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Patient organisations

AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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ERN

POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUŃA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-BROTTBY

Willefonden

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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AUSTRIA

NIEDERÖSTERREICH-HEILIGENKREUZ

Epilepsie Dachverband Österreich

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES

LFBE - La Ligue francophone belge contre l'Epilepsie ASBL

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BELGIUM

OOST-VLAANDEREN-EVERGEM

Epilepsie-contactgroep IKAROS V.Z.W. [Contactgroep Oost-Vlaanderen]

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BELGIUM

OOST-VLAANDEREN-GENT

Epilepsie Liga V.Z.W.

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BELGIUM

VLAAMS BRABANT-DILBEEK

Steunpunt Kinderepilepsie V.Z.W.

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BELGIUM

WEST-VLAANDEREN-KORTRIJK

URANUS - Contactgroep voor mensen met epilepsie [Contactgroep West-Vlaanderen]

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CANADA

Terre-Neuve-et-Labrador-ST. JOHN'S

CEA - Canadian Epilepsy Alliance

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FINLAND

Finland-HELSINKI

Epilepsialiitto - Epilepsiförbundet ry

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FRANCE

ILE-DE-FRANCE-PARIS

Epilepsie France

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FRANCE

ILE-DE-FRANCE-PARIS

FFRE - Fondation Française pour la Recherche sur l'Epilepsie

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GERMANY

Berlin-BERLIN

Deutsche Epilepsievereinigung e.V.

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GERMANY

Hamburg-HAMBURG

Epilepsie Selbsthilfegruppe Hamburg-Mitte

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GERMANY

Nordrhein-Westfalen-KÖLN

Landesverband für Epilepsie Selbsthilfe NRW e.V.

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GERMANY

Nordrhein-Westfalen-WUPPERTAL

E.B.E. - Epilepsie Bundes-Elternverband e.V.

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IRELAND

County Dublin-DUBLIN

Epilepsy Ireland

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ITALY

EMILIA ROMAGNA-BOLOGNA

AEER - Associazione Epilessia Emilia Romagna OdV

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ITALY

LOMBARDIA-MILANO

AICE - Associazione Italiana Contro l'Epilessia ONLUS

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ITALY

LOMBARDIA-MILANO

FIE - Federazione Italiana Epilessie

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MOROCCO

Marrakech-MARRAKECH

AMCEP - Association marocaine contre l'épilepsie

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NETHERLANDS

Utrecht-HOUTEN

EVN - Epilepsie Vereniging Nederland

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NORWAY

Řstlandet-OSLO

Norsk Epilepsiforbund

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POLAND

Warszawa-WARSAW

Polskie Stowarzyszenie na Rzecz Dzieci Chorych na Padaczke

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SWEDEN

Region Stockholm-SUNDBYBERG

Svenska epilepsiförbundet

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Schweizerischer Verein für Epilepsie - Association Suisse de l'Epilepsie - Associazione Svizzera per l'Epilessia

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SWITZERLAND

Suisse Romande-LAUSANNE

Fondation Eclipse - Epilepsie Suisse romande

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UNITED KINGDOM

Buckinghamshire-GERRARDS CROSS

Epilepsy society

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UNITED KINGDOM

Kent-KENT

Epilepsy HERE - Help, Education and Research for Epilepsy

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UNITED KINGDOM

Oxfordshire-WANTAGE

SUDEP Action - making every epilepsy death count

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UNITED KINGDOM

West Yorkshire-LEEDS

Epilepsy Action

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SWEDEN

Region Stockholm-LIDINGÖ

Föräldraföreningen Anonymous

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SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

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ERN

UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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CYPRUS

Cyprus-NICOSIA

Cyprus Society for the Protection of Spastic and Handicaped Children

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Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluńa

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Espańola de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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FRANCE

AUVERGNE-RHONE-ALPES

BRON

EpiCARE Patient Advocacy Group

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ERN
FRANCE

AUVERGNE-RHONE-ALPES

SAINT EGRČVE

EFAPPE : Fédération des Associations en faveur des Personnes handicaPées par des Épilepsies Sévčres

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