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Patient organisations

AUSTRALIA

New South Wales-SYDNEY

AMDF - Australian Mitochondrial Disease Foundation

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CANADA

Alberta-CALGARY

MitoCanada Foundation

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DENMARK

Sjćlland-BROENSHOEJ

Danish Mitochondrial Society

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FINLAND

Finland-MASKU

Mitokondrioyhdistys ry - Mitokondrioförening rf

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FRANCE

NOUVELLE AQUITAINE-BORDEAUX

AMMi - Association contre les Maladies Mitochondriales

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ISRAEL

ISRAEL-KFAR VITKIN

Israel Mitochondrial Diseases Support Group Ori Levi Foundation

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ITALY

LAZIO-ROMA

MITOCON Insieme per lo Studio e la Cura delle Malattie Mitocondriali

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SPAIN

Castilla - León-LEÓN

ALER - Asociación Leonesa de Enfermedades Raras y sin diagnóstico

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SPAIN

Madrid-MADRID

AEPMI - Asociación de Enfermos de Patologías Mitocondriales

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SWEDEN

Region Halland-KUNGSBACKA

Svenska Sköldkörtelföreningen

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SWITZERLAND

Suisse Alémanique-BERN

Wir Mitos - erwachsene Patienten mit ererbter mitochondrialer Erkrankung

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UNITED KINGDOM

Cheshire-NORTHWICH

CMDN - Children's Mitochondrial Disease Network

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UNITED KINGDOM

Surrey-WARLINGHAM

The Lily Foundation (mitochondrial disease support)

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NORWAY

Řstlandet-VETTRE

hypoPARA Norge

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SWEDEN

Region Skĺne-LUND

Svensk förening för Hypoparatyreoidism

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SPAIN

Galicia-EIRÍS DE ARRIBA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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AUSTRALIA

New South Wales-PENRITH

IDFA - Immune Deficiencies Foundation Australia

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AUSTRIA

NIEDERÖSTERREICH-RIEDERBERG

Österreichische Selbsthilfegruppe für primäre Immundefekte (ÖSPID)

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BELGIUM

HAINAUT-BASČCLES

BOPPI - Organisation belge des patients atteints d'un Déficit Immunitaire Primaire A.S.B.L.

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DENMARK

Sjćlland-SKOVLUNDE

The Danish Association for Immunodeficiencies

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FINLAND

Finland-ESPOO

Immuunipuutospotilaiden yhdistys ry.

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FRANCE

GRAND-EST-TOUL

Association IRIS - Immunodéficience primitive, Recherche, Information, Soutien

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GERMANY

Bayern-SCHNAITSEE

dsai - Deutsche Selbsthilfe Angeborene Immundefekte e.V.

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GERMANY

Berlin-BERLIN

VfASS - Verein für angeborene Stoffwechselstörungen e.V.

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GREECE

ATTIKI-ATHENS

Armonia - Association of Greek friends for paediatric immunology, primary immunodeficiencies (Harmony)

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ITALY

LAZIO-ROMA

PRO IDPI - Pro ImmunoDeficienze Primitive Italiane

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ITALY

LOMBARDIA-BRESCIA

AIP odv - Associazione Immunodeficienze Primitive

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MOROCCO

Casablanca-CASABLANCA

HAJAR - Association de soutien aux patients atteints de déficits immunitaires primitifs

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NETHERLANDS

Noord-Brabant-GEFFEN

SAS - Stichting voor Afweerstoornissen

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POLAND

Lodz-LODZ

Immunoprotect - Stowarzyszenie na rzecz osob z niedoborami odpornosci

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PORTUGAL

NORTE-VILA DO CONDE

A.P.D.I.P - Associaçăo Portuguesa de Doentes com Imunodeficięncia Primária

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SPAIN

Cataluńa-BARCELONA

Fundación "BARCELONA PID FOUNDATION"

