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Patient organisations

FINLAND

Finland-HELSINKI

Suomen Reumaliitto

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ERN

FRANCE

OCCITANIE-NARBONNE

AISMS - Association d'Informations et de Soutien aux Malades de SAPHO

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GERMANY

Bayern-MÜNCHEN

Sapho-Syndrom Selbsthilfegruppe Deutschland

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ITALY

EMILIA ROMAGNA-FORLÌ

AMAR - Associazione Malattie Autoimmuni Rare ODV

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ITALY

PUGLIA-ALTAMURA

A.MA.R.A.M. - Associazione Malattie Rare dell'Alta Murgia APS/ETS

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Rheumaliga Schweiz - Ligue suisse contre le rhumatisme - Lega svizzera contro il reumatismo

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GERMANY

Bayern-SCHNAITSEE

dsai - Deutsche Selbsthilfe Angeborene Immundefekte e.V.

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ITALY

SICILIA-SIRACUSA

AISAR - Associazione Italiana Sindromi Autoinfiammatorie Rare - ONLUS

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SPAIN

Comunidad Valenciana-VALENCIA

FMF España - Asociación de enfermos de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios de España

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SPAIN

Comunidad Valenciana-VALENCIA

Asociación Española de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios Stop FMF

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AUSTRIA

SALZBURG-MARIA ALM

Österreichische Rheumaliga

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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CANADA

Colombie-Britannique-VANCOUVER

Rare Disease Foundation

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CANADA

Ontario-TORONTO

AboutFace

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DENMARK

Hovedstaden-GENTOFTE

Gigtforeningen

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ERN

FINLAND

Finland-HELSINKI

Allergia-, Iho- ja Astmaliitto ry

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FINLAND

Finland-HELSINKI

Ihoyhdistys

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FRANCE

ILE-DE-FRANCE-PARIS

AFLAR - Association Française de Lutte Antirhumatismale

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ERN

FRANCE

NOUVELLE AQUITAINE-BORDEAUX

EwenLife Rare Maladies Rares

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FRANCE

OUTRE-MER-SAINT-PIERRE

Association pour la Sensibilisation aux Maladies Rares, Orphelines et Auto-Immunes à Saint-Pierre-et-Miquelon

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GERMANY

Nordrhein-Westfalen-BONN

Deutsche Rheuma-Liga Bundesverband e.V.

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ERN

GREECE

ATTIKI-ATHENS

"95" - Rare Alliance Greece

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ITALY

CAMPANIA-PONTECAGNANO FAIANO

AMAReC - Associazione Malattie Reumatiche Croniche ONLUS

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ITALY

LAZIO-ROMA

Anmar Italia Onlus - Associazione Nazionale Malati Reumatici

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ITALY

PUGLIA-LECCE

APMARR - Associazione Nazionale Persone con Malattie Reumatologiche e Rare - APS

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ERN

MALTA

MALTA-VALLETTA

The National Alliance for Rare Diseases Support - Malta

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Andalucía-JAÉN

Enfermedades Raras: Mas Visibles

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-MADRID

INDEPF: Instituto de Investigación y Desarrollo Social de Enfermedades Poco Frecuentes

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SPAIN

Madrid-MADRID

LIRE: Liga Reumatológica Española, asociación de organizaciones y personas con enfermedades reumáticas y músculo esqueléticas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA: Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-STOCKHOLM

Reumatikerförbundet

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ERN

SWITZERLAND

Suisse Romande-GENÈVE

Ligue Genevoise contre le Rhumatisme

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CYPRUS

Cyprus-NICOSIA

Cyprus League Against Rheumatism

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ITALY

VENETO-VENEZIA

AIFP - Associazione Italiana Febbri Periodiche

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Alliances and umbrella organisations

SWITZERLAND

Suisse Alémanique

BRÜTTISELLEN

FMF & AID Global Association - Familial Mediterranean Fever & Autoinflammatory Diseases

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AUSTRIA

WIEN

WIEN

Pro Rare Austria - Allianz für seltene Erkrankungen

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AUSTRIA

WIEN

WIEN

Lobby4Kids

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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BULGARIA

 South-West region

SOFIA

NAPRD: National Alliance of People with Rare Diseases

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CANADA

Ontario

TORONTO

CORD - Canadian Organization for Rare Disorders

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CROATIA

CROATIA

ZAGREB

Hrvatski savez za rijetke bolesti

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CYPRUS

Cyprus

NICOSIA

Cyprus Alliance for Rare Disorders

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DENMARK

Hovedstaden

TAASTRUP

Rare Disorders Denmark

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FINLAND

Finland

HELSINKI

Harvinaiset-verkosto

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FINLAND

Finland

HELSINKI

HARSO - Rare Diseases Alliance of Finland

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FRANCE

ILE-DE-FRANCE

PARIS

Alliance Maladies Rares

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FRANCE

ILE-DE-FRANCE

PARIS

EURORDIS - Rare Diseases Europe

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ERN
FRANCE

ILE-DE-FRANCE

SAINT-MICHEL-SUR-ORGE

SOLHAND - Solidarité Handicap ''autour des maladies rares''

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GERMANY

Berlin

BERLIN

ACHSE - Allianz Chronischer Seltener Erkrankungen e.V.

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GREECE

ATTIKI

ATHENS

PESPA - Greek Alliance for Rare Disease Network

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HUNGARY

Közép-Magyarország

BUDAPEST

HUFERDIS - RIROSZ - Hungarian Federation of People with Rare and Congenital Diseases

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IRELAND

County Dublin

DUBLIN

RDI-Rare Disease Ireland

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IRELAND

County Dublin

DUBLIN

IPPOSI - The Irish Platform for Patient Organisations, Science and Industry

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ITALY

LAZIO

ROMA

UNIAMO FIMR onlus - Federazione Italiana Malattie Rare

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ERN
ITALY

PIEMONTE

TORINO

Federazione Malattie Rare Infantili

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LATVIA

LATVIA

RIGA

Latvijas Reto slimibu alianse

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MOROCCO

Casablanca

CASABLANCA

Alliance Maladies Rares Maroc

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NETHERLANDS

Utrecht

SOEST

VSOP - Vereniging Samenwerkende Ouder- en Patiëntenorganisaties

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POLAND

Warszawa

WARSAW

ORPHAN - Krajowe Forum na rzecz terapii chorób rzadkich

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PORTUGAL

SUL

LISBOA

RD-Portugal - União das Associações das Doenças Raras de Portugal

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PORTUGAL

SUL

PORTELA

FEDRA - Federação de Doenças Raras de Portugal

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ROMANIA

SALAJ

ZALAU

RONARD - Alianta Nationala Pentru Boli Rare Romania Network

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SERBIA

Serbia

BELGRADE

NORBS - Nacionalna organizacija za retke bolesti Srbije

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SLOVAKIA

Bratislavsky kraj

PEZINOK

Slovenska aliancia zriedkavych chorob

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWEDEN

Region Stockholm

SUNDBYBERG

Sällsynta diagnoser Network

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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UNITED KINGDOM

Greater London

LONDON

Contact - For families with disabled children

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UNITED KINGDOM

Greater London

LONDON

GA UK : Genetic Alliance UK

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UNITED KINGDOM

Greater London

LONDON

RDUK : Rare Disease UK

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UNITED KINGDOM

Greater London

LONDON

SHCA - Specialised Health Care Alliance

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