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Patient organisations

ITALY

LAZIO-ROMA

AISJAC - Associazione Italiana Sindrome di Joubert e Atassie Congenite - ONLUS

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CANADA

Ontario-ESSEX

Joubert Syndrome and Related Disorders (JSRD) Canadian Group

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SPAIN

Andalucía-FUENTE PALMERA

Asociación de Familias con Síndrome de Joubert y Trastornos Relacionados

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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GERMANY

Baden-Württemberg-BRETZFELD

LD - Lebertransplantierte Deutschland e.V.

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GERMANY

Hamburg-HAMBURG

Verein leberkrankes Kind e.V.

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GERMANY

Nordrhein-Westfalen-KÖLN

Deutsche Leberhilfe e.V.

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NETHERLANDS

Utrecht-HOOGLAND

Nederlandse Leverpatiënten Vereniging

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SPAIN

Galicia-A CORUŃA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Galicia-ORENSE

Asociación Anasbabi Ciliopatías

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWITZERLAND

Suisse Alémanique-SISSACH

EVLK - Elternvereinigung lebererkrankter Kinder.Association des parents d'enfants malades du foie.Associazione dei genitori di bambini malati al fegato

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UNITED KINGDOM

Hampshire-BOURNEMOUTH

British Liver Trust

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UNITED KINGDOM

West Midlands-BIRMINGHAM

Children's Liver Disease Foundation

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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FRANCE

NOUVELLE AQUITAINE-MARTIGNAS SUR JALLE

CSC - Connaître les Syndromes Cérébelleux

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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ITALY

LOMBARDIA-VARESE

La Gemma Rara

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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POLAND

Wroclaw-WROCLAW

WSPOLNIE - Stowarzyszenie na Rzecz Dzieci z Rzadkimi Chorobami Genetycznymi i Ich Rodzin

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PORTUGAL

NORTE-CASTRO MARIM

APAHE - Associaçăo Portuguesa de Ataxias Hereditárias

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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CANADA

Québec-MONTRÉAL

ACAF - Association canadienne des ataxies familiales - Fondation Claude St-Jean

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NETHERLANDS

Zuid-Holland-HOEK VAN HOLLAND

ADCA Vereniging Nederland

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NORWAY

Řstlandet-NESBRU

Foreningen for Muskelsyke

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GERMANY

Baden-Württemberg-STUTTGART

DHAG - Deutsche Heredo-Ataxie-Gesellschaft. e.V.

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IRELAND

County Wexford-WEXFORD

Ataxia Foundation Ireland

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ITALY

LOMBARDIA-MILANO

AISA - Associazione Italiana per la Lotta alle Sindromi Atassiche - ONLUS

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SPAIN

Castilla - León-VALLADOLID

FEDAES - Federación de Ataxias de Espańa

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SWEDEN

Region Stockholm-SOLNA

Neuroförbundet (Neurologiskt handikappades riksförbund)

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UNITED KINGDOM

Greater London-LONDON

Ataxia UK

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BELGIUM

ANTWERPEN-TURNHOUT

Alzheimer Liga Vlaanderen V.Z.W.

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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GERMANY

Niedersachsen-BRAUNSCHWEIG

LiBERO - Hilfe für das Kind mit Krankheiten des Nervensystems e.V.

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ITALY

TOSCANA-FIRENZE

Voa Voa! Onlus Amici di Sofia

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NETHERLANDS

Utrecht-AMERSFOORT

Alzheimer Nederland

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SWEDEN

Region Stockholm-STOCKHOLM

Demensförbundet

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SWITZERLAND

Suisse Alémanique-BERN

Alzheimer Schweiz - Alzheimer Suisse - Alzheimer Svizzera

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TURKEY

TURKEY-ISTANBUL

Türkish Alzheimer Society

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Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluńa

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Espańola de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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UNITED KINGDOM

Greater London

LONDON

Euro-ATAXIA

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LUXEMBOURG

LUXEMBOURG

LUXEMBOURG

Alzheimer Europe

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UNITED KINGDOM

Greater London

LONDON

Alzheimer's Disease International

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