Orphanet: Search for a patient organisation

FRANCE

OCCITANIE-MONTESQUIEU-DES-ALBERES

ASQTL - Association du Syndrome du QT Long

More information

IRELAND

County Dublin-DUBLIN

Long QT Support Group

More information

ITALY

VENETO-PADOVA

GECA - Associazione Giovani e Cuore Aritmico - ONLUS

More information

SPAIN

Cataluña-BARCELONA

SAMS: Asociación para la lucha contra los síndromes arrítmicos relacionados con la muerte súbita

More information

SPAIN

Madrid-MADRID

APACOR - Asociación de Pacientes Coronarios

More information

UNITED KINGDOM

Essex-ESSEX

SADS UK - Sudden Arrhythmic Death Syndrome, The Ashley Jolly SAD Trust

More information

FRANCE

ILE-DE-FRANCE-PARIS

AMRYC - Association des Maladies Héréditaires du Rythme Cardiaque

More information

FINLAND

Finland-HELSINKI

Sydänlapset ja -aikuiset ry

More information

IRELAND

County Dublin-DUBLIN

Heart Children Ireland

More information

UNITED KINGDOM

Kent-RAINHAM

HeartLine Association

More information

AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

More information

AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

More information

AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

More information

BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

More information

CYPRUS

Cyprus-LARNACA

Heart Patients and Friends Association

More information

CYPRUS

Cyprus-NICOSIA

Pancyprian Heart Patients' Association

More information

DENMARK

Hovedstaden-COPENHAGEN

Hjerteforeningen

More information

FRANCE

NOUVELLE AQUITAINE-BORDEAUX

EwenLife Rare Maladies Rares

More information

FRANCE

OUTRE-MER-SAINT-PIERRE

Association pour la Sensibilisation aux Maladies Rares, Orphelines et Auto-Immunes à Saint-Pierre-et-Miquelon

More information

GERMANY

Hessen-FRANKFURT AM MAIN

Kinderherzstiftung der Deutschen Herzstiftung e. V.

More information

GERMANY

Niedersachsen-BRAUNSCHWEIG

HERZKIND e.V. - Verein zur Förderung der Beratung und Betreuung herzkranker Kinder und ihrer Familien

More information

GERMANY

Nordrhein-Westfalen-AACHEN

BVHK - Bundesverband Herzkranker Kinder e.V.

More information

GERMANY

Nordrhein-Westfalen-AACHEN

Bundesvereinigung JEMAH e.V.

More information

GERMANY

Nordrhein-Westfalen-OBERHAUSEN

IDHK - Interessengemeinschaft Das herzkranke Kind e.V.

More information

GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

More information

IRELAND

County Dublin-DUBLIN

Irish Heart Foundation

More information

IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

More information

IRELAND

County Dublin-DUBLIN

Cardiac Risk in the Young in Ireland

More information

ITALY

CAMPANIA-NAPOLI

Associazione Cardiomiopatie e Malattie Rare Connesse-ONLUS

More information

ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

More information

NETHERLANDS

Zuid-Holland-DEN HAAG

Harteraad

More information

POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

More information

ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

More information

SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

More information

SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

More information

SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

More information

SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

More information

SPAIN

Navarra-PAMPLONA

GERNA: Grupo de enfermedades raras de Navarra

More information

SWEDEN

Region Stockholm-BROTTBY

Willefonden

More information

SWITZERLAND

Suisse Alémanique-USTER

KMSK - Förderverein für Kinder mit seltenen Krankheiten

More information

SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

More information

SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

More information

SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

More information

UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

More information

UNITED KINGDOM

Essex-BRAINTREE

CHF - Children's Heart Federation

More information

UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

More information

UNITED KINGDOM

Merseyside-WIRRAL

CHA - Children's Heart Association

More information

UNITED KINGDOM

Surrey-EPSOM

Gene People

More information

UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

More information

BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

More information

FRANCE

ILE-DE-FRANCE

PARIS

Alliance Maladies Rares

More information

FRANCE

ILE-DE-FRANCE

PARIS

EURORDIS - Rare Diseases Europe

More information

GERMANY

Hessen

FRANKFURT AM MAIN

ABAHF - Aktionsbündnis Angeborene Herzfehler

More information

SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

More information

SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

More information

SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

More information

Search for a patient organisation

Other search option(s)

59 Result(s)