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Patient organisations

CANADA

Ontario-TORONTO

CDKL5 Canada

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FRANCE

HAUTS-DE-FRANCE-AGNETZ

AFSR - Association Française du Syndrome de Rett

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FRANCE

ILE-DE-FRANCE-LONGPONT-SUR-ORGE

CDKL5 Alliance Francophone

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GERMANY

Rheinland-Pfalz-MAINZ

CDKL5 Deutschland e.V.

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ITALY

EMILIA ROMAGNA-CASTEL SAN PIETRO TERME

Associazione CDKL5

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ITALY

LOMBARDIA-LEGNANO

CDKL5 Insieme verso la cura Onlus

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NETHERLANDS

Noord-Brabant-WAALWIJK

Stichting CDKL-5 Nederland

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SWITZERLAND

Suisse Alémanique-EFFRETIKON

CDKL5 Vereinigung Schweiz - Association CDKL5 Suisse - Associazione CDKL5 Svizzera

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AUSTRIA

WIEN-WIEN

Dachverband Österreichische Autistenhilfe

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BELGIUM

OOST-VLAANDEREN-GENT

VVA - Vlaamse Vereniging Autisme V.Z.W.

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CYPRUS

Cyprus-LIMASSOL

Cyprus Autism Association

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CYPRUS

Cyprus-LIMASSOL

TF - Theotokos Foundation

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CZECH REPUBLIC

Capital City Prague-PRAHA

APLA -Asociace pomahajici lidem s autismem - APLA Praha, Stredni Cechy, o.s.

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CZECH REPUBLIC

Hradec Kralove-HRADEC KRALOVE

APLA - Asociace pomahajici lidem s autismem Vychodni Cechy

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ESTONIA

Tartu-TARTU

Eesti Autismiühing

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FRANCE

ILE-DE-FRANCE-PARIS

Fédération Française Sésame Autisme

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FRANCE

PROVENCE-ALPES-COTE D'AZUR-LA ROQUETTE-SUR-SIAGNE

Autisme France

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ITALY

FRIULI VENEZIA GIULIA-PORDENONE

Fondazione Bambini e Autismo - ONLUS

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ITALY

LAZIO-ROMA

ANGSA - Associazione Nazionale Genitori Soggetti Autistici

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ITALY

PUGLIA-TARANTO

CUAMJ - Centro Universo Autismo Meridionale Jonico

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NETHERLANDS

Utrecht-DE BILT

NVA - Nederlandse Vereniging voor Autisme

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POLAND

Warszawa-WARSAW

Fundacja Synapsis

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PORTUGAL

CENTRO-COIMBRA

APPDA - Coimbra - Associação Portuguesa para as Perturbações do Desenvolvimento e Autismo, Coimbra

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PORTUGAL

CENTRO-ESTORIL

CERCICA - Cooperativa de Educação e Reabilitação de Cidadão Inadaptados de Cascais

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PORTUGAL

CENTRO-VISEU

APPDA - Viseu - Associação Portuguesa para as Perturbações do Desenvolvimento e Autismo - Viseu

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PORTUGAL

NORTE-AMARANTE

CERCIMARANTE - Cooperativa de Educação e Reabilitação de Crianças Inadaptadas de Amarante

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PORTUGAL

NORTE-PALMEIRA BRG

AIA - Associação para a inclusão e Apoio ao Autista

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PORTUGAL

NORTE-S. JOÃO DA MADEIRA

Cooperativa de Educação e Reabilitação de Crianças Inadaptadas S. João da Madeira

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PORTUGAL

NORTE-SANTA MARIA DA FEIRA

CERCIFEIRA - Cooperativa de Educação e Reabilitação de Crianças Inadaptadas de Sta. Maria da Feira

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PORTUGAL

NORTE-VILA NOVA DE FAMALICÃO

AFPAD - Associação Famalicence de Prevenção e Apoio à Deficiência

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PORTUGAL

NORTE-VILA NOVA DE GAIA

APPDA - Norte - Associação Portuguesa para as Perturbações do Desenvolvimento e Autismo - Norte

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PORTUGAL

SUL-ABRANTES

Centro de Recuperação Infantil de Abrantes

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PORTUGAL

SUL-FARO

AAPACDM - Associação Algarvia de Pais e Amigos de Crianças Diminuídas Mentais

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PORTUGAL

SUL-LISBOA

Federação Portuguesa de Autismo (membro da Autism Europe)

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PORTUGAL

SUL-LISBOA

CEDEMA - Associação de Pais e Amigos dos Deficientes Mentais Adultos

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PORTUGAL

SUL-LISBOA

CERCILISBOA - Programa Comunitário de Intervenção Precoce

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PORTUGAL

SUL-LISBOA

LINADEM - Liga para o Estudo e Apoio à Inserção Social

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PORTUGAL

SUL-VIANA DO CASTELO

AMA - Associação de Amigos do Autismo

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ROMANIA

ARGES-CURTEA DE ARGES

HAND-ROM - The Humanitarian Foundation Orientation and Integration Social HAND-ROM

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ROMANIA

CALARAS-CALARASI

Asociatia "Noi Orizonturi" Calarasi

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SPAIN

Madrid-MADRID

Confederación Autismo España

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SWEDEN

Region Stockholm-STOCKHOLM

Autism- och Aspergerförbundet

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SWITZERLAND

Suisse Alémanique-BERN

INSIEME Schweiz Suisse Svizzera

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SWITZERLAND

Suisse Alémanique-BIEL-BIENNE

as - Autismus Schweiz, Elternverein - Autisme Suisse, Association de parents - Autismo Svizzera, Associazione di genitori

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SWITZERLAND

Suisse Romande-LAUSANNE

Autisme Suisse Romande

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AUSTRIA

NIEDERÖSTERREICH-HEILIGENKREUZ

Epilepsie Dachverband Österreich

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

STAN - Trefpunt Verstandelijke Handicap V.Z.W.

