Orphanet: Search for a patient organisation

CANADA

Saskatchewan-REGINA

Mastocytosis Society Canada - Société canadienne de la mastocytose

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FRANCE

ILE-DE-FRANCE-PARIS

AFIRMM - Association Française pour les Initiatives de Recherche sur le Mastocyte et les Mastocytoses

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FRANCE

ILE-DE-FRANCE-PARIS

ASSOMAST: Association française des patients atteints de mastocytoses et de syndromes d'activation mastocytaires

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GERMANY

Nordrhein-Westfalen-ODENTHAL

Mastozytose Selbsthilfe Netzwerk e.V.

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GERMANY

Nordrhein-Westfalen-TÖNISVORST

Mastozytose e.V.

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ITALY

EMILIA ROMAGNA-CASTELLO D'ARGILE

ASIMAS - Associazione Italiana Mastocitosi ONLUS

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SPAIN

Castilla - León-LEÓN

ALER - Asociación Leonesa de Enfermedades Raras y sin diagnóstico

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SWITZERLAND

Suisse Alémanique-PFÄFFIKON

SELMAS mastozytose.ch - SELbsthilfenetz MAstozytose Schweiz

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UNITED KINGDOM

Lothian-LIVINGSTON

UK Mastocytosis Support Group

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-WOLUWE-SAINT-PIERRE

Les Enfants de Salus Sanguinis, Fondation d'utilité publique

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GERMANY

Hessen-RÜSSELSHEIM

Leukämiehilfe RHEIN-MAIN e.V.

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GERMANY

Niedersachsen-SPRINGE

Kranich -Selbsthilfegruppe für Erwachsene nach einer Krebserkrankung im Kindes-/Jugendalter in Norddeutschland

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GERMANY

Nordrhein-Westfalen-BONN

DLH - Deutsche Leukämie- und Lymphom-Hilfe e.V.

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ITALY

LAZIO-ROMA

FIAGOP - Federazione Italiana Associazioni Genitori Oncoematologia Pediatrica

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ITALY

UMBRIA-PERUGIA

Comitato per la Vita "Daniele Chianelli"

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PORTUGAL

NORTE-PORTO

Associação Portuguesa de Leucemias e Linfomas (Membro da Myeloma Euronet)

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PORTUGAL

SUL-LISBOA

APCL - Associação Portuguesa Contra a Leucemia

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SPAIN

Madrid-MADRID

AEAL - Asociación Española de Afectados por Linfomas, Mielomas y Leucemias

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SPAIN

Madrid-MADRID

AEAS - Asociación Española de Afectados por Sarcoma

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SPAIN

Madrid-MADRID

AEDM - Asociación Española de Mastocitosis y Enfermedades Relacionadas

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SWEDEN

Region Stockholm-SUNDBYBERG

Blodcancerförbundet

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SWEDEN

Region Stockholm-TÄBY

Mastcellssjukdomar Sverige

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SWITZERLAND

Suisse Alémanique-EBMATINGEN

SFK Stiftung zur Förderung der Knochenmarktransplantation Schweiz

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TURKEY

TURKEY-ANKARA

FOUNDATION FOR CHILDREN WITH LEUKEMIA

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UNITED KINGDOM

Worcestershire-WORCESTER

Leukaemia CARE

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AUSTRALIA

New South Wales-BOWRAL

RCA - Rare Cancers Australia Limited

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSEL

Fondation contre le Cancer / Stichting tegen Kanker

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES

SUN CHILD - Prendre un enfant par la main A.S.B.L.

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BELGIUM

VLAAMS BRABANT-HALLE

KIKOV-Leuven - Kinderkanker Oudervereniging Leuven vzw

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CYPRUS

Cyprus-NICOSIA

Cyprus Association for Children with Cancer and Related Diseases "One Dream One Wish"

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CYPRUS

Cyprus-NICOSIA

PA.SY.KA.F - The Cyprus Association of Cancer Patients and Friends

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ESTONIA

Tallinn-TALLINN

Eesti Vähiliit

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FINLAND

Finland-HELSINKI

Sylva ry

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FRANCE

ILE-DE-FRANCE-L'ISLE-ADAM

Association Source Vive

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FRANCE

ILE-DE-FRANCE-PARIS

La Ligue Contre le Cancer

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GERMANY

Berlin-BERLIN

Deutsche Stiftung für junge Erwachsene mit Krebs

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GERMANY

Nordrhein-Westfalen-BONN

Deutsche Kinderkrebsstiftung

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ITALY

LAZIO-ROMA

ALTI - Associazione ''Io, domani'' per la Lotta contro i Tumori Infantili

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ITALY

PUGLIA-ALTAMURA

A.MA.R.A.M. - Associazione Malattie Rare dell'Alta Murgia aps

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LUXEMBOURG

LUXEMBOURG-BOEVANGE-SUR-ATTERT

Een Haerz fir kriibskrank Kanner / Un coeur pour les enfants atteints de cancer

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POLAND

Kraków-KRAKOW

KOLIBER - Stowarzyszenie na rzecz dzieci z choroba nowotworowa

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POLAND

Lodz-LODZ

Fundacja "Krwinka"

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ROMANIA

BRASOV-BRASOV

ABC - ASOCIATIA BOLNAVILOR DE CANCER DIN ROMANIA

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ROMANIA

BUCURESTI-BUCURESTI

PAVEL - Association PAVEL (Primind Ajutor Viata Este Luminoasa)

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SPAIN

Madrid-MADRID

ASION: Asociación Infantil Oncológica de Madrid

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UNITED KINGDOM

Greater London-LONDON

CLIC Sargent (Cancer and Leukaemia in Childhood)

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UNITED KINGDOM

Greater London-LONDON

TCT - Teenage Cancer Trust

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UNITED KINGDOM

Staffordshire-STAFFORD

CCPA - The Childhood Cancer Parents Alliance

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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SERBIA

Serbia-BELGRADE

ZVONCICA - Childhood cancer parent organisation

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SPAIN

Madrid

MADRID

Federación Española de Padres de Niños con Cáncer

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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