Orphanet: Search for a patient organisation

BELGIUM

OOST-VLAANDEREN-SINAAI

Sclero'ken V.Z.W

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GERMANY

Niedersachsen-OLDENBURG

Kollagenose/Sklero Selbsthilfegruppe

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ITALY

LAZIO-ROMA

AS.MA.RA Associazione Malattia Rara - Sclerodermia ed altre Malattie Rare "Elisabetta Giuffre" - ONLUS

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ITALY

LOMBARDIA-MILANO

Lega Italiana Sclerosi Sistemica - ONLUS

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ITALY

PUGLIA-ALTAMURA

A.MA.R.A.M. - Associazione Malattie Rare dell'Alta Murgia aps

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SPAIN

Baleares-PALMA DE MALLORCA

ABAIMAR: Associació Balear d'Infants amb Malalties Rares

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AUSTRALIA

Victoria-MELBOURNE

Scleroderma Australia Inc.

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BELGIUM

HAINAUT-SAINT MAUR

APSB - Association des Patients Sclérodermiques de Belgique A.S.B.L.

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BELGIUM

LIMBURG-MAASEIK

CIB-Liga - Liga voor Chronische Inflammatoire Bindweefselziekten VZW

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CANADA

Ontario-HAMILTON

SSO - Scleroderma Society of Ontario

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CANADA

Ontario-OTTAWA

SSC - Scleroderma Society of Canada

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CANADA

Québec-LONGUEUIL

Sclérodermie Québec

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CROATIA

CROATIA-ZAGREB

Hrvatska udruga oboljelih od sklerodermije

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FRANCE

BOURGOGNE-FRANCHE-COMTE-AUXERRE

ASF - Association des Sclérodermiques de France

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FRANCE

GRAND-EST-CUVRY

AFL+ - Association Française du Lupus et autres maladies auto-immunes

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FRANCE

OUTRE-MER-LE LAMENTIN

ALAG - Association Lupus Antilles-Guyane

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GERMANY

Baden-Württemberg-HEILBRONN

Sklerodermie Selbsthilfe e.V.

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GERMANY

Bayern-WALPERTSKIRCHEN

Scleroderma Liga e.V.

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GERMANY

Nordrhein-Westfalen-BONN

Deutsche Rheuma-Liga Bundesverband e.V.

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ITALY

ABRUZZO-SILVI MARINA

APAI - Associazione Patologie Autoimmuni Internazionale

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ITALY

EMILIA ROMAGNA-FORLÌ

AMAR Onlus - Associazione Malattie Autoimmuni Rare

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ITALY

LIGURIA-GENOVA

AMRI - Associazione per le Malattie Reumatiche Infantili

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ITALY

LOMBARDIA-MILANO

AILS - Associazione Italiana Lotta alla Sclerodermia - ONLUS

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ITALY

LOMBARDIA-MILANO

GILS - Gruppo Italiano per la Lotta alla Sclerodermia

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ITALY

TOSCANA-FIRENZE

A.M.A. Associazione Malattie Autoimmuni Mario Rossi

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NETHERLANDS

Utrecht-UTRECHT

NVLE - Nationale Vereniging voor Lupus, APS, Sclerodermie en MCTD

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PORTUGAL

NORTE-MATOSINHOS

ASSOCIAÇÃO PORTUGUESA DE DOENTES COM ESCLERODERMIA (APDE)

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SPAIN

Andalucía-ALMERÍA

ALAL - Asociación de Autoinmunes y Lupus de Almería

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SPAIN

Andalucía-MÁLAGA

ALMA: Asociación Lupus Málaga y Autoinmunes

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SPAIN

Andalucía-SEVILLA

ALUS: Asociación de Autoinmunes y Lúpicos de Sevilla

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SPAIN

Cataluña-BARCELONA

Lliga Reumatològica Catalana

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SPAIN

Madrid-LAS ROZAS

AEE - Asociación Española de Esclerodermia

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SWITZERLAND

Suisse Alémanique-BERN

SVS Schweizerische Vereinigung der Sklerodermie - ASS Association Suisse des Sclérodermiques - ASS Associazione Svizzera della Sclerodermia

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UNITED KINGDOM

Greater London-LONDON

Scleroderma & Raynaud's UK

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AUSTRIA

WIEN-WIEN

SHG Rheumalis - Selbsthilfegruppe für Eltern rheumakranker Kinder und Jugendlicher

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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CYPRUS

Cyprus-NICOSIA

Cyprus League Against Rheumatism

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GERMANY

Nordrhein-Westfalen-SENDENHORST

Bundesverband Kinderrheuma e.V.

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SPAIN

Comunidad Valenciana-VALENCIA

ASPANIJER - Asociación de Padres de Niños y Jóvenes con Enfermedades Reumáticas de la Comunidad Valenciana

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SPAIN

Galicia-EIRÍS DE ARRIBA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWITZERLAND

Suisse Romande-GENÈVE

Ligue Genevoise contre le Rhumatisme

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FINLAND

Finland-HELSINKI

Ihoyhdistys

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GERMANY

Baden-Württemberg-BIBERACH

Junge Nierenkranke Deutschland e.V.

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ITALY

VENETO-VENEZIA

AIFP - Associazione Italiana Febbri Periodiche

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AUSTRIA

TIROL-INNSBRUCK

Verein Nephro Tirol

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GERMANY

Rheinland-Pfalz-MAINZ

Bundesverband Niere e.V.

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IRELAND

County Dublin-DUBLIN

Irish Kidney Association

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NETHERLANDS

Noord-Holland-BUSSUM

NVN - Nierpatiënten Vereniging Nederland

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NORWAY

Østlandet-OSLO

LNT - Landsforeningen for Nyrepasienter og Transplanterte

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PORTUGAL

NORTE-PORTO

ADRNP - Associação de Doentes Renais do Norte de Portugal

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PORTUGAL

SUL-LISBOA

APIR - Associação Portuguesa de Insuficientes Renais

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SWEDEN

Region Stockholm-STOCKHOLM

Njurförbundet

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UNITED KINGDOM

Cambridgeshire-PETERBOROUGH

Kidney Research UK

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UNITED KINGDOM

Hampshire-ALTON

Kidney Care UK

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UNITED KINGDOM

Nottinghamshire-WORKSOP

NFK - National Kidney Federation

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CANADA

Québec

MONTRÉAL

The Scleroderma Patient-Centered Intervention Network

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DENMARK

Nordjylland

AALBORG

FESCA: Federation of european scleroderma associations

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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SPAIN

Madrid

MADRID

ALCER - Federación Nacional de Asociaciones para la Lucha Contra las Enfermedades del Riñón

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