Orphanet: Search for a patient organisation

AUSTRALIA

New South Wales-FIVE DOCK

CTF - Children's Tumour Foundation, NF Australia Ltd (Neurofibromatosis)

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AUSTRIA

WIEN-WIEN

NF Kinder - Verein zur Förderung der Neurofibromatoseforschung Österreich

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BELGIUM

OOST-VLAANDEREN-GENT

AHOSA vzw - Anders HOren Samen Aanpakken

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BELGIUM

OOST-VLAANDEREN-SINT-NIKLAAS

NF Kontakt - Vereniging voor patiënten met neurofibromatose vzw

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CANADA

Ontario-TORONTO

ANAC - Acoustic Neuroma Association of Canada

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CANADA

Québec-MONTRÉAL

ANFQ - Association de la Neurofibromatose du Québec

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FINLAND

Finland-KEMI

Suomen Neurofibromatoosiyhdistys ry.

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FRANCE

HAUTS-DE-FRANCE-NEUVILLE-EN-FERRAIN

ANR - Association Neurofibromatoses et Recklinghausen

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FRANCE

ILE-DE-FRANCE-PARIS

Association France Acouphènes

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FRANCE

NOUVELLE AQUITAINE-ANAIS

LFCN - Ligue Française Contre les Neurofibromatoses

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GERMANY

Bayern-MÜNCHEN

Vereinigung Akustikus Neurinom e.V.

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GERMANY

Nordrhein-Westfalen-BONN

Bundesverband Neurofibromatose e.V.

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HUNGARY

Közép-Magyarország-BUDAPEST

NF Hungary

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IRELAND

County Dublin-DUBLIN

NF Ireland - Neurofibromatosis Association of Ireland

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ITALY

EMILIA ROMAGNA-BOLOGNA

Associazione "Io Ci Sono" ONLUS

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ITALY

EMILIA ROMAGNA-PARMA

ANF - Associazione Neuro Fibromatosi - ONLUS

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ITALY

LAZIO-ROMA

ANANas - Associazione Nazionale Aiuto per la Neurofibromatosi, amicizia e solidarietà

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ITALY

LAZIO-ROMA

NF2 Project APS

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ITALY

VENETO-PADOVA

LINFA OdV - Associazione Lottiamo Insieme contro la Neurofibromatosi - ONLUS

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NETHERLANDS

Zuid-Holland-DEN HAAG

NFVN - Neurofibromatose Vereniging Nederland

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NORWAY

Trøndelag-NORDDYRØY

Norsk Forening for Nevrofibromatose

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POLAND

Bydgoszcz-BYDGOSZCZ

Alba-Julia - Stowarzyszenie pacjentów z choroba Recklinghausena i innymi schorzeniami z grupy fakomatoz

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PORTUGAL

SUL-RAMADA

APNF - Associação Portuguesa de Neurofibromatose

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SPAIN

Madrid-MADRID

AESNF: Asociación Española de Neurofibromatosis

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SPAIN

Madrid-MADRID

AANF: Asociación de Afectados de Neurofibromatosis

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SWEDEN

Region Sörmland-ÄRLA

Kraniofaciala föreningen i Sverige

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SWEDEN

Region Västmanland-SALA

NF-förbundet i Sverige

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SWITZERLAND

Suisse Alémanique-SEEWEN

SNFV - Schweizerische Neurofibromatose - Vereinigung

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SWITZERLAND

Suisse Romande-GRAND-SACONNEX

GER-NF - Groupe d'Entraide Romand pour les Neurofibromatoses

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TURKEY

TURKEY-ISTANBUL

Neurofibromatosis (NF) Dernegi

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UNITED KINGDOM

East Sussex-WINCHELSEA BEACH

Childhood Tumour Trust

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UNITED KINGDOM

Greater London-LONDON

Nerve Tumours UK

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UNITED KINGDOM

Nottinghamshire-MANSFIELD

BANA - British Acoustic Neuroma Association

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FINLAND

Finland-TAMPERE

Suomen Kuurosokeat ry

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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CZECH REPUBLIC

Capital City Prague-PRAHA

CUN - Ceska unie neslysiscich

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FINLAND

Finland-HELSINKI

Kuuloliitto, Harvinaiset

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FRANCE

ILE-DE-FRANCE-PARIS

ALPC - Association nationale pour la promotion et le développement de la Langue française Parlée Complétée

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FRANCE

ILE-DE-FRANCE-PARIS

Fédération ANPEDA - Association Nationale des Parents d'Enfants Déficients Auditifs

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FRANCE

NOUVELLE AQUITAINE-BORDEAUX

EwenLife Rare Maladies Rares

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FRANCE

OUTRE-MER-SAINT-PIERRE

Association pour la Sensibilisation aux Maladies Rares, Orphelines et Auto-Immunes à Saint-Pierre-et-Miquelon

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GERMANY

Berlin-BERLIN

Deutsche Stiftung für junge Erwachsene mit Krebs

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GERMANY

Schleswig-Holstein-RENDSBURG

Deutsche Gesellschaft der Hörbehinderten - Selbsthilfe und Fachverbände e.V.

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NETHERLANDS

Utrecht-HOUTEN

Stichting Hoormij / NVVS

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POLAND

Wroclaw-WROCLAW

WSPOLNIE - Stowarzyszenie na Rzecz Dzieci z Rzadkimi Chorobami Genetycznymi i Ich Rodzin

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-MADRID

APASCIDE:Asociación Española de Familias de Personas con Sordoceguera

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SPAIN

Madrid-MADRID

ASOCIDE - Asociación de Sordociegos de España

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA: Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-BROTTBY

Willefonden

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SWEDEN

Region Stockholm-KISTA

Hörselskadades Riksförbund (HRF)

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SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

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SWEDEN

Region Stockholm-SUNDBYBERG

Sveriges dövas riksförbund

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SWEDEN

Region Örebro län-ÖREBRO

Riksförbundet DHB

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SERBIA

Serbia-BELGRADE

ZVONCICA - Childhood cancer parent organisation

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Förderverein für Kinder mit seltenen Krankheiten

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-EPSOM

Gene People

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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AUSTRIA

WIEN

VIENNA

NF Patients United

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BELGIUM

OOST-VLAANDEREN

SINT-NIKLAAS

NF EUROPE - European Federation for Neurofibromatosis Associations

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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FRANCE

ILE-DE-FRANCE

PARIS

Alliance Maladies Rares

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FRANCE

ILE-DE-FRANCE

PARIS

EURORDIS - Rare Diseases Europe

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FIAPAS: Confederación Española de Familias de Personas Sordas

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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