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Orphanet includes networks of centres of expertise that are focused on a rare disease or a group of rare diseases and that are officially recognised as an international or national network of centres of expertise by health authorities or which have received specific funding from a well-established body.
Enter your requested disease name to access this information.
The results can be sorted either geographically (by country, region and city, in alphabetical order), or by specificity (from those more focused on a particular disease to those specialised in a group of diseases including the disease you were looking for).
Data collection takes place in Orphanet consortium¬¬ countries and is currently ongoing. Thus the database cannot be regarded as comprehensive. If a network of centres of expertise is not listed in a region or a country, it may not have been identified or may have refused to be listed. It is also possible that a network of centres of expertise has not yet been set up for some rare diseases.
By no means are these networks of centres of expertise the only places where patients can be adequately diagnosed and treated. There are other places for expert advice when needed.
Information in Orphanet is not intended to replace professional health care. Orphanet cannot be held responsible for harmful, truncated or erroneous use of any information found in the Orphanet database.