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES

LFBE - La Ligue francophone belge contre l'Epilepsie ASBL

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-EVERE

INCLUSION A.S.B.L.

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BELGIUM

OOST-VLAANDEREN-EVERGEM

Epilepsie-contactgroep IKAROS V.Z.W. [Contactgroep Oost-Vlaanderen]

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BELGIUM

OOST-VLAANDEREN-GENT

Epilepsie Liga V.Z.W.

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BELGIUM

VLAAMS BRABANT-DILBEEK

Steunpunt Kinderepilepsie V.Z.W.

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BELGIUM

WEST-VLAANDEREN-KORTRIJK

URANUS - Contactgroep voor mensen met epilepsie [Contactgroep West-Vlaanderen]

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CANADA

Terre-Neuve-et-Labrador-ST. JOHN'S

CEA - Canadian Epilepsy Alliance

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CYPRUS

Cyprus-LIMASSOL

Saint Stylianos Foundation

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CYPRUS

Cyprus-NICOSIA

CSJF - Christos Stelios Ioannou Foundation

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FINLAND

Finland-HELSINKI

Epilepsialiitto - Epilepsiförbundet ry

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FINLAND

Finland-TAMPERE

Kehitysvammaisten Tukiliitto

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FRANCE

ILE-DE-FRANCE-PARIS

Epilepsie France

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FRANCE

ILE-DE-FRANCE-PARIS

FFRE - Fondation Française pour la Recherche sur l'Epilepsie

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FRANCE

ILE-DE-FRANCE-PARIS

UNAPEI - Union Nationale de parents, de personnes handicapées mentales et de leurs amis

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GERMANY

Berlin-BERLIN

Deutsche Epilepsievereinigung e.V.

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GERMANY

Hamburg-HAMBURG

Epilepsie Selbsthilfegruppe Hamburg-Mitte

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GERMANY

Nordrhein-Westfalen-KÖLN

Landesverband für Epilepsie Selbsthilfe NRW e.V.

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GERMANY

Nordrhein-Westfalen-WUPPERTAL

E.B.E. - Epilepsie Bundes-Elternverband e.V.

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IRELAND

County Dublin-DUBLIN

Epilepsy Ireland

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ITALY

EMILIA ROMAGNA-BOLOGNA

AEER - Associazione Epilessia Emilia Romagna OdV

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ITALY

LOMBARDIA-MILANO

AICE - Associazione Italiana Contro l'Epilessia ONLUS

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ITALY

LOMBARDIA-MILANO

FIE - Federazione Italiana Epilessie

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MOROCCO

Marrakech-MARRAKECH

AMCEP - Association marocaine contre l'épilepsie

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NETHERLANDS

Utrecht-HOUTEN

EVN - Epilepsie Vereniging Nederland

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NORWAY

Østlandet-OSLO

Norsk Epilepsiforbund

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POLAND

Warszawa-WARSAW

Polskie Stowarzyszenie na Rzecz Dzieci Chorych na Padaczke

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POLAND

Warszawa-WARSAW

Polskie Stowarzyszenie na Rzecz Osob z Uposledzeniem Umyslowym

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PORTUGAL

SUL-LISBOA

APPDA - Lisboa - Associação Portuguesa para as Perturbações do Desenvolvimento e Autismo - Lisboa

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PORTUGAL

SUL-LISBOA

Raríssimas - Associação Nacional de Deficiências Mentais e Raras

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SWEDEN

Region Stockholm-SOLNA

Riksförbundet för barn, unga och vuxna med utvecklingsstörning, FUB

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SWEDEN

Region Stockholm-SUNDBYBERG

Svenska epilepsiförbundet

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Schweizerischer Verein für Epilepsie - Association Suisse de l'Epilepsie - Associazione Svizzera per l'Epilessia

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SWITZERLAND

Suisse Romande-LAUSANNE

Fondation Eclipse - Epilepsie Suisse romande

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UNITED KINGDOM

Buckinghamshire-GERRARDS CROSS

Epilepsy society

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UNITED KINGDOM

Kent-KENT

Epilepsy HERE - Help, Education and Research for Epilepsy

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UNITED KINGDOM

Oxfordshire-WANTAGE

SUDEP Action - making every epilepsy death count

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UNITED KINGDOM

West Yorkshire-LEEDS

Epilepsy Action

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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CYPRUS

Cyprus-NICOSIA

Cyprus Society for the Protection of Spastic and Handicaped Children

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SPAIN

Galicia-EIRÍS DE ARRIBA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

Autism-Europe

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FRANCE

AUVERGNE-RHONE-ALPES

SAINT EGRÈVE

EFAPPE : Fédération des Associations en faveur des Personnes handicaPées par des Épilepsies Sévères

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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