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Orphanet provides information institutions whose activity(ies) in the field of rare diseases is (are) registered in Orphanet. This includes, for example, institutions hosting expert centres, research or clinical laboratories, patient organisations, institutions hosting registries or biobanks. The information displayed is provided by the professionals working in this institution who are registered with Orphanet.

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If an institution is not listed, it may not have yet been identified or may have refused to be listed.

Orphanet cannot be held responsible for harmful, truncated or erroneous use of any information found in the Orphanet database.