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ERN-LUNG: European Reference Network on rare respiratory diseases

Coordinator of expert centre network

Members

Antwerp Cystic Fibrosis reference center (adults section) - GZA GZA Ziekenhuizen campus Sint-Vincentius

Centre for rare respiratory diseases - UZA University Hospital of Antwerp - UZA

Cystic Fibrosis reference center (children section) - UZ Antwerpen University Hospital of Antwerp - UZA

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Antwerp University Hospital of Antwerp - UZA

Centre of Reference of Cystic Fibrosis (adults section) - ULB Hôpital Erasme Erasme Hospital - ULB

Multidisciplinary expert team/Centre for rare diseases Erasme University Hospital Erasme Hospital - ULB

Pulmonary Hypertension Clinic - ULB Erasme Erasme Hospital - ULB

Centre of reference of Cystic Fibrosis (children section) - ULB - HUDERF Hôpital Universitaire des Enfants Reine Fabiola - HUDERF

Centre of Reference of Cystic Fibrosis - UZ Leuven UZ Leuven - Campus Gasthuisberg

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Leuven UZ Leuven - Campus Gasthuisberg

Reference centre for pulmonary hypertension - UZ Leuven UZ Leuven - Campus Gasthuisberg

Cystic Fibrosis Centre Motol university hospital - 2nd Medical School Charles University Prague

Interstitial lung diseases expert centre Aarhus Universitetshospital - Norrebrogade

Cystic fibrosis clinic Rigshospitalet

Reference centre for rare pulmonary diseases (adults) - Coordinator site CHU de Lyon HCL - GH Est-Hôpital Louis Pradel

Reference centre for pulmonary hypertension - Coordinator site CHU Paris-Sud - Hôpital de Bicêtre

National reference centre for cystic fibrosis and diseases related to an abnormal CFTR - Coordinator centre CHU Paris Centre - Hôpital Cochin, Site Cochin

Reference centre for rare respiratory diseases - Coordinator site CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

National reference centre for cystic fibrosis and diseases related to an abnormal CFTR - Constitutive site Hôpital Necker-Enfants Malades

National reference centre for cystic fibrosis and diseases related to an abnormal CFTR - Constitutive site CHU de Lyon HCL - GH Sud

Cystic fibrosis clinic Charité - Universitätsmedizin Berlin (CVK)

Pneumology clinic Universitätsmedizin Essen - Ruhrlandklinik

Alpha-1-antitrypsin deficiency clinic Klinik für Pneumologie am Universitätsklinikum Freiburg

Rare lung diseases clinic Universitätsklinikum Freiburg

Rare pulmonary diseases clinic Med. Klinik und Poliklinik II des UKGM am Standort Gießen

Acute respiratory distress syndrome clinic Medizinische Hochschule Hannover

Alpha-1-antitrypsin deficiency clinic Medizinische Hochschule Hannover

Pneumology clinic Medizinische Hochschule Hannover

Rare pulmonary diseases and lung transplantation clinic Medizinische Hochschule Hannover

Interstitial lung disease clinic Thoraxklinik-Heidelberg gGmbH

Rare pulmonary diseases clinic Universitätsmedizin Heidelberg

Cystic fibrosis clinic Universitätsklinikum Köln

Pneumology clinic Universitätsklinikum Münster

Primary ciliary dyskinesia clinic Universitätsklinikum Münster

Pneumology clinic Universitäts-Kinderklinik Würzburg

Primary ciliary dyskinesia clinic Universitäts-Kinderklinik Würzburg

Cystic fibrosis clinic Universitätsklinikum Würzburg

Pneumology clinic Zentrum Innere Medizin (ZIM)

Centre of Expertise for cystic fibrosis Azienda Ospedaliera Universitaria Anna Meyer

Centre of Expertise for adult rare respiratory diseases Ospedale San Giuseppe

Specialized clinic for the rare diseases of lung Azienda Ospedaliero - Universitaria di Modena

Centre of Expertise for pulmonary arterial hypertension and and rare pulmonary diseases Azienda Ospedaliero-Universitaria San Luigi Gonzaga

Centre of Expertise for idiopathic pulmonary fibrosis Fondazione IRCCS Policlinico San Matteo

Cente of Expertise for primary ciliary dyskinesia Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

Centre of Expertise for rare pulmonary diseases IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Centre of Expertise for diffuse infiltrative lung diseases and rare pulmonary diseases Azienda Sanitaria Universitaria Integrata di Trieste