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SPAIN

Madrid-MADRID

AEDIP - Asociación Espańola de Déficits Inmunitarios Primarios

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SWEDEN

Region Örebro län-ÖREBRO

Primär immunbristorganisationen

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SWITZERLAND

Suisse Alémanique-ZÜRICH

SVAI Schweizerische Vereinigung für Angeborene Immunodefekte - Association Suisse pour Immuno-Déficience Primitive - Associazione Svizzera per Immunodeficienze Primitive

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UNITED KINGDOM

Cornwall-DOWNDERRY

IPOPI - International Patient Organisation for Primary Immunodeficiencies

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UNITED KINGDOM

Essex-COLCHESTER

PID UK - Primary Immunodeficiency UK

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BELGIUM

ANTWERPEN-BEVEREN

BOKS - Belgische Organisatie voor Kinderen en Volwassenen met een Stofwisselingsziekte V.Z.W. - Association belge pour les enfants et adultes atteints d'une maladie métabolique A.S.B.L.

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CYPRUS

Cyprus-LIMASSOL

Association of Patients with Inherited Metabolic Diseases "ASPIDA ZOIS"

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CZECH REPUBLIC

Capital City Prague-PRAHA

NS PKU - Narodni sdruzeni PKU a jinych DMP

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CZECH REPUBLIC

Vysocina-HAVLICKUV BROD

METODEJ

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FRANCE

AUVERGNE-RHONE-ALPES-SAINTE-FOY-LES-LYON

AdéTire - A Tire d'Aile - Soutien moral et financier aux familles touchées par une maladie héréditaire du métabolisme

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FRANCE

ILE-DE-FRANCE-CHATEAU LANDON

Association Les maux d'enfants

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FRANCE

NOUVELLE AQUITAINE-CHAMPNIERS

Association Les Enfants du Jardin

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GERMANY

Baden-Württemberg-FREIBURG

SPATZ - Selbsthilfe für Kinder mit chronischer Stoffwechsel-, Hormon- oder Zuckererkrankung e.V.

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GREECE

ATTIKI-ATHENS

PASIFASMEN - Hellenic Association of Friends and Patients with rare metabolic and endocrinologic diseases

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ITALY

LOMBARDIA-MILANO

APMMC - Associazione Prevenzione Malattie Metaboliche Congenite

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ITALY

LOMBARDIA-MONZA

ABM - Associazione per la Tutela del Bambino con Malattie Metaboliche

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ITALY

PIEMONTE-TORINO

META - Associazione Malattie Metaboliche Ereditarie del Piemonte e Valle d'Aosta

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ITALY

SICILIA-PALERMO

IRIS - Associazione Siciliana Malattie Ereditarie Metaboliche Rare

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ITALY

TOSCANA-FIRENZE

AMMeC - Associazione Malattie Metaboliche Congenite - ONLUS

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ITALY

VENETO-PADOVA

AISMME - Associazione Italiana Sostegno Malattie Metaboliche Ereditarie APS

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ITALY

VENETO-PONTE SAN NICOLŇ

COMETA ASMME - Associazione Studio Malattie Metaboliche Ereditarie - ONLUS

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NETHERLANDS

Overijssel-ZWOLLE

VKS - Volwassenen, Kinderen en Stofwisselingsziekten

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PORTUGAL

NORTE-PORTO

APOFEN - Associaçăo Portuguesa de Fenilcetonúria e Outras Doenças Metabólicas

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PORTUGAL

SUL-SEIXAL

Associaçăo Portuguesa do Síndrome CDG e outras doenças metabólicas raras

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SPAIN

Madrid-MADRID

Federación Espańola de Enfermedades Metabólicas Hereditarias

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UNITED KINGDOM

Cheshire-CHESTER

Metabolic Support UK

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Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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CANADA

Québec

MONTREAL

Network of Rare Blood Disorder Organizations

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SPAIN

Cataluńa

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Espańola de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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UNITED KINGDOM

Cornwall

DOWNDERRY

IPOPI - International Patient Organisation for Primary Immunodeficiencies Network

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