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FEDRA - Rare Disease Portuguese Federation

  • Type of network : Support groups
  • Geographic coverage : National
  • Website

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[pt] 
  • Coordinator of patient organisation network

  • Joo CORREIA
  • Federao de Doenas Raras de Portugal
  • FEDRA - Federao de doenas Raras de Portugal
  • Rotunda Nuno Rodrigues dos Santos, N1B-8B - sala azul
  • 2685-223 PORTELA
  • PORTUGAL
  • More information
  • Phone  : (+351) 212 492 522
  • Fax  : -
  • Website
Last update: June 2023

Members

Patient organisation(s)
PORTUGAL

AMORA - SEIXAL

ANPAR - Associao Nacional de Pais e Amigos RETT

PORTUGAL

LISBOA

APDPk - Associao Portuguesa de Doentes de Parkinson

PORTUGAL

LISBOA

APELA - Associao Portuguesa de Esclerose Lateral Amiotrfica

PORTUGAL

LISBOA

ASBIHP - Associao Spina Bifida e Hidrocefalia de Portugal

PORTUGAL

LOURES

APDIP - Associao Portuguesa de Doentes com Imunodeficincia Primria

PORTUGAL

PONTA DELGADA

AAADMJ - Associao Atlntica de Apoio ao Doente de Machado-Joseph

PORTUGAL

PORTO

Centro de Gentica Mdica Jacinto Magalhes - CHUdSA, EPE/CGMJM

Additional information

Further information on this network

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.