Orphanet: PANS UK Patient Advocates for Newborn Screening Group
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PANS- UK Patient Advocates for Newborn Screening Group

Despite our efforts to ensure that data is up to date, this activity has not been validated since 05/08/2014
  • Type of network : Support groups
  • Geographic coverage : National
  • Coordinator of patient organisation network

  • Ms Patricia ROBERTS
  • Save Babies Through Screening Foundation UK
  • 22 Bransdale Avenue, Guiseley
  • LEEDS LS20 8QA
  • UNITED KINGDOM
  • More information
  • Phone  : 44 (0)1943 878 770
  • Fax  : -
  • Website
  • Contact secretary  :
Last update: August 2014

Members

UNITED KINGDOM

CHESTER

Metabolic Support UK

UNITED KINGDOM

DROXFORD

Association for Glycogen Storage Disease

UNITED KINGDOM

LEEDS

Save Babies Through Screening Foundation UK

Additional information

Further information on this network

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.