x

Search for a patient organisation

* (*) mandatory field

Other search option(s)

48 Result(s)

Sort by

Member of a ERN =

Patient organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

More information

FINLAND

Finland-HELSINKI

Ihoyhdistys

More information

MOROCCO

Rabat-RABAT

AMDG - Association Marocaine des Génodermatoses

More information

SPAIN

Galicia-A CORUŃA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

More information

SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

More information

SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

More information

AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

More information

AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

More information

AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

More information

GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

More information

ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

More information
ERN

POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

More information

ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

More information

SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

More information

SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

More information

SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

More information

SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

More information

SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

More information

UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

More information

UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

More information

UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

More information

UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

More information

AUSTRALIA

New South Wales-PENRITH

IDFA - Immune Deficiencies Foundation Australia

More information

AUSTRIA

NIEDERÖSTERREICH-RIEDERBERG

Österreichische Selbsthilfegruppe für primäre Immundefekte (ÖSPID)

More information

DENMARK

Sjćlland-SKOVLUNDE

The Danish Association for Immunodeficiencies

More information

FINLAND

Finland-ESPOO

Immuunipuutospotilaiden yhdistys ry.

More information

FRANCE

GRAND-EST-TOUL

Association IRIS - Immunodéficience primitive, Recherche, Information, Soutien

More information

GERMANY

Bayern-SCHNAITSEE

dsai - Deutsche Selbsthilfe Angeborene Immundefekte e.V.

More information

GREECE

ATTIKI-ATHENS

Armonia - Association of Greek friends for paediatric immunology, primary immunodeficiencies (Harmony)

More information

ITALY

LAZIO-ROMA

PRO IDPI - Pro ImmunoDeficienze Primitive Italiane

More information

ITALY

LOMBARDIA-BRESCIA

AIP odv - Associazione Immunodeficienze Primitive

More information

MOROCCO

Casablanca-CASABLANCA

HAJAR - Association de soutien aux patients atteints de déficits immunitaires primitifs

More information

NETHERLANDS

Noord-Brabant-GEFFEN

SAS - Stichting voor Afweerstoornissen

More information

POLAND

Lodz-LODZ

Immunoprotect - Stowarzyszenie na rzecz osob z niedoborami odpornosci

More information

PORTUGAL

NORTE-VILA DO CONDE

A.P.D.I.P - Associaçăo Portuguesa de Doentes com Imunodeficięncia Primária

More information

SPAIN

Cataluńa-BARCELONA

Fundación "BARCELONA PID FOUNDATION"

More information

SPAIN

Madrid-MADRID

AEDIP - Asociación Espańola de Déficits Inmunitarios Primarios

More information

SWEDEN

Region Örebro län-ÖREBRO

Primär immunbristorganisationen

More information

SWITZERLAND

Suisse Alémanique-ZÜRICH

SVAI Schweizerische Vereinigung für Angeborene Immunodefekte - Association Suisse pour Immuno-Déficience Primitive - Associazione Svizzera per Immunodeficienze Primitive

More information

UNITED KINGDOM

Cornwall-DOWNDERRY

IPOPI - International Patient Organisation for Primary Immunodeficiencies

More information

UNITED KINGDOM

Essex-COLCHESTER

PID UK - Primary Immunodeficiency UK

More information

Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

More information
BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

More information
SPAIN

Cataluńa

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

More information
SPAIN

Madrid

MADRID

FEDER - Federación Espańola de Enfermedades Raras

More information
SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

More information
UNITED KINGDOM

Cornwall

DOWNDERRY

IPOPI - International Patient Organisation for Primary Immunodeficiencies Network

More information