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Patient organisations

FRANCE

NOUVELLE AQUITAINE-MARTIGNAS SUR JALLE

CSC - Connaître les Syndromes Cérébelleux

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PORTUGAL

NORTE-CASTRO MARIM

APAHE - Associação Portuguesa de Ataxias Hereditárias

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CANADA

Québec-MONTRÉAL

ACAF - Association canadienne des ataxies familiales - Fondation Claude St-Jean

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CYPRUS

Cyprus-LIMASSOL

TF - Theotokos Foundation

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NETHERLANDS

Zuid-Holland-HOEK VAN HOLLAND

ADCA Vereniging Nederland

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NORWAY

Østlandet-NESBRU

Foreningen for Muskelsyke

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AUSTRALIA

Queensland-CANNON HILL

FAN - Friedreich Ataxia Network

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CANADA

Ontario-ESSEX

Joubert Syndrome and Related Disorders (JSRD) Canadian Group

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CYPRUS

Cyprus-LARNACA

Association of Parents and Friends of Children with Special Needs Saint George-Christakis Hassapis Larnaca

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CYPRUS

Cyprus-LIMASSOL

Cyprus Red Cross Society-Children Therapy Centre Stella Soulioti

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FRANCE

HAUTS-DE-FRANCE-HIRSON

AFAF - Association Française de l'Ataxie de Friedreich

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FRANCE

ILE-DE-FRANCE-PARIS

AT Europe

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FRANCE

NOUVELLE AQUITAINE-LA ROCHELLE

APRAT - Association Pour la Recherche sur l'Ataxie Télangiectasie

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GERMANY

Baden-Württemberg-STUTTGART

DHAG - Deutsche Heredo-Ataxie-Gesellschaft. e.V.

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IRELAND

County Dublin-DUBLIN

Anne Sullivan Centre

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IRELAND

County Wexford-WEXFORD

Ataxia Foundation Ireland

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ISRAEL

ISRAEL-RAMAT GAN

Association for fighting A-T disease

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ITALY

LOMBARDIA-MILANO

AISA - Associazione Italiana per la Lotta alle Sindromi Atassiche - ONLUS

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ITALY

MARCHE-FANO

ANAT - Associazione Nazionale Atassia Telangiectasia - ONLUS

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ITALY

PIEMONTE-TORINO

Comitato RUDI ONLUS

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ITALY

SICILIA-CATANIA

Associazione Sindrome di Marinesco-Sjogren: gli amici di Matteo

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NETHERLANDS

Overijssel-ZWOLLE

VKS - Volwassenen, Kinderen en Stofwisselingsziekten

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NETHERLANDS

Utrecht-BAARN

Spierziekten Nederland

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POLAND

Szczecin-SZCZECIN

Fundacja Samarytanin

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SERBIA

Serbia-VLADICIN HAN

F.A. - Udruzenje za pomoc i podrsku obolelim od Fridrajhove ataksije

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SPAIN

Andalucía-FUENTE PALMERA

Asociación de Familias con Síndrome de Joubert y Trastornos Relacionados

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SPAIN

Castilla - León-VALLADOLID

FEDAES - Federación de Ataxias de España

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SPAIN

Comunidad Valenciana-VILLAJOYOSA

AHEDYSIA: Asociación Humanitaria de Enfermedades Degenerativas y Síndromes de la Infancia y Adolescencia

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SPAIN

Madrid-BOADILLA DEL MONTE

Fundación Almar

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SPAIN

País Vasco-VITORIA-GASTEIZ

AEFAT - Asociación Española de Familias Ataxia Telangiectasia

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SWEDEN

Region Stockholm-JÄRFÄLLA

Bota FA

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SWEDEN

Region Stockholm-SOLNA

Neuroförbundet (Neurologiskt handikappades riksförbund)

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SWITZERLAND

Suisse Romande-ST-AUBIN

aCHaf - Association Suisse de l'Ataxie de Friedreich

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UNITED KINGDOM

Greater London-LONDON

Ataxia UK

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UNITED KINGDOM

Greater London-LONDON

SPARKS - The Children's Medical Research Charity

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UNITED KINGDOM

Hertfordshire-HARPENDEN

AT Society - Ataxia-Telangiectasia Society

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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BELGIUM

ANTWERPEN-TURNHOUT

Alzheimer Liga Vlaanderen V.Z.W.

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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FRANCE

AUVERGNE-RHONE-ALPES-LYON

Réseau-Lucioles

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FRANCE

BRETAGNE-LA-BOSSE-DE-BRETAGNE

Mieux Vivre avec le Syndrome de Joubert

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FRANCE

PROVENCE-ALPES-COTE D'AZUR-NICE

SOS Nolwënn, contre la différence : Combattre la maladie de Joubert

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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ITALY

LAZIO-ROMA

AISJAC - Associazione Italiana Sindrome di Joubert e Atassie Congenite - ONLUS

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ITALY

MARCHE-OSIMO

Lega del Filo D'Oro - ONLUS

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SPAIN

Galicia-EIRÍS DE ARRIBA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-MADRID

ASINJOU - Asociación Española del Síndrome de Joubert

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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GERMANY

Niedersachsen-BRAUNSCHWEIG

LiBERO - Hilfe für das Kind mit Krankheiten des Nervensystems e.V.

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ITALY

TOSCANA-FIRENZE

Voa Voa! Onlus Amici di Sofia

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NETHERLANDS

Utrecht-AMERSFOORT

Alzheimer Nederland

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SWEDEN

Region Stockholm-STOCKHOLM

Demensförbundet

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SWITZERLAND

Suisse Alémanique-BERN

Alzheimer Schweiz - Alzheimer Suisse - Alzheimer Svizzera

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TURKEY

TURKEY-ISTANBUL

Türkish Alzheimer Society

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Alliances and umbrella organisations

UNITED KINGDOM

Greater London

LONDON

Euro-ATAXIA

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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LUXEMBOURG

LUXEMBOURG

LUXEMBOURG

Alzheimer Europe

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UNITED KINGDOM

Greater London

LONDON

Alzheimer's Disease International

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