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Patient organisations

NETHERLANDS

Gelderland-NIJKERK

Hevas - Ouder- en Patiëntenvereniging voor Hemangiomen en Vasculaire Malformaties

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ERN

NETHERLANDS

Gelderland-SILVOLDE

CMTC-OVM

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ERN

AUSTRALIA

New South Wales-BOWRAL

RCA - Rare Cancers Australia Limited

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSEL

Fondation contre le Cancer / Stichting tegen Kanker

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES

SUN CHILD - Prendre un enfant par la main A.S.B.L.

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES

VASCAPA (Vascular Anomaly Patient Association) A.S.B.L./V.Z.W.

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ERN

BELGIUM

VLAAMS BRABANT-HALLE

KIKOV-Leuven - Kinderkanker Oudervereniging Leuven vzw

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CYPRUS

Cyprus-NICOSIA

Cyprus Association for Children with Cancer and Related Diseases "One Dream One Wish"

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CYPRUS

Cyprus-NICOSIA

PA.SY.KA.F - The Cyprus Association of Cancer Patients and Friends

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ESTONIA

Tallinn-TALLINN

Eesti Vähiliit

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FINLAND

Finland-HELSINKI

Sylva ry

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ERN

FRANCE

ILE-DE-FRANCE-L'ISLE-ADAM

Association Source Vive

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FRANCE

ILE-DE-FRANCE-PARIS

La Ligue Contre le Cancer

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GERMANY

Berlin-BERLIN

Deutsche Stiftung für junge Erwachsene mit Krebs

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ERN

GERMANY

Nordrhein-Westfalen-BONN

Deutsche Kinderkrebsstiftung

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ERN

GERMANY

Nordrhein-Westfalen-MÜLHEIM AN DER RUHR

Bundesverband Angeborene Gefäßfehlbildungen e.V.

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ERN

ITALY

LAZIO-ROMA

ALTI - Associazione ''Io, domani'' per la Lotta contro i Tumori Infantili

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ITALY

LAZIO-ROMA

Fondazione Alessandra Bisceglia ViVa Ale Onlus

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ERN

ITALY

LAZIO-ROMA

BA.BI.S. ODV - La Banda dei Bimbi Speciali

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ITALY

LOMBARDIA-MILANO

Associazione Italiana Angiodisplasie ed Emangiomi Infantili

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LUXEMBOURG

LUXEMBOURG-BOEVANGE-SUR-ATTERT

Een Haerz fir kriibskrank Kanner / Un coeur pour les enfants atteints de cancer

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POLAND

Kraków-KRAKOW

KOLIBER - Stowarzyszenie na rzecz dzieci z choroba nowotworowa

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POLAND

Lodz-LODZ

Fundacja "Krwinka"

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ROMANIA

BRASOV-BRASOV

ABC - ASOCIATIA BOLNAVILOR DE CANCER DIN ROMANIA

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ROMANIA

BUCURESTI-BUCURESTI

PAVEL - Association PAVEL (Primind Ajutor Viata Este Luminoasa)

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SPAIN

Madrid-MADRID

ASION: Asociación Infantil Oncológica de Madrid

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ERN

UNITED KINGDOM

Greater London-LONDON

CLIC Sargent (Cancer and Leukaemia in Childhood)

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UNITED KINGDOM

Greater London-LONDON

TCT - Teenage Cancer Trust

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UNITED KINGDOM

Staffordshire-STAFFORD

CCPA - The Childhood Cancer Parents Alliance

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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SERBIA

Serbia-BELGRADE

ZVONCICA - Childhood cancer parent organisation

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-LIDINGÖ

Föräldraföreningen Anonymous

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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ERN

POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWEDEN

Region Stockholm-BROTTBY

Willefonden

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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Alliances and umbrella organisations

SPAIN

Madrid

MADRID

Federación Española de Padres de Niños con Cáncer

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ERN
BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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