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Patient organisations

AUSTRIA

TIROL-INNSBRUCK

Smith-Magenis-Syndrom Österreich

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BELGIUM

OOST-VLAANDEREN-AALTER

Smith Magenis syndroom België vzw

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DENMARK

Hovedstaden-COPENHAGEN

Smith-Magenis Syndrom Forening

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FRANCE

AUVERGNE-RHONE-ALPES-LYON

Réseau-Lucioles

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FRANCE

BOURGOGNE-FRANCHE-COMTE-MARIZY

Association Des Ręves pour Quentin

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FRANCE

BRETAGNE-NEVEZ

Pas ŕ pas avec Alexia

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FRANCE

BRETAGNE-PLOUVIEN

ASM 17 France - Association Smith-Magenis 17 France

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FRANCE

ILE-DE-FRANCE-PARIS

ANPSA - Association Nationale pour les Personnes SourdAveugles

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GERMANY

Thüringen-WEIDA

SIRIUS e.V. - Verein für Selbsthilfe Information und Rat im Umgang mit dem Smith-Magenis-Syndrom

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ITALY

UMBRIA-SAN SISTO

Associazione Smith Magenis - ASM 17 Italia APS

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PORTUGAL

SUL-MOITA

Raríssimas - Associaçăo Nacional de Deficięncias Mentais e Raras - ANDMR

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SPAIN

Baleares-PALMA DE MALLORCA

ABAIMAR: Associació Balear d'Infants amb Malalties Rares

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SPAIN

La Rioja-NÁJERA

ASME: Asociación Smith-Magenis Espańa

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SWEDEN

Region Västra Götaland-TORSLANDA

Föreningen Smith-Magenis syndrom

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UNITED KINGDOM

Cambridgeshire-PETERBOROUGH

Deafblind UK

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UNITED KINGDOM

Greater London-LONDON

Smith-Magenis Syndrome Foundation UK

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UNITED KINGDOM

Greater London-LONDON

Sense (for deafblind people)

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CYPRUS

Cyprus-LIMASSOL

TF - Theotokos Foundation

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GERMANY

Niedersachsen-BRAUNSCHWEIG

LiBERO - Hilfe für das Kind mit Krankheiten des Nervensystems e.V.

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AUSTRIA

WIEN-WIEN

Dachverband Österreichische Autistenhilfe

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BELGIUM

OOST-VLAANDEREN-GENT

VVA - Vlaamse Vereniging Autisme VZW

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FRANCE

ILE-DE-FRANCE-LEVALLOIS PERRET

Xtraordinaire - Association Nationale des Maladies Rares du Neurodéveloppment liées au chromosome X

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FRANCE

ILE-DE-FRANCE-PARIS

Fédération Française Sésame Autisme

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FRANCE

PROVENCE-ALPES-COTE D'AZUR-LA ROQUETTE-SUR-SIAGNE

Autisme France

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GERMANY

Baden-Württemberg-FREIBURG

SPATZ - Selbsthilfe für Kinder mit chronischer Stoffwechsel-, Hormon- oder Zuckererkrankung e.V.

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GERMANY

Hamburg-HAMBURG

autismus Deutschland e.V. - Bundesverband zur Förderung von Menschen mit Autismus

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ITALY

FRIULI VENEZIA GIULIA-PORDENONE

Fondazione Bambini e Autismo - ONLUS

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ITALY

LAZIO-ROMA

ANGSA - Associazione Nazionale Genitori Persone con Autismo

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ITALY

PUGLIA-TARANTO

CUAMJ - Centro Universo Autismo Meridionale Jonico

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NETHERLANDS

Utrecht-DE BILT

NVA - Nederlandse Vereniging voor Autisme

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PORTUGAL

NORTE-BRAGA

AIA - Associaçăo para a Inclusăo e Apoio ao Autista

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PORTUGAL

NORTE-VIANA DO CASTELO

AMA - Associaçăo de Amigos do Autismo

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PORTUGAL

SUL-LISBOA

CEDEMA - Associaçăo de Pais e Amigos dos Deficientes Mentais Adultos

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PORTUGAL

SUL-LISBOA

CERCILISBOA - Programa Comunitário de Intervençăo Precoce

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SPAIN

Madrid-MADRID

Confederación Autismo Espańa

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SWEDEN

Region Stockholm-STOCKHOLM

Autism- och Aspergerförbundet

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SWITZERLAND

Suisse Alémanique-BERN

INSIEME Schweiz - Suisse - Svizzera (für Menschen mit einer geistigen Behinderung.)

