gov/ GARD/Default.aspx
Formulaire de
contact:
http://www.rarediseases.info.nih.gov/GARD/ EmailForm.aspx
Lundi
-
Vendredi, 12:00 - 16:00
Eastern Time
(888) 205-2311 (Par téléphone)
(888) 205-3223 (par TTY)
(301) 251-4925 (Numéro de téléphone pour l'international)