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Patient organisations

BELGIUM

ANTWERPEN-TURNHOUT

vzw Postpolio België

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES

AccessAndGo-ABP asbl

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CANADA

Québec-MONTRÉAL

Association Polio Québec

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FRANCE

ILE-DE-FRANCE-PARIS

ADEP - Association de Défense et d'Entraide des Personnes Handicapées

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FRANCE

NOUVELLE AQUITAINE-PUILBOREAU

GLIP - Groupe de Liaison et d'Information Post-Polio

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GERMANY

Hessen-POHLHEIM

Polio Initiative Europa e.V.

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GERMANY

Sachsen-THERMALBAD WIESENBAD

BV Polio - Bundesverband Poliomyelitis e.V.

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IRELAND

County Dublin-DUBLIN

Polio Survivors Ireland

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SPAIN

País Vasco-EIBAR

EPE: Euskadiko Polio Elkartea

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SWITZERLAND

Suisse Romande-FRIBOURG

Communauté suisse d'Intéręts du syndrome Post-Polio (CISP) - Schweizerische Interessengemeinschaft für das Post-Polio Syndrom (SIPS)

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NETHERLANDS

Utrecht-BAARN

Spierziekten Nederland

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UNITED KINGDOM

Northamptonshire-NORTHAMPTON

MND Association - Motor Neurone Disease Association

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UNITED KINGDOM

Strathclyde-GLASGOW

MND (Motor Neuron Disease) Scotland

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AUSTRIA

OBERÖSTERREICH-LINZ

MARATHON - Verein von Eltern und Angehörigen gegen Muskelerkrankungen bei Kindern

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AUSTRIA

WIEN-WIEN

Österreichische Gesellschaft für Muskelkranke

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BELGIUM

ANTWERPEN-BORGERHOUT

Spierziekten Vlaanderen VZW

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BELGIUM

HAINAUT-LA LOUVIERE

ABMM - Association Belge contre les Maladies neuro-Musculaires A.S.B.L.

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BULGARIA

 South-West region-SOFIA

BNMDA - Bulgarian Neuromuscular Diseases Association

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CYPRUS

Cyprus-NICOSIA

MDA - Cyprus Muscular Dystrophy Association

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FINLAND

Finland-TURKU

Lihastautiliitto ry

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FRANCE

ILE-DE-FRANCE-EVRY

AFM Téléthon - Association Française contre les Myopathies

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GERMANY

Baden-Württemberg-FREIBURG

DGM - Deutsche Gesellschaft für Muskelkranke e.V.

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GERMANY

Hamburg-HAMBURG

DMH - Deutsche Muskelschwund-Hilfe e.V.

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IRELAND

County Dublin-DUBLIN

Muscular Dystrophy Ireland

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ISRAEL

ISRAEL-REHOVOT

MESHI - Support group of families with members affected by a neuromuscular atrophy disease

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ITALY

PIEMONTE-NICHELINO

AltroDomani ONLUS

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MOROCCO

Rabat-RABAT

AMM - Association marocaine de lutte contre les myopathies

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NORWAY

Řstlandet-NESBRU

Foreningen for Muskelsyke

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POLAND

Szczecin-SZCZECIN

Fundacja Pomocy Chorym na Zanik Miesni

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POLAND

Warszawa-WARSAW

Polskie Towarzystwo Chorob Nerwowo-Miesniowych

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PORTUGAL

NORTE-PORTO

APN - Associaçăo Portuguesa de Doentes Neuromusculares

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PORTUGAL

SUL-LISBOA

Associaçăo Portuguesa de Miastenia Gravis, Doenças Neuromusculares e Fibromialgia

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SWEDEN

Region Stockholm-SOLNA

Neuroförbundet (Neurologiskt handikappades riksförbund)

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Schweizerische Muskelgesellschaft

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SWITZERLAND

Suisse Romande-YVERDON

ASRIMM - Association Suisse Romande Intervenant contre les Maladies neuro-Musculaires

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUŃA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-BROTTBY

Willefonden

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SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

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ERN

UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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Alliances and umbrella organisations

BELGIUM

ANTWERPEN

ANTWERP

EPU : European Polio Union

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SLOVENIA

SLOVENIA

LJUBLJANA

EAMDA : European alliance of Neuromuscular disorders associations

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SPAIN

Cataluńa

BARCELONA

ASEM: Federación Espańola de Enfermedades Neuromusculares

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UNITED KINGDOM

Tyne & Wear

NEWCASTLE UPON TYNE

TREAT-NMD : Neuromuscular Network Associations

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluńa

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Espańola de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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