Orphanet: Search for a patient organisation

BELGIUM

VLAAMS BRABANT-PRIVATE

LCH Belgium - Feitelijke vereniging/ Association de fait

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FRANCE

AUVERGNE-RHONE-ALPES-MEYZIEU CEDEX

AFPF - Association Fibroses Pulmonaires France

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FRANCE

ILE-DE-FRANCE-MELUN

Association Histiocytose France

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GERMANY

Hessen-WIESBADEN

HistiozytoseHilfe e.V.

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GREECE

ATTIKI-PIREUS

Artemis - Association on histiocytosis

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ITALY

TOSCANA-FIRENZE

AIRI - Associazione Italiana Ricerca Istiocitosi a Cellule di Langerhans - ONLUS

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NETHERLANDS

Utrecht-BAARN

Histiocytose Nederland

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SPAIN

Baleares-PALMA DE MALLORCA

ABAIMAR: Associació Balear d'Infants amb Malalties Rares

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SPAIN

Madrid-MADRID

AEAS: Asociación Española de Afectados por Sarcoma

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SPAIN

Madrid-POZUELO DE ALARCÓN

ACHE - Asociación Española Contra la Histiocitosis

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SWEDEN

Region Stockholm-STOCKHOLM

Föräldraföreningen för barn med Histiocytos

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UNITED KINGDOM

Cambridgeshire-PETERBOROUGH

Histiocytosis UK

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-WOLUWE-SAINT-PIERRE

Les Enfants de Salus Sanguinis, Fondation d'utilité publique

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GERMANY

Hessen-RÜSSELSHEIM AM MAIN

Leukämiehilfe RHEIN-MAIN e.V.

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GERMANY

Niedersachsen-SPRINGE

Kranich -Selbsthilfegruppe für Erwachsene nach einer Krebserkrankung im Kindes-/Jugendalter in Norddeutschland

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GERMANY

Nordrhein-Westfalen-BONN

DLH - Deutsche Leukämie- und Lymphom-Hilfe e.V.

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ITALY

LAZIO-ROMA

FIAGOP - Federazione Italiana Associazioni Genitori Oncoematologia Pediatrica

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ITALY

UMBRIA-PERUGIA

Comitato per la Vita "Daniele Chianelli"

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PORTUGAL

NORTE-PORTO

Associação Portuguesa de Leucemias e Linfomas (Membro da Myeloma Euronet)

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PORTUGAL

SUL-LISBOA

APCL - Associação Portuguesa Contra a Leucemia

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SPAIN

Madrid-MADRID

AEAL - Asociación Española de Afectados por Linfomas, Mielomas y Leucemias

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SWEDEN

Region Stockholm-SUNDBYBERG

Blodcancerförbundet

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SWITZERLAND

Suisse Alémanique-ZÜRICH

SFK Stiftung zur Förderung der Knochenmarktransplantation Schweiz

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TURKEY

TURKEY-ANKARA

FOUNDATION FOR CHILDREN WITH LEUKEMIA

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UNITED KINGDOM

Worcestershire-WORCESTER

Leukaemia CARE

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AUSTRALIA

New South Wales-BOWRAL

RCA - Rare Cancers Australia

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSEL

Fondation contre le Cancer / Stichting tegen Kanker

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES

SUN CHILD - Prendre un enfant par la main A.S.B.L.

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BELGIUM

VLAAMS BRABANT-HALLE

KIKOV-Leuven - Kinderkanker Oudervereniging Leuven vzw

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CYPRUS

Cyprus-NICOSIA

Cyprus Association for Children with Cancer and Related Diseases "One Dream One Wish"

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CYPRUS

Cyprus-NICOSIA

PA.SY.KA.F - The Cyprus Association of Cancer Patients and Friends

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ESTONIA

Tallinn-TALLINN

Eesti Vähiliit

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FINLAND

Finland-HELSINKI

Suomen Syöpäpotilaat ry

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FINLAND

Finland-HELSINKI

Sylva ry

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FRANCE

ILE-DE-FRANCE-L'ISLE-ADAM

Association Source Vive

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FRANCE

ILE-DE-FRANCE-PARIS

La Ligue Contre le Cancer

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FRANCE

ILE-DE-FRANCE-VILLEJUIF

Association ISIS

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GERMANY

Berlin-BERLIN

Deutsche Stiftung für junge Erwachsene mit Krebs

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GERMANY

Nordrhein-Westfalen-BONN

Deutsche Kinderkrebsstiftung

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GREECE

ATTIKI-ATHENS

Karkinaki Awareness for childhood and adolescent Cancer

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ITALY

LAZIO-ROMA

ALTI - Associazione ''Io, domani'' per la Lotta contro i Tumori Infantili ODV

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LUXEMBOURG

LUXEMBOURG-BOEVANGE-SUR-ATTERT

Een Haerz fir kriibskrank Kanner / Un coeur pour les enfants atteints de cancer

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POLAND

Kraków-KRAKOW

KOLIBER - Stowarzyszenie na rzecz dzieci z choroba nowotworowa

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POLAND

Lodz-LODZ

Fundacja "Krwinka"

