x

Search for a patient organisation

* (*) mandatory field

Other search option(s)

47 Result(s)

Sort by

Member of a ERN =

Patient organisations

FRANCE

ILE-DE-FRANCE-LE-PLESSIS-TREVISE

ASBH - Association Nationale Spina Bifida et Handicaps associés

More information

FRANCE

OCCITANIE-NÎMES

APASC - Association des Personnes Atteintes du Syndrome de Currarino

More information

ITALY

LAZIO-ROMA

AIMAR - Associazione Italiana Malformazioni Anorettali - OdV

More information
ERN

AUSTRIA

WIEN-WIEN

SoMA Austria - Selbsthilfeorganisation für Betroffene von Morbus Hirschsprung und Anorektal-Fehlbildungen

More information

FINLAND

Finland-HELSINKI

AH-Potilaat Ry

More information

FRANCE

OCCITANIE-SAINT LOUP CAMMAS

Association TINTAMARRE

More information

GERMANY

Bayern-MÜNCHEN

SoMA e.V. - Selbsthilfeorganisation für Menschen mit Anorektalfehlbildungen und Morbus Hirschsprung

More information
ERN

NETHERLANDS

Noord-Holland-HUIZEN

Vereniging Anusatresie

More information

SPAIN

Madrid-DAGANZO DE ARRIBA

Asociación Espańola de Malformaciones Anorrectales y Enfermedad de Hirschsprung

More information

SWITZERLAND

Suisse Alémanique-USTER

SAM Schweiz/Suisse/Svizzera - Selbsthilfeorganisation für Menschen mit Analatresie und Morbus Hirschsprung

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

More information

BELGIUM

HAINAUT-MOUSCRON

Asbl Chiara VDS - Chiara Vie, Don d'organes et Solidarité

More information

BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

More information

CANADA

Colombie-Britannique-VANCOUVER

Rare Disease Foundation

More information

CANADA

Ontario-TORONTO

AboutFace

More information

FRANCE

NOUVELLE AQUITAINE-BORDEAUX

EwenLife Rare Maladies Rares

More information

FRANCE

OUTRE-MER-SAINT-PIERRE

Association pour la Sensibilisation aux Maladies Rares, Orphelines et Auto-Immunes ŕ Saint-Pierre-et-Miquelon

More information

GERMANY

Bayern-ERDWEG

Bundesselbsthilfevereinigung für Kinder, Jugendliche und Erwachsene mit seltenen, chronischen Skelett-Erkrankungen e.V.

More information

GREECE

ATTIKI-ATHENS

"95" - Rare Alliance Greece

More information

MALTA

MALTA-VALLETTA

The National Alliance for Rare Diseases Support - Malta

More information

SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

More information

SPAIN

Andalucía-JAÉN

Enfermedades Raras: Mas Visibles

More information

SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

More information

SPAIN

Galicia-A CORUŃA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

More information

SPAIN

Madrid-MADRID

INDEPF: Instituto de Investigación y Desarrollo Social de Enfermedades Poco Frecuentes

More information

SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

More information

SPAIN

Navarra-PAMPLONA

GERNA: Grupo de enfermedades raras de Navarra

More information

SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

More information
ERN

AUSTRALIA

New South Wales-ARTARMON

Variety - the Children's Charity

More information

AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia

More information

AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

More information

AUSTRALIA

Victoria-PARKVILLE

GSNV - Genetic Support Network of Victoria

More information

CYPRUS

Cyprus-NICOSIE

Pancyprian Association For Rare Genetic Diseases « Unique Smiles »

More information

GERMANY

Bayern-ASCHAFFENBURG

Kindernetzwerk e.V. - Selbsthilfe für Familien mit Kindern und jungen Erwachsenen mit chronischen Erkrankungen und Behinderungen

More information

GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

More information

IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

More information

ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

More information
ERN

LATVIA

LATVIA-RIGA

Biedriba Genetiski parmantoto slimibu pacientiem un lidzcilvekiem "Saknes"

More information

SLOVAKIA

Presovsky kraj-BARDEJOV

ZOGO - Zdruzenie Ojedlinelych Genetickych Ochorenie

More information

SWITZERLAND

Suisse Alémanique-USTER

KMSK - Förderverein für Kinder mit seltenen Krankheiten

More information

SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

More information

SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

More information

SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

More information

UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

More information

UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

More information

UNITED KINGDOM

Surrey-EPSOM

Gene People

More information

UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

More information