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SWITZERLAND

Suisse Alémanique-BIEL-BIENNE

as - Autismus Schweiz, Elternverein - Autisme Suisse, Association de parents - Autismo Svizzera, Associazione di genitori

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SWITZERLAND

Suisse Romande-ARZIER

Xtraordinaire - Association Nationale des Retards Mentaux liés au chromosome X - contact Suisse.

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SWITZERLAND

Suisse Romande-LAUSANNE

autisme suisse romande

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

STAN Trefpunt VerSTANdelijke Handicap vzw

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-EVERE

INCLUSION A.S.B.L.

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BELGIUM

HAINAUT-MOUSCRON

Asbl Chiara VDS - Chiara Vie, Don d'organes et Solidarité

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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CANADA

Colombie-Britannique-VANCOUVER

Rare Disease Foundation

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CANADA

Ontario-TORONTO

AboutFace

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CYPRUS

Cyprus-NICOSIA

CSJF - Christos Stelios Ioannou Foundation

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FRANCE

ILE-DE-FRANCE-PARIS

UNAPEI - Union Nationale de parents, de personnes handicapées mentales et de leurs amis

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FRANCE

NOUVELLE AQUITAINE-BORDEAUX

EwenLife Rare Maladies Rares

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FRANCE

OUTRE-MER-SAINT-PIERRE

Association pour la Sensibilisation aux Maladies Rares, Orphelines et Auto-Immunes ŕ Saint-Pierre-et-Miquelon

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GERMANY

Bayern-ASCHAFFENBURG

Kindernetzwerk e.V. - Selbsthilfe für Familien mit Kindern und jungen Erwachsenen mit chronischen Erkrankungen und Behinderungen

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GREECE

ATTIKI-ATHENS

"95" - Rare Alliance Greece

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MALTA

MALTA-VALLETTA

The National Alliance for Rare Diseases Support - Malta

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Andalucía-COÍN

ADISEN: Asociación Nacional de Addison y Otras Enfermedades Endocrinas

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SPAIN

Andalucía-JAÉN

Enfermedades Raras: Mas Visibles

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUŃA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-MADRID

INDEPF: Instituto de Investigación y Desarrollo Social de Enfermedades Poco Frecuentes

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA: Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

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ERN

SWEDEN

Region Stockholm-SOLNA

Riksförbundet för barn, unga och vuxna med utvecklingsstörning, FUB

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AUSTRALIA

New South Wales-ARTARMON

Variety - the Children's Charity

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

Victoria-PARKVILLE

GSNV - Genetic Support Network of Victoria

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CYPRUS

Cyprus-NICOSIE

Pancyprian Association For Rare Genetic Diseases « Unique Smiles »

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FINLAND

Finland-MASKU

Neuroliitto

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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ERN

LATVIA

LATVIA-RIGA

Biedriba Genetiski parmantoto slimibu pacientiem un lidzcilvekiem "Saknes"

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SLOVAKIA

Presovsky kraj-BARDEJOV

ZOGO - Zdruzenie Ojedlinelych Genetickych Ochorenie

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Förderverein für Kinder mit seltenen Krankheiten

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-EPSOM

Gene People

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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DENMARK

Syddanmark-ALMIND

UniqueDenmark

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FRANCE

ILE-DE-FRANCE-ERAGNY SUR OISE

Valentin APAC - Association de Porteurs d'Anomalies Chromosomiques

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GERMANY

Nordrhein-Westfalen-HOLZWICKEDE

LEONA e.V. - Familienselbsthilfe bei seltenen Chromosomenveränderungen

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SWEDEN

Region Västra Götaland-KĹLLERED

NOC Sverige, Nätverket för ovanliga kromosomavvikelser

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