Orphanet: Networks
x

Search for a federation/alliance

* (*) mandatory field

Other search option(s)

HAEi - International Patient Organization for C1 inhibitor Deficiencies

Despite our efforts to ensure that data is up to date, this activity has not been validated since 28/04/2015
  • Type of network : Support groups
  • Geographic coverage : Global
  • Website
  • Coordinator of patient organisation network

  • Mr Henrik BOYSEN
  • International Patient Organization for C1 Inhibitor Deficiencies
  • HAEi
  • 33 Avenue de Montchoisi
  • 1006 LAUSANNE
  • SWITZERLAND
  • More information
  • Phone  : 45 31 591 591
  • Fax  : -
  • Website
  • Contact secretary  :
  • Coordinator of patient organisation network

  • Mr Henrik BOYSEN
  • International Patient Organization for C1 Inhibitor Deficiencies (HAEi)
  • Patientforeningen HAE Danmark
  • Sonderholmvej 158
  • 8361 HASSELAGER
  • DENMARK
  • More information
  • Phone  : 45 31 591 591
  • Fax  : -
  • Website
  • Contact secretary  :
Last update: April 2015

Members

AUSTRIA

NIEDERWALDKIRCHEN

Österreichische Selbsthilfegruppe für das Hereditäre Angioödem

BELGIUM

BRUSSELS

Angioedema A.S.B.L./ V.Z.W.

BULGARIA

PLOVDIV

Association of Hereditary Angioedema Patients

DENMARK

HASSELAGER

Patientforeningen HAE Danmark

FRANCE

ORSAY

AMSAO - Association des Malades Souffrant d'Angio-oedèmes

GERMANY

ALDENHOVEN/SIERSDORF

HAE-Vereinigung e.V.

HUNGARY

SZEKESFEHERVAR

Hungarian Association of Angioedema Patients

ISRAEL

PETAH TIKVA

EDEMA - HAE patient organization Israel

NETHERLANDS

HOUTEN

Vereniging voor Angio Oedeem

NORWAY

OSLO

HAE Scandinavia - Norge

SPAIN

TORRELODONES

Asociación Española de Angioedema Familiar por Deficiencia del Inhibidor C1

SWEDEN

ÖREBRO

Primär immunbrist organisationen

SWITZERLAND

DÄNIKEN

HAE -Vereinigung der Schweiz Hereditäres Angioodem

Additional information

Further information on this network

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.