Cystic fibrosis, rare pulmonary dis. and Schwachman-Diamond synd. specialized genetics clinic and genetic counselling clinic Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

VUMC PH Centre Amsterdam UMC, locatie VUmc

AIR - Alpha1 International Registry LUMC - Leids Universitair Medisch Centrum

Interstitial Lung Diseases Center of Excellence St. Antonius Ziekenhuis, locatie Nieuwegein

Center for Bronchopulmonary Dysplasia Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Cystic Fibrosis Center Erasmus MC - Erasmus Medisch Centrum

Interstitial Lung Disease Centre Erasmus MC - Erasmus Medisch Centrum

Mesothelioma Centre Erasmus MC - Erasmus Medisch Centrum

Pulmonary Hypertension Center Erasmus MC - Erasmus Medisch Centrum

Sarcoidosis Centre Erasmus MC Erasmus MC - Erasmus Medisch Centrum

Cystic Fibrosis Clinic Utrecht for Children and Adults UMC Utrecht - Universitair Medisch Centrum Utrecht

Expert Center for Pulonary Hypertension Europejskie Centrum Zdrowia Otwock Szpital im. Fryderyka Chopina

Expert Center for Alfa-antitripsin deficiency Instytut Gruzlicy i Chorob Pluc

Pulmonary Vascular Diseases Unit Centro Hospitalar do Porto

CSUR - National unit of expertise for complex pulmonary hypertension Hospital Clínic de Barcelona

Unit of regional clinical experience in alpha-1-antitrypsin deficiency Hospital Universitari Vall d'Hebron

CSUR - National unit of expertise for complex pulmonary hypertension Hospital Universitario 12 de Octubre

Expertteam för Cystisk Fibros Karolinska Universitetssjukhuset - Solna

Adult Cystic Fibrosis Clinic Belfast City Hospital

Pulmonary Hypertension Service (part of the national pulmonary hypertension services network) Hammersmith Hospital

Paediatric Cystic Fibrosis Clinic (with nasal potential difference testing- all ages) Royal Brompton & Harefield NHS Foundation

Bronchiectasis Service Freeman Hospital, The newcastle upon Tyne Hospitals NHS Foundation Trust

Primary Ciliary Dyskinesia NHS Specialised Service Southampton General Hospital

Further information on this network

Antwerp Cystic Fibrosis reference center (adults section) - GZA
GZA Ziekenhuizen campus Sint-Vincentius

Centre for rare respiratory diseases - UZA
University Hospital of Antwerp - UZA

Cystic Fibrosis reference center (children section) - UZ Antwerpen
University Hospital of Antwerp - UZA

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Antwerp
University Hospital of Antwerp - UZA

Centre of Reference of Cystic Fibrosis (adults section) - ULB Hôpital Erasme
Erasme Hospital - ULB

Multidisciplinary expert team/Centre for rare diseases Erasme University Hospital
Erasme Hospital - ULB

Pulmonary Hypertension Clinic - ULB Erasme
Erasme Hospital - ULB

Centre of reference of Cystic Fibrosis (children section) - ULB - HUDERF
Hôpital Universitaire des Enfants Reine Fabiola - HUDERF

Centre of Reference of Cystic Fibrosis - UZ Leuven
UZ Leuven - Campus Gasthuisberg

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Leuven
UZ Leuven - Campus Gasthuisberg

Reference centre for pulmonary hypertension - UZ Leuven
UZ Leuven - Campus Gasthuisberg

Cystic Fibrosis Centre
Motol university hospital - 2nd Medical School Charles University Prague

Interstitial lung diseases expert centre
Aarhus Universitetshospital - Norrebrogade

Cystic fibrosis clinic
Rigshospitalet

Reference centre for rare pulmonary diseases (adults) - Coordinator site
CHU de Lyon HCL - GH Est-Hôpital Louis Pradel

Reference centre for pulmonary hypertension - Coordinator site
CHU Paris-Sud - Hôpital de Bicêtre

National reference centre for cystic fibrosis and diseases related to an abnormal CFTR - Coordinator centre
CHU Paris Centre - Hôpital Cochin, Site Cochin

Reference centre for rare respiratory diseases - Coordinator site
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

National reference centre for cystic fibrosis and diseases related to an abnormal CFTR - Constitutive site
Hôpital Necker-Enfants Malades

National reference centre for cystic fibrosis and diseases related to an abnormal CFTR - Constitutive site
CHU de Lyon HCL - GH Sud

Cystic fibrosis clinic
Charité - Universitätsmedizin Berlin (CVK)