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ROMANIA

BRASOV-BRASOV

ABC - ASOCIATIA BOLNAVILOR DE CANCER DIN ROMANIA

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ROMANIA

BUCURESTI-BUCURESTI

PAVEL - Association PAVEL (Primind Ajutor Viata Este Luminoasa)

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SPAIN

Madrid-MADRID

ASION: Asociación Infantil Oncológica de Madrid

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UNITED KINGDOM

Greater London-LONDON

CLIC Sargent (Cancer and Leukaemia in Childhood)

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UNITED KINGDOM

Greater London-LONDON

TCT - Teenage Cancer Trust

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UNITED KINGDOM

Staffordshire-STAFFORD

CCPA - The Childhood Cancer Parents Alliance

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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CANADA

Colombie-Britannique-VANCOUVER

Rare Disease Foundation

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CANADA

Ontario-TORONTO

AboutFace

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FRANCE

NOUVELLE AQUITAINE-BORDEAUX

EwenLife Rare Maladies Rares

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FRANCE

OUTRE-MER-SAINT-PIERRE

Association pour la Sensibilisation aux Maladies Rares, Orphelines et Auto-Immunes à Saint-Pierre-et-Miquelon

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GREECE

ATTIKI-ATHENS

"95" - Rare Alliance Greece

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MALTA

MALTA-VALLETTA

The National Alliance for Rare Diseases Support - Malta

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SERBIA

Serbia-BELGRADE

ZVONCICA - Childhood cancer parent organisation

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-MADRID

INDEPF: Instituto de Investigación y Desarrollo Social de Enfermedades Poco Frecuentes

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA: Grupo de enfermedades raras de Navarra

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SPAIN

Madrid

MADRID

Federación Española de Padres de Niños con Cáncer

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AUSTRIA

WIEN

Pro Rare Austria - Allianz für seltene Erkrankungen

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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BULGARIA

South-West region

SOFIA

NAPRD: National Alliance of People with Rare Diseases

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CANADA

Ontario

TORONTO

CORD - Canadian Organization for Rare Disorders

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CROATIA

CROATIA

ZAGREB

Hrvatski savez za rijetke bolesti

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CYPRUS

Cyprus

NICOSIA

Cyprus Alliance for Rare Disorders

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DENMARK

Hovedstaden

TAASTRUP

Rare Disorders Denmark

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FRANCE

ILE-DE-FRANCE

PARIS

Alliance Maladies Rares

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FRANCE

ILE-DE-FRANCE

PARIS

EURORDIS - Rare Diseases Europe

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FRANCE

ILE-DE-FRANCE

SAINT-MICHEL-SUR-ORGE

SOLHAND - Solidarité Handicap ''autour des maladies rares''

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GERMANY

Berlin

BERLIN

ACHSE - Allianz Chronischer Seltener Erkrankungen e.V.

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GREECE

ATTIKI

ATHENS

PESPA - Greek Alliance for Rare Disease Network

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HUNGARY

Közép-Magyarország

BUDAPEST

HUFERDIS - RIROSZ - Hungarian Federation of People with Rare and Congenital Diseases

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IRELAND

County Dublin

DUBLIN

IPPOSI - The Irish Platform for Patient Organisations, Science and Industry

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ITALY

PIEMONTE

TORINO

Federazione Malattie Rare Infantili

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LATVIA

LATVIA

RIGA

Latvian Alliance for Rare Diseases

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NETHERLANDS

Utrecht

SOEST

VSOP - Vereniging Samenwerkende Ouder- en Patiëntenorganisaties

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POLAND

Warszawa

WARSAW

ORPHAN - Krajowe Forum na rzecz terapii chorób rzadkich

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PORTUGAL

SUL

LISBOA

Fedra - Federação de Doenças Raras de Portugal

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PORTUGAL

SUL

LISBOA

RD-Portugal - União das Associações das Doenças Raras de Portugal,

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ROMANIA

SALAJ

ZALAU

RONARD - Alianta Nationala Pentru Boli Rare Romania Network

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SERBIA

Serbia

BELGRADE

NORBS - Nacionalna organizacija za retke bolesti Srbije

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SLOVAKIA

Bratislavsky kraj

PEZINOK

Slovenska aliancia zriedkavych chorob

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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UNITED KINGDOM

Greater London

LONDON

Contact - For families with disabled children

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UNITED KINGDOM

Greater London

LONDON

GA UK : Genetic Alliance UK

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UNITED KINGDOM

Greater London

LONDON

RDUK : Rare Disease UK

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UNITED KINGDOM

Greater London

LONDON

SHCA - Specialised Health Care Alliance

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