Orphanet: Search for a patient organisation

SWEDEN

Region Halland-KUNGSBACKA

Svenska Sköldkörtelföreningen

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FRANCE

AUVERGNE-RHONE-ALPES-LYON

Association GÊNIRIS - Aniridie et pathologies rares de l'iris

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FINLAND

Finland-TAMPERE

Aivolisäke-potilasyhdistys Sella ry

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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CANADA

Ontario-TORONTO

Little People of Ontario

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CANADA

Québec-MONTRÉAL

AQPPT - Association québecoise des personnes de petite taille

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FRANCE

ILE-DE-FRANCE-ASNIERES

AG - Association Grandir : Association de parents d'enfants ayant des problèmes de croissance

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GERMANY

Baden-Württemberg-FREIBURG

SPATZ - Selbsthilfe für Kinder mit chronischer Stoffwechsel-, Hormon- oder Zuckererkrankung e.V.

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ITALY

VENETO-VICENZA

AFaDOC - Associazione Famiglie di Soggetti con Deficit dell'Ormone della Crescita e altre Patologie

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NETHERLANDS

Noord-Holland-HOOFDDORP

BVKM - Belangenvereniging van Kleine Mensen

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POLAND

Wroclaw-WROCLAW

WSPOLNIE - Stowarzyszenie na Rzecz Dzieci z Rzadkimi Chorobami Genetycznymi i Ich Rodzin

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-BROTTBY

Willefonden

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SWEDEN

Region Stockholm-LIDINGÖ

Föräldraföreningen Anonymous

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SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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CANADA

Ontario-TORONTO

Foundation Fighting Blindness - La fondation qui lutte contre la cécité

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FINLAND

Finland-HELSINKI

Näkövammaisten liitto ry

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FRANCE

HAUTS-DE-FRANCE-MARCQ EN BAROEUL

ANPEA - Association Nationale des Parents d'Enfants Aveugles

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FRANCE

ILE-DE-FRANCE-PARIS

AVH - Association Valentin Haüy pour le bien des aveugles et des malvoyants

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FRANCE

OCCITANIE-BOURRET

AFMT - Association Française des Malades de la Thyroïde

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FRANCE

OCCITANIE-COLOMIERS

Association Retina France

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FRANCE

OCCITANIE-LÉGUEVIN

Association Vivre sans thyroïde

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GERMANY

Nordrhein-Westfalen-BONN

SLD - Schilddrüsen-Liga Deutschland e.V.

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GERMANY

Nordrhein-Westfalen-DÜREN

BEBSK - Bundesvereinigung Eltern blinder und sehbehinderter Kinder e.V.

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GERMANY

Nordrhein-Westfalen-DÜSSELDORF

BFS - Bund zur Förderung Sehbehinderter e.V.

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GREECE

ATTIKI-ATHENS

PASIFASMEN - Hellenic Association of Friends and Patients with rare metabolic and endocrinologic diseases

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GREECE

ATTIKI-ATHENS

HRS - Hellenic Retina Society

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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IRELAND

County Dublin-DUBLIN

Fighting Blindness

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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LUXEMBOURG

LUXEMBOURG-CANACH

ADV - Association pour déficients visuels

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NETHERLANDS

Utrecht-DOORN

SON - Schildklier Organisatie Nederland

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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PORTUGAL

SUL-LISBOA

ARP - Associação de Retinopatia de Portugal

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SPAIN

Andalucía-COÍN

ADISEN: Asociación Nacional de Addison y Otras Enfermedades Endocrinas

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SPAIN

Madrid-MADRID

Asociación Acción Visión España

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SPAIN

Madrid-MADRID

APASCIDE - Asociación Española de Familias de Personas con Sordoceguera

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Hampshire-BASINGSTOKE

APS Support UK

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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