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Patient organisations

AUSTRIA

WIEN-WIEN

Usher Initiative Austria

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GERMANY

Bayern-REGENSBURG

BV MD - Bundesverband Macula-Degeneration e.V.

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GERMANY

Berlin-BERLIN

Bundesverband Auge e.V.

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ITALY

LIGURIA-GENOVA

R.P. Liguria ODV Associazione per la Retinite Pigmentosa e Altre Malattie della Retina

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NETHERLANDS

Utrecht-UTRECHT

Patiëntengroep Retina

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Retina Suisse Die Vereinigung von Patientinnen und Patienten mit Retinitis pigmentosa (RP),Makuladegeneration, Usher-Syndrom und anderen Erkrankungen des Augenhintergrundes

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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FINLAND

Finland-HELSINKI

Näkövammaisten liitto ry

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FRANCE

OCCITANIE-COLOMIERS

Association Retina France

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GERMANY

Nordrhein-Westfalen-DÜREN

BEBSK - Bundesvereinigung Eltern blinder und sehbehinderter Kinder e.V.

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GERMANY

Nordrhein-Westfalen-DÜSSELDORF

BFS - Bund zur Förderung Sehbehinderter e.V.

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IRELAND

County Dublin-DUBLIN

Fighting Blindness

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LUXEMBOURG

LUXEMBOURG-CANACH

ADV - Association pour déficients visuels

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-MADRID

Asociación Acción Visión España

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SPAIN

Madrid-MADRID

APASCIDE - Asociación Española de Familias de Personas con Sordoceguera

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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Alliances and umbrella organisations

SWITZERLAND

Suisse Alémanique

ZÜRICH

Retina International Network

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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