Orphanet: Search for a patient organisation

CANADA

Ontario-WHITBY

Canadian Chiari Association

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FINLAND

Finland-MASKU

Suomen Chiari- ja syringomyeliayhdistys ry- Finlands Chiari- och syringomyeliförening rf

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FRANCE

ILE-DE-FRANCE-GENNEVILLIERS

A.M.I.S. Association Maladies Inconnues Solidaires - Clair de lune pour les M.O.M. (Maladies Orphelines Méconnues)

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FRANCE

PAYS DE LA LOIRE-TREILLIERES

APAISER S&C : Association Pour Aider, Informer, Soutenir Etudes & Recherches pour la Syringomyélie & le Chiari

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GERMANY

Bayern-HOLZKIRCHEN

Syringomyelie Hilfe

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GERMANY

Nordrhein-Westfalen-JÜCHEN

DSCM - Deutsche Syringomyelie und Chiari Malformation e.V.

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IRELAND

County Meath-SLANE

Syringomyelia Chiari Ireland Group

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ITALY

PIEMONTE-VINOVO

AISMAC - Associazione Italiana Siringomielia e Arnold Chiari

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ITALY

PUGLIA-ALTAMURA

A.MA.R.A.M. - Associazione Malattie Rare dell'Alta Murgia aps

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NETHERLANDS

Zuid-Holland-LEIDSCHENDAM

Syringomyelie Patiënten Vereniging

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SPAIN

Aragón-ZARAGOZA

AEMC: Asociación Española de Afectados por Malformaciones Craneo-cervicales

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SPAIN

Castilla - León-LEÓN

ALER - Asociación Leonesa de Enfermedades Raras y sin diagnóstico

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UNITED KINGDOM

Greater London-WEB-BASED ONLY

ACT - The Ann Conroy Trust

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AUSTRIA

TIROL-INNSBRUCK

Spina bifida & Hydrocephalus ARGE Tirol

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AUSTRIA

WIEN-WIEN

Spina Bifida & Hydrocephalus Österreich

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BELGIUM

LIEGE-DISON

ASBBF - Association Spina Bifida Belge Francophone ASBL

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BELGIUM

OOST-VLAANDEREN-EREMBODEGEM

VSH - Vereniging voor Spina Bifida en Hydrocephalus VZW

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FRANCE

ILE-DE-FRANCE-LE-PLESSIS-TREVISE

ASBH - Association Nationale Spina Bifida et Handicaps associés

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GERMANY

Bayern-FÜRTH

SHG SYRINX-Nordbayern

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GERMANY

Hessen-DARMSTADT

Syringomyelie Selbsthilfegruppe-Hessen-Darmstadt e.V.

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GERMANY

Nordrhein-Westfalen-DORTMUND

ASBH - Arbeitsgemeinschaft Spina Bifida und Hydrocephalus e.V.

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GERMANY

Saarland-SCHIFFWEILER

Syringomyelie Selbsthilfegruppe Saarland

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IRELAND

County Dublin-CLONDALKIN

Spina Bifida Hydrocephalus Ireland

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PORTUGAL

SUL-LISBOA

ASBIHP - Associação Spina Bifida e Hidrocefalia de Portugal

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AUSTRALIA

Queensland-WOOLLOONGABBA

SBH Queensland Inc

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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POLAND

Wroclaw-WROCLAW

WSPOLNIE - Stowarzyszenie na Rzecz Dzieci z Rzadkimi Chorobami Genetycznymi i Ich Rodzin

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-BROTTBY

Willefonden

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SWEDEN

Region Stockholm-LIDINGÖ

Föräldraföreningen Anonymous

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SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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SPAIN

Cataluña

BARCELONA

FEMACPA: Federación Española de Malformación de Chiari y Patologías Asociadas

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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