Orphanet: Search for a patient organisation

AUSTRALIA

Western Australia-BOUVARD

BEB Western Australian Support Group Inc.

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AUSTRIA

WIEN-WIEN

ÖDG - Österreichische Dystonie Gesellschaft

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BELGIUM

OOST-VLAANDEREN-OUTER

Belgische Vereniging voor Dystoniepatiënten V.Z.W. - Association Belge des Patients Dystoniques A.S.B.L.

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CANADA

Ontario-TORONTO

DMRFC - Dystonia Medical Research Foundation Canada

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FRANCE

ILE-DE-FRANCE-PARIS

AMADYS - Association des Malades Atteints de DYStonie

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GERMANY

Baden-Württemberg-KARLSRUHE

Selbsthilfeorganisation Dystonie-und-Du (DyD) e. V.

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GERMANY

Bayern-MÜNCHEN

Dystonie Treff online e.V.

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GERMANY

Hamburg-HAMBURG

DDG - Deutsche Dystonie Gesellschaft e.V.

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IRELAND

County Dublin-DUBLIN

Dystonia Ireland

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ITALY

LOMBARDIA-SEGRATE

ARD - Associazione Italiana per la Ricerca sulla Distonia

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ITALY

TOSCANA-VIAREGGIO

ALDEI - Associazione per la Lotta alle Distonie Evolutive Infantili

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NETHERLANDS

Noord-Brabant-BREDA

Dystonie Vereniging

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PORTUGAL

SUL-LISBOA

ASSOCIAÇÂO PORTUGUESA DE DISTONIA

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SPAIN

Madrid-MADRID

ALDE: Asociación de Lucha contra la Distonia en España

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SWEDEN

Region Västra Götaland-LIDKÖPING

Svensk dystoniförening

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SWITZERLAND

Suisse Alémanique-NETSTAL

SDG/ASD - Schweizerische Dystonie-Gesellschaft - Association Suisse contre la Dystonie - Associazione Svizzera contro la Dystonia

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UNITED KINGDOM

Greater London-LONDON

Dystonia UK (Operating name of The Dystonia Society)

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CYPRUS

Cyprus-NICOSIA

Cyprus Society for the Protection of Spastic and Handicaped Children

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SPAIN

Galicia-EIRÍS DE ARRIBA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

Dystonia Europe

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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