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Patient organisations

AUSTRALIA

New South Wales-PENRITH

IDFA - Immune Deficiencies Foundation Australia

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AUSTRIA

NIEDERÖSTERREICH-RIEDERBERG

Österreichische Selbsthilfegruppe für primäre Immundefekte (ÖSPID)

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BELGIUM

HAINAUT-BASÈCLES

BOPPI - Organisation belge des patients atteints d'un Déficit Immunitaire Primaire A.S.B.L.

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DENMARK

Sjælland-SKOVLUNDE

The Danish Association for Immunodeficiencies

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FINLAND

Finland-ESPOO

Immuunipuutospotilaiden yhdistys ry.

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FRANCE

GRAND-EST-TOUL

Association IRIS - Immunodéficience primitive, Recherche, Information, Soutien

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GERMANY

Bayern-SCHNAITSEE

dsai - Deutsche Selbsthilfe Angeborene Immundefekte e.V.

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GREECE

ATTIKI-ATHENS

Armonia - Association of Greek friends for paediatric immunology, primary immunodeficiencies (Harmony)

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ITALY

LAZIO-ROMA

PRO IDPI - Pro ImmunoDeficienze Primitive Italiane

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ITALY

LOMBARDIA-BRESCIA

AIP odv - Associazione Immunodeficienze Primitive

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MOROCCO

Casablanca-CASABLANCA

HAJAR - Association de soutien aux patients atteints de déficits immunitaires primitifs

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NETHERLANDS

Noord-Brabant-GEFFEN

SAS - Stichting voor Afweerstoornissen

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POLAND

Lodz-LODZ

Immunoprotect - Stowarzyszenie na rzecz osob z niedoborami odpornosci

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PORTUGAL

NORTE-VILA DO CONDE

A.P.D.I.P - Associação Portuguesa de Doentes com Imunodeficiência Primária

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SPAIN

Cataluña-BARCELONA

Fundación "BARCELONA PID FOUNDATION"

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SPAIN

Madrid-MADRID

AEDIP - Asociación Española de Déficits Inmunitarios Primarios

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SWEDEN

Region Örebro län-ÖREBRO

Primär immunbristorganisationen

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SWITZERLAND

Suisse Alémanique-ZÜRICH

SVAI Schweizerische Vereinigung für Angeborene Immunodefekte - Association Suisse pour Immuno-Déficience Primitive - Associazione Svizzera per Immunodeficienze Primitive

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UNITED KINGDOM

Cornwall-DOWNDERRY

IPOPI - International Patient Organisation for Primary Immunodeficiencies

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UNITED KINGDOM

Essex-COLCHESTER

PID UK - Primary Immunodeficiency UK

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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ITALY

LOMBARDIA-VARESE

La Gemma Rara

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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Alliances and umbrella organisations

UNITED KINGDOM

Cornwall

DOWNDERRY

IPOPI - International Patient Organisation for Primary Immunodeficiencies Network

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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