Orphanet: Search for a patient organisation

AUSTRALIA

Queensland-PITTSWORTH

DEBRA Australia Ltd

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AUSTRIA

WIEN-WIEN

DEBRA Austria, Hilfe bei Epidermolysis Bullosa

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BELGIUM

LIEGE-LANAYE (VISE)

DEBRA Belgium A.S.B.L., Association d'entraide pour les patients atteints d'épidermolyse bulleuse/V.Z.W. Vereniging voor epidermolysis bullosapatiënten

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BULGARIA

South-West region-SOFIA

DEBRA Bulgaria

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CANADA

Ontario-OAKVILLE

DEBRA Canada - Dystrophic Epidermolysis Bullosa Research Association (DEBRA) Canada

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CROATIA

CROATIA-ZAGREB

DEBRA, Drustvo oboljelih od bulozne epidermolize

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CZECH REPUBLIC

South Moravia-BRNO

DebRA CR

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FRANCE

PROVENCE-ALPES-COTE D'AZUR-MARSEILLE

DEBRA France

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GERMANY

Hessen-BIEDENKOPF

IEB-DEBRA - Interessengemeinschaft Epidermolysis Bullosa e. V. DEBRA Deutschland

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GERMANY

Nordrhein-Westfalen-SCHLOß HOLTE-STUKENBROCK

ABE - Angeborene-Bindegewebs-Erkrankungen e.V.

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HUNGARY

Közép-Magyarország-BUDAPEST

DEBRA Magyarország-Epidermolysis Bullosa Baráti Társaság

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HUNGARY

Közép-Magyarország-BUDAPEST

DEBRA Hungary - Országos Epidermolysis Bullosa Centrum - National Centre for Epidermolysis Bullosa

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IRELAND

County Dublin-DUBLIN

DEBRA Ireland

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ITALY

LOMBARDIA-MILANO

DEBRA ITALIA ONLUS

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NETHERLANDS

Gelderland-TIEL

DEBRA Nederland - Patiëntenvereniging voor mensen met Epidermolysis Bullosa

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POLAND

Katowice-KATOWICE

STOWARZYSZENIE DEBRA POLSKA KRUCHY DOTYK

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PORTUGAL

SUL-LISBOA

Debra PT - Associação Portuguesa de Epidermólise Bolhosa (Pertencendo a debra-international)

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ROMANIA

CLUJ-TURDA

MiniDebra Romania

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SLOVENIA

SLOVENIA-TRZIN

DRUSTVO DEBRA SLOVENIJA

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SPAIN

Andalucía-MARBELLA

Asociación Piel de Mariposa. DEBRA España

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SPAIN

Baleares-PALMA DE MALLORCA

ABAIMAR: Associació Balear d'Infants amb Malalties Rares

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SWEDEN

Region Stockholm-STOCKHOLM

Svenska EB föreningen Debra

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SWITZERLAND

Suisse Alémanique-AARAU

DEBRA Switzerland

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UNITED KINGDOM

Berkshire-BERKSHIRE

DEBRA UK - Epidermolysis bullosa support

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SLOVAKIA

Bratislavsky kraj-BRATISLAVA

DebRA SR - Dystrophic epidermolysis bullosa Research Association of Slovak Republic

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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FINLAND

Finland-HELSINKI

Ihoyhdistys

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MOROCCO

Rabat-RABAT

AMDG - Association Marocaine des Génodermatoses

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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ITALY

LOMBARDIA-VARESE

La Gemma Rara

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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AUSTRIA

WIEN

DEBRA International

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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