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ITALY

EMILIA ROMAGNA-MODENA

AIDMED - Associazione Italiana Distrofia Muscolare di Emery Dreifuss OdV

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PORTUGAL

NORTE-PORTO

APN - Associaçăo Portuguesa de Doentes Neuromusculares

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SPAIN

Madrid-MADRID

Fundación Andrés Marcio, nińos contra la Laminopatía

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AUSTRALIA

Victoria-NORTH MELBOURNE

MDA - Muscular Dystrophy Australia

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AUSTRALIA

Western Australia-NEDLANDS

MDWA - Muscular Dystrophy Western Australia

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CANADA

Ontario-TORONTO

MDC - Muscular Dystrophy Canada / DMC - Dystrophie Musculaire Canada

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FRANCE

ILE-DE-FRANCE-LEVALLOIS PERRET

Xtraordinaire - Association Nationale des Maladies Rares du Neurodéveloppment liées au chromosome X

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ITALY

VENETO-PADOVA

UILDM - Unione Italiana Lotta alla Distrofia Muscolare

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NETHERLANDS

Utrecht-BAARN

Spierziekten Nederland

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PORTUGAL

SUL-LISBOA

CEDEMA - Associaçăo de Pais e Amigos dos Deficientes Mentais Adultos

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PORTUGAL

SUL-LISBOA

CERCILISBOA - Programa Comunitário de Intervençăo Precoce

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SWITZERLAND

Suisse Romande-ARZIER

Xtraordinaire - Association Nationale des Retards Mentaux liés au chromosome X - contact Suisse.

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

STAN Trefpunt VerSTANdelijke Handicap vzw

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-EVERE

INCLUSION A.S.B.L.

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CYPRUS

Cyprus-NICOSIA

CSJF - Christos Stelios Ioannou Foundation

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FRANCE

ILE-DE-FRANCE-PARIS

UNAPEI - Union Nationale de parents, de personnes handicapées mentales et de leurs amis

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NORWAY

Řstlandet-NESBRU

Foreningen for Muskelsyke

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SWEDEN

Region Stockholm-SOLNA

Riksförbundet för barn, unga och vuxna med utvecklingsstörning, FUB

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SWITZERLAND

Suisse Alémanique-BERN

INSIEME Schweiz - Suisse - Svizzera (für Menschen mit einer geistigen Behinderung.)

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

HAINAUT-MOUSCRON

Asbl Chiara VDS - Chiara Vie, Don d'organes et Solidarité

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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CANADA

Colombie-Britannique-VANCOUVER

Rare Disease Foundation

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CANADA

Ontario-TORONTO

AboutFace

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FINLAND

Finland-MASKU

Neuroliitto

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FRANCE

ILE-DE-FRANCE-EVRY

AFM Téléthon - Association Française contre les Myopathies

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ERN

FRANCE

NOUVELLE AQUITAINE-BORDEAUX

EwenLife Rare Maladies Rares

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FRANCE

OUTRE-MER-SAINT-PIERRE

Association pour la Sensibilisation aux Maladies Rares, Orphelines et Auto-Immunes ŕ Saint-Pierre-et-Miquelon

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GREECE

ATTIKI-ATHENS

"95" - Rare Alliance Greece

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MALTA

MALTA-VALLETTA

The National Alliance for Rare Diseases Support - Malta

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Andalucía-JAÉN

Enfermedades Raras: Mas Visibles

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUŃA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-MADRID

INDEPF: Instituto de Investigación y Desarrollo Social de Enfermedades Poco Frecuentes

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA: Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

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ERN

UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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AUSTRALIA

New South Wales-ARTARMON

Variety - the Children's Charity

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

Victoria-PARKVILLE

GSNV - Genetic Support Network of Victoria

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AUSTRIA

OBERÖSTERREICH-LINZ

MARATHON - Verein von Eltern und Angehörigen gegen Muskelerkrankungen bei Kindern

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AUSTRIA

WIEN-WIEN

Österreichische Gesellschaft für Muskelkranke

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BELGIUM

ANTWERPEN-BORGERHOUT

Spierziekten Vlaanderen vzw

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BELGIUM

HAINAUT-LA LOUVIERE

ABMM - Association Belge contre les Maladies neuro-Musculaires A.S.B.L.

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BULGARIA

 South-West region-SOFIA

BNDA - Bulgarian Neuromuscular Diseases Association

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CYPRUS

Cyprus-NICOSIA

MDA - Cyprus Muscular Dystrophy Association

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CYPRUS

Cyprus-NICOSIE

Pancyprian Association For Rare Genetic Diseases « Unique Smiles »

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FINLAND

Finland-TURKU

Lihastautiliitto ry

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GERMANY

Baden-Württemberg-FREIBURG

DGM - Deutsche Gesellschaft für Muskelkranke e.V.

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GERMANY

Bayern-ASCHAFFENBURG

Kindernetzwerk e.V. - Selbsthilfe für Familien mit Kindern und jungen Erwachsenen mit chronischen Erkrankungen und Behinderungen

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GERMANY

Hamburg-HAMBURG

DMH - Deutsche Muskelschwund-Hilfe e.V.

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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GREECE

GREECE-ATHENS

Muscular Dystrophy Association Hellas

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ERN

IRELAND

County Dublin-DUBLIN

Muscular Dystrophy Ireland

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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ERN

ITALY

PIEMONTE-NICHELINO

AltroDomani ONLUS

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LATVIA

LATVIA-RIGA

Biedriba Genetiski parmantoto slimibu pacientiem un lidzcilvekiem "Saknes"

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MOROCCO

Rabat-RABAT

AMM - Association marocaine de lutte contre les myopathies

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POLAND

Szczecin-SZCZECIN

Fundacja Pomocy Chorym na Zanik Miesni

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SLOVAKIA

Presovsky kraj-BARDEJOV

ZOGO - Zdruzenie Ojedlinelych Genetickych Ochorenie

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SWEDEN

Region Stockholm-SOLNA

Neuroförbundet (Neurologiskt handikappades riksförbund)

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Förderverein für Kinder mit seltenen Krankheiten

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Schweizerische Muskelgesellschaft

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-YVERDON

ASRIMM - Association Suisse Romande Intervenant contre les Maladies neuro-Musculaires

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-EPSOM

Gene People

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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