Pneumology clinic
Universitätsmedizin Essen - Ruhrlandklinik

Alpha-1-antitrypsin deficiency clinic
Klinik für Pneumologie am Universitätsklinikum Freiburg

Rare lung diseases clinic
Universitätsklinikum Freiburg

Rare pulmonary diseases clinic
Med. Klinik und Poliklinik II des UKGM am Standort Gießen

Acute respiratory distress syndrome clinic
Medizinische Hochschule Hannover

Alpha-1-antitrypsin deficiency clinic
Medizinische Hochschule Hannover

Pneumology clinic
Medizinische Hochschule Hannover

Rare pulmonary diseases and lung transplantation clinic
Medizinische Hochschule Hannover

Interstitial lung disease clinic
Thoraxklinik-Heidelberg gGmbH

Rare pulmonary diseases clinic
Universitätsmedizin Heidelberg

Cystic fibrosis clinic
Universitätsklinikum Köln

Pneumology clinic
Universitätsklinikum Münster

Primary ciliary dyskinesia clinic
Universitätsklinikum Münster

Pneumology clinic
Universitäts-Kinderklinik Würzburg

Primary ciliary dyskinesia clinic
Universitäts-Kinderklinik Würzburg

Cystic fibrosis clinic
Universitätsklinikum Würzburg

Pneumology clinic
Zentrum Innere Medizin (ZIM)

Centre of Expertise for cystic fibrosis
Azienda Ospedaliera Universitaria Anna Meyer

Centre of Expertise for adult rare respiratory diseases
Ospedale San Giuseppe

Specialized clinic for the rare diseases of lung
Azienda Ospedaliero - Universitaria di Modena

Centre of Expertise for pulmonary arterial hypertension and and rare pulmonary diseases
Azienda Ospedaliero-Universitaria San Luigi Gonzaga

Centre of Expertise for idiopathic pulmonary fibrosis
Fondazione IRCCS Policlinico San Matteo

Cente of Expertise for primary ciliary dyskinesia
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

Centre of Expertise for rare pulmonary diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Centre of Expertise for diffuse infiltrative lung diseases and rare pulmonary diseases
Azienda Sanitaria Universitaria Integrata di Trieste

Cystic fibrosis, rare pulmonary dis. and Schwachman-Diamond synd. specialized genetics clinic and genetic counselling clinic
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

VUMC PH Centre
Amsterdam UMC, locatie VUmc

AIR - Alpha1 International Registry
LUMC - Leids Universitair Medisch Centrum

Interstitial Lung Diseases Center of Excellence
St. Antonius Ziekenhuis, locatie Nieuwegein

Center for Bronchopulmonary Dysplasia
Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Cystic Fibrosis Center
Erasmus MC - Erasmus Medisch Centrum

Interstitial Lung Disease Centre
Erasmus MC - Erasmus Medisch Centrum

Mesothelioma Centre
Erasmus MC - Erasmus Medisch Centrum

Pulmonary Hypertension Center
Erasmus MC - Erasmus Medisch Centrum

Sarcoidosis Centre Erasmus MC
Erasmus MC - Erasmus Medisch Centrum

Cystic Fibrosis Clinic Utrecht for Children and Adults
UMC Utrecht - Universitair Medisch Centrum Utrecht

Expert Center for Pulonary Hypertension
Europejskie Centrum Zdrowia Otwock Szpital im. Fryderyka Chopina

Expert Center for Alfa-antitripsin deficiency
Instytut Gruzlicy i Chorob Pluc

Pulmonary Vascular Diseases Unit
Centro Hospitalar do Porto

CSUR - National unit of expertise for complex pulmonary hypertension
Hospital Clínic de Barcelona

Unit of regional clinical experience in alpha-1-antitrypsin deficiency
Hospital Universitari Vall d'Hebron

CSUR - National unit of expertise for complex pulmonary hypertension
Hospital Universitario 12 de Octubre

Expertteam för Cystisk Fibros
Karolinska Universitetssjukhuset - Solna

Adult Cystic Fibrosis Clinic
Belfast City Hospital

Pulmonary Hypertension Service (part of the national pulmonary hypertension services network)
Hammersmith Hospital

Paediatric Cystic Fibrosis Clinic (with nasal potential difference testing- all ages)
Royal Brompton & Harefield NHS Foundation

Bronchiectasis Service
Freeman Hospital, The newcastle upon Tyne Hospitals NHS Foundation Trust

Primary Ciliary Dyskinesia NHS Specialised Service
Southampton General Hospital