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RD-Portugal - Union of Rare Diseases Associations of Portugal

  • Type of network : Support groups
  • Geographic coverage : National
  • Website
  • Coordinator of patient organisation network

  • Isabel SARAIVA
  • RD-Portugal - Unio das Associaes das Doenas Raras de Portugal
  • Praa David Leandro da Silva n25
  • 1950-064 LISBOA
  • PORTUGAL
  • More information
  • Phone  : (+351) 916 292 292
  • Fax  : -
  • Website
  • Contact secretary  :
Last update: June 2023

Members

Patient organisation(s)
PORTUGAL

ALMADA

APPDH - Associao Portuguesa de Pais e Doentes com Hemoglobinopatias

PORTUGAL

CASCAIS

PORTUGAL

CHARNECA

ASFP - Associao Sanfilippo Portugal

PORTUGAL

COIMBRA

DOCE - Associao Nacional Div. Orient. Comb. Enfrentar Tay-Sachs e Gangliosid.

PORTUGAL

ESTORIL

ANGEL - Associao Sndrome de Angelman Portugal

PORTUGAL

LISBOA

ANDLinfa - Associao Nacional de Doentes Linfticos

PORTUGAL

LISBOA

ANFQ - Associao Nacional de Fibrose Qustica

PORTUGAL

LISBOA

APDH - Associao Portuguesa dos Doentes de Huntington

PORTUGAL

LISBOA

APELA - Associao Portuguesa de Esclerose Lateral Amiotrfica

PORTUGAL

LISBOA

APL - Associao Portuguesa de Doenas do Lisossoma

PORTUGAL

LISBOA

APNF - Associao Portuguesa de Neurofibromatose

PORTUGAL

LOURES

APDIP - Associao Portuguesa de Doentes com Imunodeficincia Primria

PORTUGAL

PORTO

APH - Associao Portuguesa de Hemocromatose

PORTUGAL

VILA FRANCA DE XIRA

APAHE - Associao Portuguesa de Ataxias Hereditrias

PORTUGAL

VILA NOVA GAIA

APFQ - Associao Portuguesa de Fibrose Qustica

PORTUGAL

VORA

ANDO Portugal - Associao Nacional de Displasias sseas

Additional information

Further information on this network

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.