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GERMANY

Nordrhein-Westfalen-WÜRSELEN

Hoffnungsbaum e.V.

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ITALY

CALABRIA-ROSSANO

Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro

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NETHERLANDS

Overijssel-ZWOLLE

VKS - Volwassenen, Kinderen en Stofwisselingsziekten

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SPAIN

Andalucía-SEVILLA

ENACH Asociación

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SWITZERLAND

Suisse Romande-LAUSANNE

NBIA Suisse - Neurodegeneresence associé ŕ accumulation de fer dans le cerveau

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AUSTRALIA

Victoria-MELBOURNE

Retina Australia

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AUSTRIA

WIEN-WIEN

Usher Initiative Austria

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ERN

BELGIUM

NAMUR-NAMUR

RetinaPigmentosa asbl, association belge francophone de la rétinopathie d'origine génétique

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CANADA

Québec-GREENFIELD PARK

AQPEHV - Association québécoise des parents d'enfants handicapés visuels

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CYPRUS

Cyprus-LIMASSOL

Association of Patients with Inherited Metabolic Diseases "ASPIDA ZOIS"

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FINLAND

Finland-HELSINKI

Retinitis-yhdistys ry

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FRANCE

OCCITANIE-BESSEGES

IRRP - Association Information Recherche sur la Rétinite Pigmentaire

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FRANCE

OCCITANIE-MONTPELLIER

SOS Rétinite France - Association nationale de lutte contre la cécité, Centre recherche information sur les Dégénérescences Rétiniennes (C.E.D.R.E.)

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NORWAY

Řstlandet-OSLO

Retinitis Pigmentosa Foreningen i Norge

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PORTUGAL

SUL-LISBOA

ARP - Associaçăo de Retinopatia de Portugal

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SPAIN

Asturias-GIJÓN

Asociación Es Retina Asturias (ámbito nacional)

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SPAIN

Madrid-MADRID

ASOCIDE - Asociación de Sordociegos de Espańa

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SPAIN

Madrid-MADRID

Fundación Retina Espańa

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SWEDEN

Region Stockholm-STOCKHOLM

Svenska RP-Föreningen

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BELGIUM

ANTWERPEN-TURNHOUT

Alzheimer Liga Vlaanderen vzw

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

HAINAUT-MOUSCRON

Asbl Chiara VDS - Chiara Vie, Don d'organes et Solidarité

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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CANADA

Colombie-Britannique-VANCOUVER

Rare Disease Foundation

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CANADA

Ontario-TORONTO

AboutFace

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FINLAND

Finland-MASKU

Neuroliitto

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FRANCE

NOUVELLE AQUITAINE-BORDEAUX

EwenLife Rare Maladies Rares

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FRANCE

OUTRE-MER-SAINT-PIERRE

Association pour la Sensibilisation aux Maladies Rares, Orphelines et Auto-Immunes ŕ Saint-Pierre-et-Miquelon

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GERMANY

Niedersachsen-BRAUNSCHWEIG

LiBERO - Hilfe für das Kind mit Krankheiten des Nervensystems e.V.

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GREECE

ATTIKI-ATHENS

"95" - Rare Alliance Greece

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ITALY

TOSCANA-FIRENZE

Voa Voa! Onlus Amici di Sofia

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MALTA

MALTA-VALLETTA

The National Alliance for Rare Diseases Support - Malta

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NETHERLANDS

Utrecht-UTRECHT

Patiëntengroep Retina

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Andalucía-JAÉN

Enfermedades Raras: Mas Visibles

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUŃA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-MADRID

INDEPF: Instituto de Investigación y Desarrollo Social de Enfermedades Poco Frecuentes

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA: Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

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ERN

SWEDEN

Region Stockholm-STOCKHOLM

Demensförbundet

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SWITZERLAND

Suisse Alémanique-BERN

Alzheimer Schweiz - Alzheimer Suisse - Alzheimer Svizzera

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TURKEY

TURKEY-ISTANBUL

Türkish Alzheimer Society

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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AUSTRALIA

New South Wales-ARTARMON

Variety - the Children's Charity

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

Victoria-PARKVILLE

GSNV - Genetic Support Network of Victoria

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CYPRUS

Cyprus-NICOSIE

Pancyprian Association For Rare Genetic Diseases « Unique Smiles »

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GERMANY

Bayern-ASCHAFFENBURG

Kindernetzwerk e.V. - Selbsthilfe für Familien mit Kindern und jungen Erwachsenen mit chronischen Erkrankungen und Behinderungen

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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ERN

LATVIA

LATVIA-RIGA

Biedriba Genetiski parmantoto slimibu pacientiem un lidzcilvekiem "Saknes"

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SLOVAKIA

Presovsky kraj-BARDEJOV

ZOGO - Zdruzenie Ojedlinelych Genetickych Ochorenie

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Förderverein für Kinder mit seltenen Krankheiten

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Retina Suisse Die Vereinigung von Patientinnen und Patienten mit Retinitis pigmentosa (RP),Makuladegeneration, Usher-Syndrom und anderen Erkrankungen des Augenhintergrundes

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-EPSOM

Gene People

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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CANADA

Ontario-TORONTO

Vaincre la cécité Canada

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FINLAND

Finland-HELSINKI

Näkövammaisten liitto ry

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FRANCE

HAUTS-DE-FRANCE-MARCQ EN BAROEUL

ANPEA - Association Nationale des Parents d'Enfants Aveugles

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FRANCE

ILE-DE-FRANCE-CHEVILLY-LARUE

Association Act to see

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FRANCE

ILE-DE-FRANCE-PARIS

AVH - Association Valentin Haüy pour le bien des aveugles et des malvoyants

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FRANCE

OCCITANIE-COLOMIERS

Association Retina France

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GERMANY

Berlin-BERLIN

BEBSK - Bundesvereinigung Eltern blinder und sehbehinderter Kinder e.V.

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GERMANY

Nordrhein-Westfalen-DÜSSELDORF

BFS - Bund zur Förderung Sehbehinderter e.V.

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GREECE

ATTIKI-ATHENS

HRS - Hellenic Retina Society

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IRELAND

County Dublin-DUBLIN

Fighting Blindness

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LUXEMBOURG

LUXEMBOURG-CANACH

ADV - Association pour déficients visuels

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SPAIN

Madrid-MADRID

APASCIDE:Asociación Espańola de Familias de Personas con Sordoceguera

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