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Patient organisations

AUSTRALIA

New South Wales-ENFIELD

Retina Australia

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AUSTRIA

WIEN-WIEN

Usher Initiative Austria

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BELGIUM

NAMUR-NAMUR

Retina Pigmentosa A.S.B.L.

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CANADA

Québec-GREENFIELD PARK

AQPEHV - Association québécoise des parents d'enfants handicapés visuels

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FINLAND

Finland-HELSINKI

Retinitis-yhdistys ry

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FRANCE

OCCITANIE-BESSEGES

IRRP - Association Information Recherche sur la Rétinite Pigmentaire

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FRANCE

OCCITANIE-MONTPELLIER

SOS Rétinite France - Association nationale de lutte contre la cécité, Centre recherche information sur les Dégénérescences Rétiniennes (C.E.D.R.E.)

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HUNGARY

Közép-Magyarország-BUDAPEST

Retina Magyarorszag

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ITALY

TOSCANA-CAMPI BISENZIO

ATRI - Associazione Toscana Retinopatici e Ipovedenti ONLUS

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LITHUANIA

SUDOVIA-KAUNAS

Lietuvos Retinitis Pigmentosa Sajunga

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NORWAY

Řstlandet-OSLO

Retinitis Pigmentosa Foreningen i Norge

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POLAND

Warszawa-WARSAW

Stowarzyszenie Retina AMD Polska

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PORTUGAL

SUL-LISBOA

ARP - Associaçăo de Retinopatia de Portugal

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SPAIN

Asturias-GIJÓN

Asociación Es Retina Asturias (ámbito nacional)

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SPAIN

Madrid-MADRID

ASOCIDE - Asociación de Sordociegos de Espańa

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SPAIN

Madrid-MADRID

Fundación Retina Espańa

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SPAIN

Madrid-TORRELODONES

D.O.C.E. Discapacitados Otros Ciegos de Espańa

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SWEDEN

Stockholms läns landsting-STOCKHOLM

Svenska RP-Föreningen

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NETHERLANDS

Utrecht-UTRECHT

Patiëntengroep Retina

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CANADA

Ontario-TORONTO

Foundation Fighting Blindness - La fondation qui lutte contre la cécité

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FINLAND

Finland-HELSINKI

Näkövammaisten Keskusliitto ry

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FRANCE

HAUTS-DE-FRANCE-MARCQ EN BAROEUL

ANPEA - Association Nationale des Parents d'Enfants Aveugles

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FRANCE

ILE-DE-FRANCE-PARIS

AVH - Association Valentin Haüy pour le bien des aveugles et des malvoyants

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FRANCE

OCCITANIE-COLOMIERS

Association Retina France

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GERMANY

Nordrhein-Westfalen-DÜREN

BEBSK - Bundesvereinigung Eltern blinder und sehbehinderter Kinder e.V.

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GERMANY

Nordrhein-Westfalen-DÜSSELDORF

BFS - Bund zur Förderung Sehbehinderter e.V.

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GREECE

ATTIKI-ATHENS

HRS - Hellenic Retina Society

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IRELAND

County Dublin-DUBLIN

Fighting Blindness

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LUXEMBOURG

LUXEMBOURG-CANACH

ADV - Association pour déficients visuels

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SPAIN

Madrid-MADRID

Asociación Acción Visión Espańa

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SPAIN

Madrid-MADRID

APASCIDE - Asociación Espańola de Familias de Personas con Sordoceguera

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Greater London-LONDON

GDUK- Genetic Disorders UK

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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Alliances and umbrella organisations

SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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