Orphanet: Search for a patient organisation

FRANCE

OCCITANIE-GRUISSAN

APIMS - Les Amis du Portail d'Information sur la Maladie de Steinert et autres dystrophies myotoniques

More information

UNITED KINGDOM

Nottinghamshire-NOTTINGHAM

MDSG - Myotonic Dystrophy Support Group

More information

GERMANY

Niedersachsen-HANNOVER

MYOTONIA - Forum und Information Myotonia Congenita

More information

SWITZERLAND

Suisse Alémanique-MÖHLIN

MDNWCH - Myotone Dystrophie Selbsthilfegruppe Nordwestschweiz

More information

UNITED KINGDOM

Lincolnshire-BRIGG

Cure DM

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

More information

BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

More information

GREECE

ATTIKI-ATHENS

PASIFASMEN - Hellenic Association of Friends and Patients with rare metabolic and endocrinologic diseases

More information

NETHERLANDS

Utrecht-BAARN

Spierziekten Nederland

More information

NORWAY

Østlandet-NESBRU

Foreningen for Muskelsyke

More information

SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

More information

SPAIN

Andalucía-COÍN

ADISEN: Asociación Nacional de Addison y Otras Enfermedades Endocrinas

More information

SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

More information

SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

More information

SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

More information

SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

More information

AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

More information

AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

More information

AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

More information

AUSTRALIA

Victoria-NORTH MELBOURNE

MDA - Muscular Dystrophy Australia

More information

AUSTRALIA

Western Australia-NEDLANDS

MDWA - Muscular Dystrophy Western Australia

More information

CANADA

Ontario-TORONTO

MDC - Muscular Dystrophy Canada / DMC - Dystrophie Musculaire Canada

More information

CYPRUS

Cyprus-LIMASSOL

Cyprus Red Cross Society-Children Therapy Centre Stella Soulioti

More information

CZECH REPUBLIC

Capital City Prague-PRAHA

Asociace muskularnich dystrofiku

More information

GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

More information

IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

More information

ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

More information

ITALY

VENETO-PADOVA

UILDM - Unione Italiana Lotta alla Distrofia Muscolare

More information

POLAND

Gdansk-GDANSK

PPMD - Fundacja Parent Project Muscular Dystrophy

More information

POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

More information

POLAND

Warszawa-NOWE CHECHLO

Stowarzyszenie Pomocy Chorym na Dystrophie Musculorum

More information

ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

More information

SWEDEN

Region Stockholm-BROTTBY

Willefonden

More information

SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

More information

SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

More information

SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

More information

SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

More information

SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

More information

UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

More information

UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

More information

UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

More information

UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

More information

FRANCE

ILE-DE-FRANCE-EVRY

AFM Téléthon - Association Française contre les Myopathies

More information

SWEDEN

Region Stockholm-LIDINGÖ

Föräldraföreningen Anonymous

More information

AUSTRIA

OBERÖSTERREICH-LINZ

MARATHON - Verein von Eltern und Angehörigen gegen Muskelerkrankungen bei Kindern

More information

AUSTRIA

WIEN-WIEN

Österreichische Gesellschaft für Muskelkranke

More information

BELGIUM

ANTWERPEN-BORGERHOUT

Spierziekten Vlaanderen VZW

More information

BELGIUM

HAINAUT-LA LOUVIERE

ABMM - Association Belge contre les Maladies neuro-Musculaires A.S.B.L.

More information

BULGARIA

South-West region-SOFIA

BNMDA - Bulgarian Neuromuscular Diseases Association

More information

CYPRUS

Cyprus-NICOSIA

MDA - Cyprus Muscular Dystrophy Association

More information

FINLAND

Finland-TURKU

Lihastautiliitto ry

More information

GERMANY

Baden-Württemberg-FREIBURG

DGM - Deutsche Gesellschaft für Muskelkranke e.V.

More information

GERMANY

Hamburg-HAMBURG

DMH - Deutsche Muskelschwund-Hilfe e.V.

More information

IRELAND

County Dublin-DUBLIN

Muscular Dystrophy Ireland

More information

ISRAEL

ISRAEL-REHOVOT

MESHI - Support group of families with members affected by a neuromuscular atrophy disease

More information

ITALY

PIEMONTE-NICHELINO

AltroDomani ONLUS

More information

MOROCCO

Rabat-RABAT

AMM - Association marocaine de lutte contre les myopathies

More information

POLAND

Szczecin-SZCZECIN

Fundacja Pomocy Chorym na Zanik Miesni

More information

POLAND

Warszawa-WARSAW

Polskie Towarzystwo Chorob Nerwowo-Miesniowych

More information

PORTUGAL

NORTE-PORTO

APN - Associação Portuguesa de Doentes Neuromusculares

More information

PORTUGAL

SUL-LISBOA

Associação Portuguesa de Miastenia Gravis, Doenças Neuromusculares e Fibromialgia

More information

SWEDEN

Region Stockholm-SOLNA

Neuroförbundet (Neurologiskt handikappades riksförbund)

More information

SWITZERLAND

Suisse Alémanique-ZÜRICH

Schweizerische Muskelgesellschaft

More information

SWITZERLAND

Suisse Romande-YVERDON

ASRIMM - Association Suisse Romande Intervenant contre les Maladies neuro-Musculaires

More information

ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

More information

SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

More information

UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

More information

FRANCE

ILE-DE-FRANCE

PARIS

Euro-DyMA : Fédération des associations européennes de la dystrophie myotonique

More information

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

More information

BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

More information

SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

More information

SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

More information

SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

More information

SLOVENIA

SLOVENIA

LJUBLJANA

EAMDA : European alliance of Neuromuscular disorders associations

More information

SPAIN

Cataluña

BARCELONA

ASEM: Federación Española de Enfermedades Neuromusculares

More information

UNITED KINGDOM

Tyne & Wear

NEWCASTLE UPON TYNE

TREAT-NMD : Neuromuscular Network Associations

More information

Search for a patient organisation

Other search option(s)

77 Result(s)