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TREAT-NMD : Neuromuscular Network Associations

  • Type of network : Support groups
  • Geographic coverage : Global
  • Website

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[en] 
  • Coordinator of patient organisation network

  • Pr Kate BUSHBY
  • TREAT-NMD
  • John Walton Muscular Dystrophy Research Centre, Institute of Genetic Medicine
  • Newcastle upon Tyne Hospitals NHS Trust
  • Queen Victoria Road
  • NEWCASTLE UPON TYNE NE1 4LP
  • UNITED KINGDOM
  • More information
  • Phone  : 44 (0)191 241 8839
  • Fax  : -
  • Contact secretary  :
Last update: May 2019

Members

AUSTRALIA

NEDLANDS

AUSTRIA

LINZ

MARATHON-Verein von Eltern und Angehörigen gegen Muskelerkrankungen bei Kindern

BELGIUM

HAACHT

Duchenne Parent Project Belgium V.Z.W.

BULGARIA

SOFIA

Bulgarian Neuromuscular Diseases Association

FRANCE

EVRY

AFM Téléthon - Association Française contre les Myopathies

GERMANY

BOCHUM

aktion benni & co e.V.

GERMANY

FREIBURG

Deutsche Gesellschaft für Muskelkranke e.V.

IRELAND

DUBLIN

IRELAND

LIFFORD, CO. DONEGAL

Duchenne Ireland

ITALY

PADOVA

Unione Italiana Lotta alla Distrofia Muscolare

NETHERLANDS

VEENENDAAL

Duchenne Parent Project

NETHERLANDS

WASSENAAR

FSHD Stichting

PORTUGAL

PORTO

APN - Associação Portuguesa de Doentes Neuromusculares

SPAIN

MADRID

Fundación Andrés Marcio, niños contra la Laminopatía

SPAIN

MADRID

Fundación Atrofia Muscular Espinal

SPAIN

VILA-REAL

Asociación Conquistando Escalones

UNITED KINGDOM

LONDON

Duchenne Family Support Group

UNITED KINGDOM

LONDON

Epicentre

UNITED KINGDOM

LONDON

Myotubular Trust

UNITED KINGDOM

NOTTINGHAM

Myotonic Dystrophy Support Group

UNITED KINGDOM

STRATFORD UPON AVON

Spinal Muscular Atrophy Support UK

Additional information

Further information on this network

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.