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BELGIUM

LIMBURG-MAASEIK

CIB-Liga - Liga voor Chronische Inflammatoire Bindweefselziekten VZW

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FINLAND

Finland-HELSINKI

Suomen Reumaliitto

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GERMANY

Niedersachsen-OLDENBURG

Kollagenose/Sklero Selbsthilfegruppe

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UNITED KINGDOM

Hampshire-SOUTHAMPTON

Myositis UK

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NETHERLANDS

Utrecht-BAARN

Spierziekten Nederland

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NORWAY

Østlandet-NESBRU

Foreningen for Muskelsyke

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SPAIN

Baleares-PALMA DE MALLORCA

ABAIMAR: Associació Balear d'Infants amb Malalties Rares

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FRANCE

GRAND-EST-CUVRY

AFL+ - Association Française du Lupus et autres maladies auto-immunes

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GERMANY

Nordrhein-Westfalen-BONN

Deutsche Rheuma-Liga Bundesverband e.V.

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ITALY

ABRUZZO-SILVI MARINA

APAI - Associazione Patologie Autoimmuni Internazionale

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ITALY

EMILIA ROMAGNA-FORLÌ

AMAR Onlus - Associazione Malattie Autoimmuni Rare

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ITALY

TOSCANA-FIRENZE

A.M.A. Associazione Malattie Autoimmuni Mario Rossi

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SPAIN

Andalucía-ALMERÍA

ALAL - Asociación de Autoinmunes y Lupus de Almería

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SPAIN

Andalucía-MÁLAGA

ALMA: Asociación Lupus Málaga y Autoinmunes

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SPAIN

Andalucía-SEVILLA

ALUS: Asociación de Autoinmunes y Lúpicos de Sevilla

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GERMANY

Baden-Württemberg-BIBERACH

Junge Nierenkranke Deutschland e.V.

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SWITZERLAND

Suisse Romande-GENÈVE

Ligue Genevoise contre le Rhumatisme

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AUSTRIA

OBERÖSTERREICH-LINZ

MARATHON - Verein von Eltern und Angehörigen gegen Muskelerkrankungen bei Kindern

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AUSTRIA

TIROL-INNSBRUCK

Verein Nephro Tirol

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AUSTRIA

WIEN-WIEN

Österreichische Gesellschaft für Muskelkranke

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BELGIUM

ANTWERPEN-BORGERHOUT

Spierziekten Vlaanderen VZW

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

HAINAUT-LA LOUVIERE

ABMM - Association Belge contre les Maladies neuro-Musculaires A.S.B.L.

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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BULGARIA

South-West region-SOFIA

BNMDA - Bulgarian Neuromuscular Diseases Association

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CYPRUS

Cyprus-NICOSIA

Cyprus League Against Rheumatism

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CYPRUS

Cyprus-NICOSIA

MDA - Cyprus Muscular Dystrophy Association

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FINLAND

Finland-HELSINKI

Munuais- ja maksaliitto, Njur- och leverförbundet

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FINLAND

Finland-TURKU

Lihastautiliitto ry

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FRANCE

ILE-DE-FRANCE-EVRY

AFM Téléthon - Association Française contre les Myopathies

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GERMANY

Baden-Württemberg-FREIBURG

DGM - Deutsche Gesellschaft für Muskelkranke e.V.

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GERMANY

Hamburg-HAMBURG

DMH - Deutsche Muskelschwund-Hilfe e.V.

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GERMANY

Rheinland-Pfalz-MAINZ

Bundesverband Niere e.V.

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IRELAND

County Dublin-DUBLIN

Irish Kidney Association

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IRELAND

County Dublin-DUBLIN

Muscular Dystrophy Ireland

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ISRAEL

ISRAEL-REHOVOT

MESHI - Support group of families with members affected by a neuromuscular atrophy disease

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ITALY

PIEMONTE-NICHELINO

AltroDomani ONLUS

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ITALY

VENETO-VENEZIA

AIFP - Associazione Italiana Febbri Periodiche

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MOROCCO

Rabat-RABAT

AMM - Association marocaine de lutte contre les myopathies

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NETHERLANDS

Noord-Holland-BUSSUM

NVN - Nierpatiënten Vereniging Nederland

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NORWAY

Østlandet-OSLO

LNT - Landsforeningen for Nyrepasienter og Transplanterte

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POLAND

Szczecin-SZCZECIN

Fundacja Pomocy Chorym na Zanik Miesni

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POLAND

Warszawa-WARSAW

Polskie Towarzystwo Chorob Nerwowo-Miesniowych

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PORTUGAL

NORTE-PORTO

ADRNP - Associação de Doentes Renais do Norte de Portugal

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PORTUGAL

NORTE-PORTO

APN - Associação Portuguesa de Doentes Neuromusculares

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PORTUGAL

SUL-LISBOA

APIR - Associação Portuguesa de Insuficientes Renais

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PORTUGAL

SUL-LISBOA

Associação Portuguesa de Miastenia Gravis, Doenças Neuromusculares e Fibromialgia

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-SOLNA

Neuroförbundet (Neurologiskt handikappades riksförbund)

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SWEDEN

Region Stockholm-STOCKHOLM

Njurförbundet

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SWITZERLAND

Suisse Alémanique-ZÜRICH

Schweizerische Muskelgesellschaft

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SWITZERLAND

Suisse Romande-YVERDON

ASRIMM - Association Suisse Romande Intervenant contre les Maladies neuro-Musculaires

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UNITED KINGDOM

Cambridgeshire-PETERBOROUGH

Kidney Research UK

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UNITED KINGDOM

Hampshire-ALTON

Kidney Care UK

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UNITED KINGDOM

Nottinghamshire-WORKSOP

NFK - National Kidney Federation

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ROMANIA

BACAU-BACAU

Organizatia trebuie- Bacau

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SWEDEN

Region Stockholm-BROTTBY

Willefonden

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SWEDEN

Region Stockholm-SOLNA

RBU-Riksförbundet för Rörelsehindrade Barn och Ungdomar

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UNITED KINGDOM

West Glamorgan-CARMARTHEN

Cerebra (Support for children with brain-related neurological conditions)

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SLOVENIA

SLOVENIA

LJUBLJANA

EAMDA : European alliance of Neuromuscular disorders associations

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Cataluña

BARCELONA

ASEM: Federación Española de Enfermedades Neuromusculares

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SPAIN

Madrid

MADRID

ALCER: Federación Nacional de Asociaciones para la Lucha Contra las Enfermedades del Riñón

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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UNITED KINGDOM

Tyne & Wear

NEWCASTLE UPON TYNE

TREAT-NMD : Neuromuscular Network Associations

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