Orphanet: Search for a patient organisation
x

Search for a patient organisation

* (*) mandatory field

Other search option(s)

76 Result(s)

Sort by

Member of a ERN =

Patient organisations

FRANCE

ILE-DE-FRANCE-LEVALLOIS-PERRET

Xtraordinaire - Association Nationale des Retards Mentaux liés au chromosome X

More information

SWITZERLAND

Suisse Romande-ARZIER

Xtraordinaire - Association Nationale des Retards Mentaux liés au chromosome X - Antenne Suisse.

More information

FRANCE

AUVERGNE-RHONE-ALPES-CLERMONT-FERRRAND

Association "Les P'tits CDG"

More information

GERMANY

Bayern-ANSBACH

Bundesverein CDG-Syndrom e.V.

More information

PORTUGAL

CENTRO-ESTORIL

CERCICA - Cooperativa de Educação e Reabilitação de Cidadão Inadaptados de Cascais

More information

PORTUGAL

NORTE-AMARANTE

CERCIMARANTE - Cooperativa de Educação e Reabilitação de Crianças Inadaptadas de Amarante

More information

PORTUGAL

NORTE-S. JOÃO DA MADEIRA

Cooperativa de Educação e Reabilitação de Crianças Inadaptadas S. João da Madeira

More information

PORTUGAL

NORTE-SANTA MARIA DA FEIRA

CERCIFEIRA - Cooperativa de Educação e Reabilitação de Crianças Inadaptadas de Sta. Maria da Feira

More information

PORTUGAL

NORTE-VILA NOVA DE FAMALICÃO

AFPAD - Associação Famalicence de Prevenção e Apoio à Deficiência

More information

PORTUGAL

SUL-ABRANTES

Centro de Recuperação Infantil de Abrantes

More information

PORTUGAL

SUL-FARO

AAPACDM - Associação Algarvia de Pais e Amigos de Crianças Diminuídas Mentais

More information

PORTUGAL

SUL-LISBOA

CEDEMA - Associação de Pais e Amigos dos Deficientes Mentais Adultos

More information

PORTUGAL

SUL-LISBOA

CERCILISBOA - Programa Comunitário de Intervenção Precoce

More information

PORTUGAL

SUL-LISBOA

LINADEM - Liga para o Estudo e Apoio à Inserção Social

More information

SPAIN

Castilla - León-VALLADOLID

AESCDG - Asociación Española del Síndrome CDG

More information

SWEDEN

Region Gotland-HEMSE

Svenska CDG-föreningen

More information

BELGIUM

ANTWERPEN-BEVEREN

BOKS - Belgische Organisatie voor Kinderen en Volwassenen met een Stofwisselingsziekte V.Z.W. - Association belge pour les enfants et adultes atteints d'une maladie métabolique A.S.B.L.

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

STAN - Trefpunt Verstandelijke Handicap V.Z.W.

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-EVERE

INCLUSION A.S.B.L.

More information

CYPRUS

Cyprus-LIMASSOL

Association of Patients with Inherited Metabolic Diseases "ASPIDA ZOIS"

More information

CYPRUS

Cyprus-LIMASSOL

Saint Stylianos Foundation

More information

CYPRUS

Cyprus-NICOSIA

CSJF - Christos Stelios Ioannou Foundation

More information

CZECH REPUBLIC

Capital City Prague-PRAHA

NS PKU - Narodni sdruzeni PKU a jinych DMP

More information

CZECH REPUBLIC

Vysocina-HAVLICKUV BROD

METODEJ

More information

FINLAND

Finland-TAMPERE

Kehitysvammaisten Tukiliitto

More information

FRANCE

AUVERGNE-RHONE-ALPES-SAINTE-FOY-LES-LYON

AdéTire - A Tire d'Aile - Soutien moral et financier aux familles touchées par une maladie héréditaire du métabolisme

More information

FRANCE

ILE-DE-FRANCE-CHATEAU LANDON

Association Les maux d'enfants

More information

FRANCE

ILE-DE-FRANCE-PARIS

UNAPEI - Union Nationale de parents, de personnes handicapées mentales et de leurs amis

More information

FRANCE

NOUVELLE AQUITAINE-CHAMPNIERS

Association Les Enfants du Jardin

More information

GERMANY

Baden-Württemberg-FREIBURG

SPATZ - Selbsthilfe für Kinder mit chronischer Stoffwechsel-, Hormon- oder Zuckererkrankung e.V.

More information

GREECE

ATTIKI-ATHENS

PASIFASMEN - Hellenic Association of Friends and Patients with rare metabolic and endocrinologic diseases

More information

ITALY

LOMBARDIA-MILANO

APMMC - Associazione Prevenzione Malattie Metaboliche Congenite

More information

ITALY

LOMBARDIA-MONZA

ABM - Associazione per la Tutela del Bambino con Malattie Metaboliche

More information

ITALY

PIEMONTE-TORINO

META - Associazione Malattie Metaboliche Ereditarie del Piemonte e Valle d'Aosta

More information

ITALY

SICILIA-PALERMO

IRIS - Associazione Siciliana Malattie Ereditarie Metaboliche Rare

More information

ITALY

TOSCANA-FIRENZE

AMMeC - Associazione Malattie Metaboliche Congenite - ONLUS

More information

ITALY

VENETO-PADOVA

AISMME - Associazione Italiana Sostegno Malattie Metaboliche Ereditarie APS

More information

ITALY

VENETO-PONTE SAN NICOLÒ

COMETA ASMME - Associazione Studio Malattie Metaboliche Ereditarie - ONLUS

More information

NETHERLANDS

Overijssel-ZWOLLE

VKS - Volwassenen, Kinderen en Stofwisselingsziekten

More information

POLAND

Warszawa-WARSAW

Polskie Stowarzyszenie na Rzecz Osob z Uposledzeniem Umyslowym

More information

POLAND

Wroclaw-WROCLAW

WSPOLNIE - Stowarzyszenie na Rzecz Dzieci z Rzadkimi Chorobami Genetycznymi i Ich Rodzin

More information

PORTUGAL

NORTE-PORTO

APOFEN - Associação Portuguesa de Fenilcetonúria e Outras Doenças Metabólicas

More information

PORTUGAL

SUL-LISBOA

APPDA - Lisboa - Associação Portuguesa para as Perturbações do Desenvolvimento e Autismo - Lisboa

More information

PORTUGAL

SUL-LISBOA

Raríssimas - Associação Nacional de Deficiências Mentais e Raras

More information

PORTUGAL

SUL-SEIXAL

Associação Portuguesa do Síndrome CDG e outras doenças metabólicas raras

More information

ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

More information

SPAIN

Galicia-EIRÍS DE ARRIBA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

More information

SPAIN

Madrid-MADRID

Federación Española de Enfermedades Metabólicas Hereditarias

More information

SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

More information

SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

More information

SWEDEN

Region Stockholm-SOLNA

Riksförbundet för barn, unga och vuxna med utvecklingsstörning, FUB

More information

SWITZERLAND

Suisse Alémanique-BERN

INSIEME Schweiz Suisse Svizzera

More information

UNITED KINGDOM

Cheshire-CHESTER

Metabolic Support UK

More information

AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

More information

AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

More information

AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

More information

GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

More information

POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

More information

ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

More information

SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

More information

SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

More information

SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

More information

SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

More information

SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

More information

UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

More information

UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

More information

UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

More information

UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

More information

UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

More information

Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

More information
BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

More information
SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

More information
SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

More information
SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

More information