Orphanet: Search for a patient organisation

BULGARIA

South-West region-SOFIA

NATIONAL SYRINGOMYELIA ASSOCIATION

More information

CANADA

Ontario-WHITBY

Canadian Chiari Association

More information

FINLAND

Finland-MASKU

Suomen Chiari- ja syringomyeliayhdistys ry- Finlands Chiari- och syringomyeliförening rf

More information

FRANCE

ILE-DE-FRANCE-GENNEVILLIERS

A.M.I.S. Association Maladies Inconnues Solidaires - Clair de lune pour les M.O.M. (Maladies Orphelines Méconnues)

More information

FRANCE

ILE-DE-FRANCE-LE-PLESSIS-TREVISE

ASBH - Association Nationale Spina Bifida et Handicaps associés

More information

FRANCE

PAYS DE LA LOIRE-TREILLIERES

APAISER S&C : Association Pour Aider, Informer, Soutenir Etudes & Recherches pour la Syringomyélie & le Chiari

More information

FRANCE

PROVENCE-ALPES-COTE D'AZUR-ARLES

AMTAS - Maladie des kystes de Tarlov-Arachnoïdite-Syringomyélie - Europe - Québec

More information

FRANCE

PROVENCE-ALPES-COTE D'AZUR-LE TIGNET

AMCVHS - Association Mieux Comprendre et Vivre l'Hydrocéphalie et la Syringomyélie

More information

GERMANY

Bayern-FÜRTH

SHG SYRINX-Nordbayern

More information

GERMANY

Bayern-HOLZKIRCHEN

Syringomyelie Hilfe

More information

GERMANY

Hessen-DARMSTADT

Syringomyelie Selbsthilfegruppe-Hessen-Darmstadt e.V.

More information

GERMANY

Nordrhein-Westfalen-DORTMUND

ASBH - Arbeitsgemeinschaft Spina Bifida und Hydrocephalus e.V.

More information

GERMANY

Nordrhein-Westfalen-JÜCHEN

DSCM - Deutsche Syringomyelie und Chiari Malformation e.V.

More information

GERMANY

Saarland-SCHIFFWEILER

Syringomyelie Selbsthilfegruppe Saarland

More information

IRELAND

County Meath-SLANE

Syringomyelia Chiari Ireland Group

More information

ITALY

LOMBARDIA-BUSTO ARSIZIO

Aima-Child - Associazione Italiana Malformazione di Arnold-Chiari Child

More information

ITALY

PIEMONTE-VINOVO

AISMAC - Associazione Italiana Siringomielia e Arnold Chiari

More information

NETHERLANDS

Gelderland-LICHTENVOORDE

NVVR - Nederlandse Vereniging van Rugpatiënten 'de Wervelkolom'

More information

NETHERLANDS

Zuid-Holland-LEIDSCHENDAM

Syringomyelie Patiënten Vereniging

More information

PORTUGAL

SUL-LISBOA

ASBIHP - Associação Spina Bifida e Hidrocefalia de Portugal

More information

SPAIN

Aragón-ZARAGOZA

AEMC: Asociación Española de Afectados por Malformaciones Craneo-cervicales

More information

SPAIN

Castilla - León-LEÓN

ALER - Asociación Leonesa de Enfermedades Raras y sin diagnóstico

More information

SWITZERLAND

Suisse Alémanique-TAGELSWANGEN

SBH Schweiz - Schweizerische Vereinigung zugunsten von Personen mit SPINA BIFIDA UND HYDROCEPHALUS

More information

UNITED KINGDOM

Greater London-WEB-BASED ONLY

ACT - The Ann Conroy Trust

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

More information

ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

More information

SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

More information

SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

More information

SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

More information

UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

More information

SPAIN

Cataluña

BARCELONA

FEMACPA - Federación Española de Malformación de Chiari y Patologías Asociadas

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

More information

BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

More information

SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

More information

SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

More information

SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

More information

Search for a patient organisation

Other search option(s)

37 Result(s)