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Patient organisations

CANADA

Ontario-TORONTO

La Fondation Canadienne de Recherche de L'Anemie de Fanconi

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FRANCE

ILE-DE-FRANCE-PARIS

AFMF - Association Française de la Maladie de Fanconi

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GERMANY

Bayern-ESCHAU

Deutsche Fanconi-Anämie-Hilfe e.V.

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GERMANY

Nordrhein-Westfalen-WUPPERTAL

Fanconi-Anämie-Stiftung

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ITALY

CAMPANIA-NAPOLI

AIRFA - Associazione Italiana per la Ricerca sull'Anemia di Fanconi

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NETHERLANDS

Utrecht-NIEUWEGEIN

VOKK - Vereniging Ouders, Kinderen en Kanker

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SPAIN

Madrid-MADRID

AEAF - Asociación Española de Anemia de Fanconi

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UNITED KINGDOM

Hampshire-PORTSMOUTH

Fanconi Hope Charitable Trust

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UNITED KINGDOM

Nottinghamshire-NOTTINGHAM

FAB UK - Fanconi's Anaemia UK

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CYPRUS

Cyprus-LIMASSOL

Saint Stylianos Foundation

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CYPRUS

Cyprus-NICOSIA

PA.SY.KA.F - The Cyprus Association of Cancer Patients and Friends

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CANADA

Ontario-KING CITY

Aplastic Anemia and Myelodysplasia Association of Canada

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CYPRUS

Cyprus-NICOSIA

Cyprus Association for Children with Cancer and Related Diseases "One Dream One Wish"

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FRANCE

ILE-DE-FRANCE-BOULOGNE-BILLANCOURT

ASSEDEA - Association d'Etude et d'Aide aux Enfants Amputés

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GERMANY

Berlin-BERLIN

Aplastische Anämie & PNH e.V.

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UNITED KINGDOM

Greater London-LONDON

AAT - The Aplastic Anaemia Trust

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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DENMARK

Jylland-BRAMMING

Landsforeningen for arm/bendefekte og AMC

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FRANCE

NORMANDIE-LISIEUX

Association Denise LEGRIX

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FRANCE

NOUVELLE AQUITAINE-TOULENNE

AANAA - Association Antoine, Nubia, Aline et les Autres

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GERMANY

Bayern-ERDWEG

Bundesselbsthilfevereinigung für Kinder, Jugendliche und Erwachsene mit seltenen, chronischen Skelett-Erkrankungen e.V.

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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ITALY

LAZIO-ROMA

BA.BI.S. Onlus - La Banda dei Bimbi Speciali

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ITALY

LOMBARDIA-MILANO

RAGGIUNGERE - Associazione Italiana per Bambini con Malformazioni agli Arti - ONLUS

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MOROCCO

Rabat-RABAT

AMDG - Association Marocaine des Génodermatoses

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NETHERLANDS

Noord-Holland-DE KWAKEL

Handvereniging

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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POLAND

Wroclaw-WROCLAW

WSPOLNIE - Stowarzyszenie na Rzecz Dzieci z Rzadkimi Chorobami Genetycznymi i Ich Rodzin

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SERBIA

Serbia-BELGRADE

ZVONCICA - Childhood cancer parent organisation

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SWEDEN

Stockholms läns landsting-RIMBO

Svensk Dysmeliförening

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Selbsthilfegruppe Pinocchio - Kontaktstelle für Eltern mit Kinder ohne Finger/Hand/Arm

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SWITZERLAND

Suisse Italienne-BELLINZONA

Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Cheshire-LYMM

STEPS - Supporting patients affected by a lower limb / hip condition

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UNITED KINGDOM

Devon-TAVISTOCK

REACH - The association for Children with Upper Limb Deficiency

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Greater London-LONDON

GDUK- Genetic Disorders UK

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Alliances and umbrella organisations

CANADA

Québec

MONTREAL

Network of Rare Blood Disorder Organizations

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