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ERN-Skin: European Reference Network on Rare and Undiagnosed Skin Disorders

ERN-Skin: European Reference Network on Rare and Undiagnosed Skin Disorders

Coordinator of expert centre network

Członkowie

EB House Austria (full member in the European Reference Network ERN-Skin) Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

Multidisciplinary expert team/Centre for rare diseases - Erasme University Hospital Erasme Hospital - ULB

Reference center for suppurative hidradenitis and associated syndromes - ULB Hôpital Erasme Erasme Hospital - ULB

General Genetic Counselling Clinic - UZ Gent Center for Medical Genetics Gent

Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent Ghent University Hospital - UZ Gent

General Genetic Counselling Clinic - UZ Leuven UZ Leuven - Campus Gasthuisberg

Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Leuven UZ Leuven - Campus Gasthuisberg

Reference centre for inherited Epidermolysis Bullosa - UZ Leuven UZ Leuven - Campus Gasthuisberg

Porphyria clinic Odense University hospital

Rare Skin Diseases (Department of Dermatology) HUS - Helsinki University Hospital

Reference centre for rare and genetic dermatologic diseases SUD (MAGEC) - Coordinator site CHU de Bordeaux - Hôpital Saint André

Reference centre for toxic bullous dermatoses - Coordinator site Hôpitaux Universitaires Henri Mondor

Reference centre for rare and genetic dermatologic diseases SUD (MAGEC) - Constitutive site CHU de Nice - Hôpital l'Archet 2

Reference centre for rare genetic dermatologic diseases NORD (MAGEC) - Coordinator site Hôpital Necker-Enfants Malades

Reference centre for autoimmune bullous diseases - Coordinator site CHU de Rouen

Reference centre for rare and genetic dermatologic diseases SUD (MAGEC) - Constitutive site CHU de Toulouse - Hôpital Larrey

Hereditary angioedema clinic Städtisches Klinikum Dessau

Malignant atrophic papulosis clinic Städtisches Klinikum Dessau

Neurofibromatosis clinic Städtisches Klinikum Dessau

Genodermatosis clinic Kinder- und Jugendklinik des Universitätsklinikums Erlangen

Centre for ectodermal dysplasia ZSEER - Zentrum für Seltene Erkrankungen Erlangen

Interdisciplinary epidermolysis bullosa clinic Universitäts-Klinik für Dermatologie und Venerologie

Fragile skin and epidermolysis bullosa centre Universitätsklinikum Freiburg

Autoimmune skin diseases clinic Universitätsklinikum Schleswig-Holstein - Campus Lübeck

Rare genetic skin diseases clinic Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

Rare genetic skin disease clinic Klinik und Poliklinik für Dermatologie und Allergologie - Campus Innenstadt

Rare skin tumor clinic Klinik und Poliklinik für Dermatologie und Allergologie - Campus Innenstadt

National Reference Centre for Ichthyosis Universitäts-Hautklinik Münster

Rare skin diseases clinic Universitätsklinikum Regensburg

Skin tumor clinic Universitätsklinikum Regensburg

Ichthyosis clinic Universitäts-Klinik und Poliklinik für Dermatologie

Xeroderma pigmentosum clinic Universitäts-Klinik und Poliklinik für Dermatologie

Skin tumor clinic Universitäts-Hautklinik Würzburg

Autoimmune skin diseases clinic Universitätsklinikum Würzburg

Centre for Rare Skin Diseases Department of Dermatology, Venereology and Dermatoncology, Semmelweis University

Dermatology expert centre University of Debrecen

Rare Dermatological Conditions Clinic Children's Health Ireland @ Crumlin

Centre of Expertise for rare skin diseases Policlinico S. Orsola-Malpighi - Area S. Orsola

Centre of Expertise for autoimmune bullous skin diseases USL Toscana Centro Firenze - Presidio Ospedaliero Piero Palagi

Centre of Expertise for rare skin diseases Azienda Ospedaliera di Padova

Centre of Expertise for rare pediatric skin diseases IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Centre of Expertise for rare skin diseases Istituto Dermopatico dell'Immacolata - IRCCS

Centre for Marfan Syndrome Amsterdam UMC, locatie AMC

Center for Blistering Diseases UMCG - Universitair Medisch Centrum Groningen

Center for Genodermatoses AZM - Academisch Ziekenhuis Maastricht

Center of Rare Skin Diseases Erasmus MC - Erasmus Medisch Centrum

Centrum Eksperckie dla Rzadkich Chorob Skory Szpital Kliniczny im. Heliodora Swiecickiego

CSUR - National unit of expertise for epidermolysis bullosa Hospital Clínic de Barcelona

CSUR - National unit of expertise for inherited disorders of keratinization Hospital Clínic de Barcelona

CSUR - National unit of expertise for epidermolysis bullosa Hospital Sant Joan de Déu Barcelona

CSUR - National unit of expertise for inherited disorders of keratinization Hospital Sant Joan de Déu Barcelona

Expert team for Ectodermal dysplasia Karolinska Universitetssjukhuset - Solna

Expert team for Genodermatosis Akademiska Sjukhuset

Rare genetic skin disorders and tertiary dermatology clinic Birmingham Children's Hospital NHS Foundation Trust

Hidradenitis Suppurativa Clinic Cardiff & Vale University Health Board

Scottish Cutaneous Porphyria Service Ninewells Hospital and Medical School

Epidermolysis Bullosa Treatment NHS Specialised Service St Thomas' Hospital

Xeroderma Pigmentosum NHS Specialised Service St Thomas' Hospital

Epidermolysis Bullosa Treatment NHS Specialised Service University College London Hospitals, NHS Foundation Trust

