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FEDRA - Rare Disease Portuguese Federation

  • Type of network : Support groups
  • Geographic coverage : National
  • Website

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[pt] 
  • Coordinator of patient organisation network

  • João CORREIA
  • Federação de Doenças Raras de Portugal
  • FEDRA - Federação de doenças Raras de Portugal
  • Rotunda Nuno Rodrigues dos Santos, Nº1B-8ºB - sala azul
  • 2685-223 PORTELA
  • PORTUGAL
  • More information
  • Phone  : (+351) 212 492 522
  • Fax  : -
  • Website
Last update: June 2023

Members

Patient organisation(s)
PORTUGAL

AMORA - SEIXAL

ANPAR - Associação Nacional de Pais e Amigos RETT

PORTUGAL

LISBOA

APDPk - Associação Portuguesa de Doentes de Parkinson

PORTUGAL

LISBOA

APELA - Associação Portuguesa de Esclerose Lateral Amiotrófica

PORTUGAL

LISBOA

ASBIHP - Associação Spina Bifida e Hidrocefalia de Portugal

PORTUGAL

LOURES

APDIP - Associação Portuguesa de Doentes com Imunodeficiência Primária

PORTUGAL

PONTA DELGADA

AAADMJ - Associação Atlântica de Apoio ao Doente de Machado-Joseph

PORTUGAL

PORTO

Centro de Genética Médica Jacinto Magalhães - CHUdSA, EPE/CGMJM

Additional information

Further information on this network

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.