x

Search for a federation/alliance

* (*) mandatory field

Other search option(s)

FIN: Fabry International Network

Despite our efforts to ensure that data is up to date, this activity has not been validated since 03/05/2013
  • Type of network : Support groups
  • Geographic coverage : Global
  • Website
  • Coordinator of patient organisation network

  • Ms Megan FOOKES
  • Fabry International Network
  • MPS House
  • Repton Place, White Lion Road
  • AMERSHAM HP7 9LP
  • UNITED KINGDOM
  • More information
  • Phone  : 44 (0)1494 766 633
  • Fax  : -
  • Website
  • Contact secretary  :
Last update: May 2013

Members

AUSTRIA

BREITENAICH

Gesellschaft für Mukopolysaccharidosen und ähnliche Erkrankungen

BULGARIA

SLIVEN

National Mucopolysaccharidosis Association

DENMARK

HOLMEGAARD

FINLAND

TAMPERE

Suomen Fabry-yhdistys

FRANCE

MARSANNAY LA COTE

APMF - Association de Patient de la Maladie de Fabry

FRANCE

MASSY

Vaincre les Maladies Lysosomales

GERMANY

RECKLINGHAUSEN

Morbus Fabry Selbsthilfegruppe e.V.

HUNGARY

BUDAPEST

Magyar Mukopoliszaccharidózis Társaság

NETHERLANDS

DRACHTEN

Fabry Support & Informatie Groep Nederland

POLAND

GLOSKOW

Stowarzyszenie Chorych na Mukoplisacharydoze i Choroby Rzadkie

PORTUGAL

LISBOA

APL - Associação Portuguesa das Doenças do Lisossoma

SWEDEN

BY KYRKBY

Patientföreningen for Fabrysjuka i Sverige

SWITZERLAND

ZÜRICH

Fabrysuisse

Additional information

Further information on this network

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.