Więcej informacji o tej sieci

EB House Austria (full member in the European Reference Network ERN-Skin)
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

Multidisciplinary expert team/Centre for rare diseases - Erasme University Hospital
Erasme Hospital - ULB

Reference center for suppurative hidradenitis and associated syndromes - ULB Hôpital Erasme
Erasme Hospital - ULB

General Genetic Counselling Clinic - UZ Gent
Center for Medical Genetics Gent

Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent
Ghent University Hospital - UZ Gent

General Genetic Counselling Clinic - UZ Leuven
UZ Leuven - Campus Gasthuisberg

Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Leuven
UZ Leuven - Campus Gasthuisberg

Reference centre for inherited Epidermolysis Bullosa - UZ Leuven
UZ Leuven - Campus Gasthuisberg

Porphyria clinic
Odense University hospital

Rare Skin Diseases (Department of Dermatology)
HUS - Helsinki University Hospital

Reference centre for rare and genetic dermatologic diseases SUD (MAGEC) - Coordinator site
CHU de Bordeaux - Hôpital Saint André

Reference centre for toxic bullous dermatoses - Coordinator site
Hôpitaux Universitaires Henri Mondor

Reference centre for rare and genetic dermatologic diseases SUD (MAGEC) - Constitutive site
CHU de Nice - Hôpital l'Archet 2

Reference centre for rare genetic dermatologic diseases NORD (MAGEC) - Coordinator site
Hôpital Necker-Enfants Malades

Reference centre for autoimmune bullous diseases - Coordinator site
CHU de Rouen

Reference centre for rare and genetic dermatologic diseases SUD (MAGEC) - Constitutive site
CHU de Toulouse - Hôpital Larrey

Hereditary angioedema clinic
Städtisches Klinikum Dessau

Malignant atrophic papulosis clinic
Städtisches Klinikum Dessau

Neurofibromatosis clinic
Städtisches Klinikum Dessau

Genodermatosis clinic
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

Centre for ectodermal dysplasia
ZSEER - Zentrum für Seltene Erkrankungen Erlangen

Interdisciplinary epidermolysis bullosa clinic
Universitäts-Klinik für Dermatologie und Venerologie

Fragile skin and epidermolysis bullosa centre
Universitätsklinikum Freiburg

Autoimmune skin diseases clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

Rare genetic skin diseases clinic
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

Rare genetic skin disease clinic
Klinik und Poliklinik für Dermatologie und Allergologie - Campus Innenstadt

Rare skin tumor clinic
Klinik und Poliklinik für Dermatologie und Allergologie - Campus Innenstadt

National Reference Centre for Ichthyosis
Universitäts-Hautklinik Münster

Rare skin diseases clinic
Universitätsklinikum Regensburg

Skin tumor clinic
Universitätsklinikum Regensburg

Ichthyosis clinic
Universitäts-Klinik und Poliklinik für Dermatologie

Xeroderma pigmentosum clinic
Universitäts-Klinik und Poliklinik für Dermatologie

Skin tumor clinic
Universitäts-Hautklinik Würzburg

Autoimmune skin diseases clinic
Universitätsklinikum Würzburg

Centre for Rare Skin Diseases
Department of Dermatology, Venereology and Dermatoncology, Semmelweis University

Dermatology expert centre
University of Debrecen

Rare Dermatological Conditions Clinic
Children's Health Ireland @ Crumlin

Centre of Expertise for rare skin diseases
Policlinico S. Orsola-Malpighi - Area S. Orsola

Centre of Expertise for autoimmune bullous skin diseases
USL Toscana Centro Firenze - Presidio Ospedaliero Piero Palagi

Centre of Expertise for rare skin diseases
Azienda Ospedaliera di Padova

Centre of Expertise for rare pediatric skin diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Centre of Expertise for rare skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

Centre for Marfan Syndrome
Amsterdam UMC, locatie AMC

Center for Blistering Diseases
UMCG - Universitair Medisch Centrum Groningen

Center for Genodermatoses
AZM - Academisch Ziekenhuis Maastricht

Center of Rare Skin Diseases
Erasmus MC - Erasmus Medisch Centrum

Centrum Eksperckie dla Rzadkich Chorob Skory
Szpital Kliniczny im. Heliodora Swiecickiego

CSUR - National unit of expertise for epidermolysis bullosa
Hospital Clínic de Barcelona

CSUR - National unit of expertise for inherited disorders of keratinization
Hospital Clínic de Barcelona

CSUR - National unit of expertise for epidermolysis bullosa
Hospital Sant Joan de Déu Barcelona

CSUR - National unit of expertise for inherited disorders of keratinization
Hospital Sant Joan de Déu Barcelona

Expert team for Ectodermal dysplasia
Karolinska Universitetssjukhuset - Solna

Expert team for Genodermatosis
Akademiska Sjukhuset

Rare genetic skin disorders and tertiary dermatology clinic
Birmingham Children's Hospital NHS Foundation Trust

Hidradenitis Suppurativa Clinic
Cardiff & Vale University Health Board

Scottish Cutaneous Porphyria Service
Ninewells Hospital and Medical School

Epidermolysis Bullosa Treatment NHS Specialised Service
St Thomas' Hospital

Xeroderma Pigmentosum NHS Specialised Service
St Thomas' Hospital

Epidermolysis Bullosa Treatment NHS Specialised Service
University College London Hospitals, NHS Foundation Trust