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Patient organisations

AUSTRALIA

New South Wales-FIVE DOCK

CTF - Children's Tumour Foundation, NF Australia Ltd (Neurofibromatosis)

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AUSTRIA

WIEN-WIEN

NF Kinder - Verein zur Förderung der Neurofibromatoseforschung Österreich

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BELGIUM

OOST-VLAANDEREN-GENT

AHOSA V.Z.W.- Anders HOren Samen Aanpakken

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BELGIUM

OOST-VLAANDEREN-SINT-NIKLAAS

NF Kontakt - Vereniging voor patienten met neurofibromatose V.Z.W.

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CANADA

Ontario-TORONTO

ANAC - Acoustic Neuroma Association of Canada

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CANADA

Québec-MONTRÉAL

ANFQ - Association de la Neurofibromatose du Québec

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FINLAND

Finland-SEINÄJOKI

Suomen Neurofibromatoosiyhdistys ry.

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FRANCE

HAUTS-DE-FRANCE-NEUVILLE-EN-FERRAIN

ANR - Association Neurofibromatoses et Recklinghausen

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FRANCE

ILE-DE-FRANCE-PARIS

Association France Acouphčnes

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FRANCE

NOUVELLE AQUITAINE-ANAIS

LFCN - Ligue Française Contre les Neurofibromatoses

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GERMANY

Bayern-MÜNCHEN

Vereinigung Akustikus Neurinom e.V.

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GERMANY

Hamburg-HAMBURG

Bundesverband Neurofibromatose e.V.

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HUNGARY

Közép-Magyarország-BUDAPEST

NF Hungary

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IRELAND

County Dublin-DUBLIN

NF Ireland - Neurofibromatosis Association of Ireland

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ITALY

EMILIA ROMAGNA-BOLOGNA

Associazione "Io Ci Sono" ONLUS

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ITALY

EMILIA ROMAGNA-PARMA

ANF - Associazione Neuro Fibromatosi - ONLUS

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ITALY

LAZIO-ROMA

ANANas - Associazione Nazionale Aiuto per la Neurofibromatosi, amicizia e solidarietŕ

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ITALY

LAZIO-ROMA

Lega per la Neurofibromatosi 2 ONLUS

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ITALY

VENETO-PADOVA

LINFA OdV - Associazione Lottiamo Insieme contro la Neurofibromatosi - ONLUS

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NETHERLANDS

Zuid-Holland-DEN HAAG

NFVN - Neurofibromatose Vereniging Nederland

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POLAND

Bydgoszcz-BYDGOSZCZ

Alba-Julia - Stowarzyszenie pacjentów z choroba Recklinghausena i innymi schorzeniami z grupy fakomatoz

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PORTUGAL

SUL-RAMADA

APNF - Associaçăo Portuguesa de Neurofibromatose

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SPAIN

Madrid-MADRID

AANF - Asociación de Afectados de Neurofibromatosis

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SWEDEN

Landstinget Sörmland-ÄRLA

Kraniofaciala föreningen i Sverige

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SWEDEN

Landstinget Västmanland-SALA

NF-förbundet i Sverige

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SWITZERLAND

Suisse Alémanique-SEEWEN

SNFV - Schweizerische Neurofibromatose - Vereinigung

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SWITZERLAND

Suisse Romande-GRAND-SACONNEX

GER-NF - Groupe d'Entraide Romand pour les Neurofibromatoses

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TURKEY

TURKEY-ISTANBUL

Neurofibromatosis (NF) Dernegi

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UNITED KINGDOM

Greater London-LONDON

Nerve Tumours UK

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UNITED KINGDOM

Nottinghamshire-MANSFIELD

BANA - British Acoustic Neuroma Association

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FINLAND

Finland-HELSINKI

Suomen Kuurosokeat ry

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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CZECH REPUBLIC

Capital City Prague-PRAHA

CUN - Ceska unie neslysiscich

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FINLAND

Finland-HELSINKI

Kuuloliitto, Harvinaistoiminta

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FRANCE

ILE-DE-FRANCE-PARIS

Fédération ANPEDA - Association Nationale des Parents d'Enfants Déficients Auditifs

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GERMANY

Schleswig-Holstein-RENDSBURG

Deutsche Gesellschaft der Hörgeschädigten - Selbsthilfe und Fachverbände e.V.

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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NETHERLANDS

Utrecht-HOUTEN

Stichting Hoormij / NVVS

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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POLAND

Wroclaw-WROCLAW

WSPOLNIE - Stowarzyszenie na Rzecz Dzieci z Rzadkimi Chorobami Genetycznymi i Ich Rodzin

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SERBIA

Serbia-BELGRADE

ZVONCICA - Childhood cancer parent organisation

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SPAIN

Madrid-MADRID

APASCIDE - Asociación Espańola de Familias de Personas con Sordoceguera

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SPAIN

Madrid-MADRID

ASOCIDE - Asociación de Sordociegos de Espańa

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SWEDEN

Stockholms läns landsting-STOCKHOLMS

Hörselskadades Riksförbund (HRF)

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SWEDEN

Stockholms läns landsting-SUNDBYBERG

Sveriges dövas riksförbund

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SWEDEN

Örebro läns landsting-ÖREBRO

Riksförbundet DHB

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Greater London-LONDON

GDUK- Genetic Disorders UK

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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Alliances and umbrella organisations

BELGIUM

OOST-VLAANDEREN

SINT-NIKLAAS

NF EUROPE - European Federation for Neurofibromatosis Associations

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Madrid

MADRID

FIAPAS - Confederación Espańola de Familias de Personas Sordas

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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