Orphanet: Search for a patient organisation
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Patient organisations

AUSTRIA

NIEDERÖSTERREICH-HEILIGENKREUZ

Epilepsie Dachverband Österreich

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BELGIUM

ANTWERPEN-EINDHOUT

Angelman Syndroom België V.Z.W.

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES

LFBE - La Ligue francophone belge contre l'Epilepsie ASBL

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BELGIUM

OOST-VLAANDEREN-EVERGEM

Epilepsie-contactgroep IKAROS V.Z.W. [Contactgroep Oost-Vlaanderen]

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BELGIUM

OOST-VLAANDEREN-GENT

Epilepsie Liga V.Z.W.

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BELGIUM

VLAAMS BRABANT-DILBEEK

Steunpunt Kinderepilepsie V.Z.W.

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BELGIUM

WEST-VLAANDEREN-KORTRIJK

URANUS - Contactgroep voor mensen met epilepsie [Contactgroep West-Vlaanderen]

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CANADA

Terre-Neuve-et-Labrador-ST. JOHN'S

CEA - Canadian Epilepsy Alliance

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FINLAND

Finland-HELSINKI

Epilepsialiitto - Epilepsiförbundet ry

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FRANCE

AUVERGNE-RHONE-ALPES-LYON

Réseau-Lucioles

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FRANCE

CENTRE-VAL DE LOIRE-GELLAINVILLE

Association Nos Anges

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FRANCE

ILE-DE-FRANCE-PARIS

Epilepsie France

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FRANCE

ILE-DE-FRANCE-PARIS

FFRE - Fondation Française pour la Recherche sur l'Epilepsie

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GERMANY

Berlin-BERLIN

Deutsche Epilepsievereinigung e.V.

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GERMANY

Hamburg-HAMBURG

Epilepsie Selbsthilfegruppe Hamburg-Mitte

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GERMANY

Hamburg-HAMBURG

LISS - Anlaufstelle für Eltern und Angehörige an Lissenzephalie leidender Kinder e.V.

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GERMANY

Nordrhein-Westfalen-KÖLN

Landesverband für Epilepsie Selbsthilfe NRW e.V.

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GERMANY

Nordrhein-Westfalen-WUPPERTAL

E.B.E. - Epilepsie Bundes-Elternverband e.V.

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IRELAND

County Dublin-DUBLIN

Epilepsy Ireland

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ITALY

EMILIA ROMAGNA-BOLOGNA

AEER - Associazione Epilessia Emilia Romagna OdV

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ITALY

LAZIO-ROMA

Associazione Italiana Sindrome di Aicardi ONLUS

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ITALY

LOMBARDIA-MILANO

AICE - Associazione Italiana Contro l'Epilessia ONLUS

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ITALY

LOMBARDIA-MILANO

FIE - Federazione Italiana Epilessie

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ITALY

LOMBARDIA-SAN GENESIO ED UNITI

Associazione Italiana Macrodattilia e PROS - AIMP Onlus

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ITALY

PIEMONTE-TORINO

Fedra ONLUS

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MOROCCO

Marrakech-MARRAKECH

AMCEP - Association marocaine contre l'épilepsie

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NETHERLANDS

Utrecht-HOUTEN

EVN - Epilepsie Vereniging Nederland

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NORWAY

Østlandet-OSLO

Norsk Epilepsiforbund

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POLAND

Warszawa-WARSAW

Polskie Stowarzyszenie na Rzecz Dzieci Chorych na Padaczke

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PORTUGAL

CENTRO-LEIRIA

APPC-Leiria - Associação Portuguesa de Paralisia Cerebral de Leiria

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PORTUGAL

NORTE-PORTO

APPC-Porto - Associação do Porto de Paralisia Cerebral

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SPAIN

Baleares-PALMA DE MALLORCA

ABAIMAR: Associació Balear d'Infants amb Malalties Rares

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SWEDEN

Region Stockholm-SUNDBYBERG

Svenska epilepsiförbundet

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Schweizerischer Verein für Epilepsie - Association Suisse de l'Epilepsie - Associazione Svizzera per l'Epilessia

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SWITZERLAND

Suisse Romande-LAUSANNE

Fondation Eclipse - Epilepsie Suisse romande

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UNITED KINGDOM

Buckinghamshire-GERRARDS CROSS

Epilepsy society

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UNITED KINGDOM

Kent-KENT

Epilepsy HERE - Help, Education and Research for Epilepsy

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UNITED KINGDOM

Oxfordshire-WANTAGE

SUDEP Action - making every epilepsy death count

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UNITED KINGDOM

Surrey-NEW MALDEN

CORPAL - Supporting Agenesis of the Corpus Callosum or Aicardi Syndrome

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UNITED KINGDOM

West Yorkshire-LEEDS

Epilepsy Action

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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CANADA

Colombie-Britannique-VANCOUVER

PVNH Support & Awareness- HNPV soutien & sensibilisation

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NETHERLANDS

Overijssel-ZWOLLE

VKS - Volwassenen, Kinderen en Stofwisselingsziekten

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NETHERLANDS

Utrecht-BAARN

Spierziekten Nederland

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SPAIN

Galicia-EIRÍS DE ARRIBA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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CANADA

Ontario-TORONTO

Little People of Ontario

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FRANCE

ILE-DE-FRANCE-PARIS

APPT - Association des Personnes de Petite Taille

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GERMANY

Bremen-BREMEN

BKMF - Bundesverband Kleinwüchsige Menschen und ihre Familien e.V.

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GERMANY

Niedersachsen-ALGERMISSEN

VKM - Bundesselbsthilfeverband Kleinwüchsiger Menschen e.V.

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SPAIN

Comunidad Valenciana-VILLAJOYOSA

AHEDYSIA - Asociación Humanitaria de Enfermedades Degenerativas y Síndromes de la Infancia y Adolescencia

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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FRANCE

PROVENCE-ALPES-COTE D'AZUR-LE TIGNET

AMCVHS - Association Mieux Comprendre et Vivre l'Hydrocéphalie et la Syringomyélie

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ITALY

PUGLIA-ALTAMURA

A.MA.R.A.M. - Associazione Malattie Rare dell'Alta Murgia aps

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SPAIN

Cataluña-BARCELONA

Asociación Española de GRINpatías

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Alliances and umbrella organisations

FRANCE

AUVERGNE-RHONE-ALPES

SAINT EGRÈVE

EFAPPE : Fédération des Associations en faveur des Personnes handicaPées par des Épilepsies Sévères

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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