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Patient organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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FINLAND

Finland-HELSINKI

Ihoyhdistys

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FRANCE

ILE-DE-FRANCE-PARIS

ASAP for Children - Association pour la recherche médicale sur le gène ASAH1

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FRANCE

PAYS DE LA LOIRE-SAINT-HERBLAIN

Association Syndrome CLOVES

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GERMANY

Bayern-TEUGN

Proteus-Syndrom e.V.

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ITALY

LOMBARDIA-SAN GENESIO ED UNITI

Associazione Italiana Macrodattilia e PROS - AIMP Onlus

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-BUSTARVIEJO

AMCME - Asociación Macrocefalia con Malformación Capilar de España

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-STOCKHOLM

SÖF - Svenska Ödemförbundet

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Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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