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Patient organisations

FRANCE

ILE-DE-FRANCE-PARIS

AMRYC - Association des Maladies Héréditaires du Rythme Cardiaque

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ERN

FINLAND

Finland-HELSINKI

Sydänlapset ja -aikuiset ry

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ERN

IRELAND

County Dublin-DUBLIN

Heart Children Ireland

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UNITED KINGDOM

Kent-RAINHAM

HeartLine Association

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AUSTRALIA

New South Wales-ARTARMON

Variety - the Children's Charity

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

Victoria-PARKVILLE

GSNV - Genetic Support Network of Victoria

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

HAINAUT-MOUSCRON

Asbl Chiara VDS - Chiara Vie, Don d'organes et Solidarité

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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CANADA

Colombie-Britannique-VANCOUVER

Rare Disease Foundation

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CANADA

Ontario-TORONTO

AboutFace

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CYPRUS

Cyprus-NICOSIE

Pancyprian Association For Rare Genetic Diseases « Unique Smiles »

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DENMARK

Hovedstaden-COPENHAGEN

Hjerteforeningen

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ERN

FRANCE

NOUVELLE AQUITAINE-BORDEAUX

EwenLife Rare Maladies Rares

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FRANCE

OUTRE-MER-SAINT-PIERRE

Association pour la Sensibilisation aux Maladies Rares, Orphelines et Auto-Immunes ŕ Saint-Pierre-et-Miquelon

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GERMANY

Bayern-ASCHAFFENBURG

Kindernetzwerk e.V. - Selbsthilfe für Familien mit Kindern und jungen Erwachsenen mit chronischen Erkrankungen und Behinderungen

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GERMANY

Hessen-FRANKFURT AM MAIN

Kinderherzstiftung der Deutschen Herzstiftung e. V.

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GERMANY

Niedersachsen-BRAUNSCHWEIG

HERZKIND e.V. - Verein zur Förderung der Beratung und Betreuung herzkranker Kinder und ihrer Familien

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GERMANY

Niedersachsen-WOLFENBÜTTEL

Bundesverein JEMAH (Jugendliche und Erwachsene mit angeborenem Herzfehler) e.V.

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GERMANY

Nordrhein-Westfalen-AACHEN

BVHK - Bundesverband Herzkranker Kinder e.V.

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GERMANY

Nordrhein-Westfalen-OBERHAUSEN

IDHK - Interessengemeinschaft Das herzkranke Kind e.V.

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GREECE

ATTIKI-ATHENS

"95" - Rare Alliance Greece

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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IRELAND

County Dublin-DUBLIN

Irish Heart Foundation

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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IRELAND

County Dublin-DUBLIN

Cardiac Risk in the Young in Ireland

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ITALY

CAMPANIA-NAPOLI

Associazione Cardiomiopatie e Malattie Rare Connesse-ONLUS

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ERN

ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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ERN

LATVIA

LATVIA-RIGA

Biedriba Genetiski parmantoto slimibu pacientiem un lidzcilvekiem "Saknes"

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MALTA

MALTA-VALLETTA

The National Alliance for Rare Diseases Support - Malta

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NETHERLANDS

Zuid-Holland-DEN HAAG

Harteraad

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ERN

SLOVAKIA

Presovsky kraj-BARDEJOV

ZOGO - Zdruzenie Ojedlinelych Genetickych Ochorenie

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Andalucía-JAÉN

Enfermedades Raras: Mas Visibles

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUŃA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Madrid-MADRID

INDEPF: Instituto de Investigación y Desarrollo Social de Enfermedades Poco Frecuentes

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA: Grupo de enfermedades raras de Navarra

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Förderverein für Kinder mit seltenen Krankheiten

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Essex-BRAINTREE

CHF - Children's Heart Federation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Merseyside-WIRRAL

CHA - Children's Heart Association

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UNITED KINGDOM

Surrey-EPSOM

Gene People

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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