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Patient organisations

AUSTRALIA

Western Australia-WEST PERTH

DF - Duchenne Foundation

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CYPRUS

Cyprus-LIMASSOL

Cyprus Red Cross Society-Children Therapy Centre Stella Soulioti

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CYPRUS

Cyprus-NICOSIA

MDA - Cyprus Muscular Dystrophy Association

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CYPRUS

Cyprus-NICOSIA

TELETHON (CYPRUS)

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CZECH REPUBLIC

South Moravia-BRNO

Parent Project - Obcanské sdruzeni rodicu deti se svalovou dystrofii Duchenne/Becker (DMD/BMD)

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GERMANY

Nordrhein-Westfalen-BOCHUM

aktion benni & co e.V.

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HUNGARY

Közép-Magyarország-BUDAPEST

Gyógyító Jószándék Alapítvány

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ISRAEL

ISRAEL-KFAR SABA

Little Steps - Israel association for children with Duchenne and Becker muscular dystrophy

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ITALY

LAZIO-ROMA

Parent Project - Genitori contro la Distrofia Muscolare di Duchenne & Becker - ONLUS

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ROMANIA

DOLJ-CRAIOVA

Parent Project Romania - Asociatia pentru Cercetare si Asistenta in Distrofia Musculara

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SLOVAKIA

Bratislavsky kraj-BRATISLAVA

OMD v SR - Organizacia muskularnych dystrofikov v SR

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SPAIN

Madrid-ALCORCÓN

Asociación Duchenne Parent Project Espańa

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SWITZERLAND

Suisse Romande-MORGES

Fondation Progena - Agir pour les enfants atteints de maladies musculaires

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UNITED KINGDOM

Greater London-LONDON

DFSG - Duchenne Family Support Group

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UNITED KINGDOM

Greater London-LONDON

Action Duchenne

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UNITED KINGDOM

Greater London-LONDON

MDC - Muscular Dystrophy Campaign

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CANADA

Québec-MONT-TREMBLANT

La Force DMD

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IRELAND

County Donegal-LIFFORD, CO. DONEGAL

Duchenne Ireland

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LATVIA

LATVIA-RIGA

Reto slimibu biedriba Caladrius

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NETHERLANDS

Utrecht-VEENENDAAL

Duchenne Parent Project

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SPAIN

Baleares-PALMA DE MALLORCA

ABAIMAR - Associació Balear d'Infants amb Malalties Rares

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SPAIN

Comunidad Valenciana-VILLAJOYOSA

AHEDYSIA - Asociación Humanitaria de Enfermedades Degenerativas y Síndromes de la Infancia y Adolescencia

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AUSTRALIA

Victoria-NORTH MELBOURNE

MDA - Muscular Dystrophy Australia

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AUSTRALIA

Western Australia-NEDLANDS

MDWA - Muscular Dystrophy Western Australia

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CANADA

Ontario-TORONTO

MDC - Muscular Dystrophy Canada / DMC - Dystrophie Musculaire Canada

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CZECH REPUBLIC

Capital City Prague-PRAHA 4 - CHODOV

Asociace muskularnich dystrofiku

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FRANCE

AUVERGNE-RHONE-ALPES-LYON

MYOPATHIES.INFO

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NETHERLANDS

Utrecht-BAARN

Spierziekten Nederland

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POLAND

Gdansk-GDANSK

PPMD - Fundacja Parent Project Muscular Dystrophy

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POLAND

Warszawa-NOWE CHECHLO

Stowarzyszenie Pomocy Chorym na Dystrophie Musculorum

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FRANCE

ILE-DE-FRANCE-EVRY

AFM - Association Française contre les Myopathies

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AUSTRIA

OBERÖSTERREICH-LINZ

MARATHON - Verein von Eltern und Angehörigen gegen Muskelerkrankungen bei Kindern

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AUSTRIA

WIEN-WIEN

Österreichische Gesellschaft für Muskelkranke

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BELGIUM

HAINAUT-LA LOUVIERE

ABMM - Association Belge contre les Maladies neuro-Musculaires asbl

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BELGIUM

LIMBURG-HASSELT

Spierziekten Vlaanderen

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BULGARIA

 South-West region-SOFIA

BNMDA - Bulgarian Neuromuscular Diseases Association

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FINLAND

Finland-TURKU

Lihastautiliitto ry

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GERMANY

Baden-Württemberg-FREIBURG

DGM - Deutsche Gesellschaft für Muskelkranke e.V.

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GERMANY

Hamburg-HAMBURG

DMH - Deutsche Muskelschwund-Hilfe e.V.

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IRELAND

County Dublin-DUBLIN

Muscular Dystrophy Ireland

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ISRAEL

ISRAEL-REHOVOT

MESHI - Support group of families with members affected by a neuromuscular atrophy disease

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ITALY

PIEMONTE-NICHELINO

AltroDomani ONLUS

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ITALY

VENETO-PADOVA

UILDM - Unione Italiana Lotta alla Distrofia Muscolare

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LUXEMBOURG

LUXEMBOURG-BASCHARAGE

ALAN - Maladies Rares Luxembourg

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MOROCCO

Rabat-RABAT

AMM - Association marocaine de lutte contre les myopathies

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POLAND

Szczecin-SZCZECIN

Fundacja Pomocy Chorym na Zanik Miesni

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POLAND

Warszawa-WARSAW

Polskie Towarzystwo Chorob Nerwowo-Miesniowych

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PORTUGAL

NORTE-PORTO

APN - Associaçăo Portuguesa de Doentes Neuromusculares

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PORTUGAL

SUL-LISBOA

Associaçăo Portuguesa de Miastenia Gravis, Doenças Neuromusculares e Fibromialgia

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SPAIN

Cataluńa-BARCELONA

Federación ASEM - Federación Espańola de Enfermedades Neuromusculares

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SWEDEN

Stockholms läns landsting-STOCKHOLM

Neuroförbundet (Neurologiskt handikappades riksförbund)

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Schweizerische Muskelgesellschaft

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SWITZERLAND

Suisse Romande-YVERDON

ASRIMM - Association de la Suisse Romande Intervenant contre les Maladies neuro-Musculaires

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWITZERLAND

Suisse Italienne-BELLINZONA

Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Greater London-LONDON

GDUK- Genetic Disorders UK

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra - Support for children with brain-related neurological conditions

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UNITED KINGDOM

West Yorkshire-HUDDERSFIELD

The Nerve Centre

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